Welcome to a very special site dedicated to PCOS, Infertility and DES This web site was created for all those who are looking for support and information in regards to PCO, Infertility and DES. I wanted to create a safe and comfortable place where women could come and search informative links, subscribe to our mailing list and enjoy the chat room. Support is key in making it through all of our personal battles.
My wish is that you will find what you are looking for on this web site. This page is new and will be constantly changing. Each visit, don't forget to hit your reset/reload button to reflect any changes. Any ideas, suggestions or if you want to add a link that you think people would enjoy, please contact me at pco_iffriends@netzero.net
I Would Like to share my personal story with you so you can see why I started this group. I needed so badly to find others who were just like me and I also wanted to help others who were just beginning their struggle with PCOS or Infertility.
My name is Cyndie and I was born on December 11, 1967. In order for my mom to have me and my brother, she was put on a drug called DES. Previously, my mother had 8 miscarriages and was told that DES was the only drug that would help her hold a pregnancy.
I never realized what an impact DES would have on my life until I became a teen. I got my first period at age 13. What should have been an exciting moment in my life was pure hell. I spent the entire day screaming with cramps and wondering what the big deal was about becoming a woman. After many months of suffering, my other took me to see a GYN for a pap and to see why I had such bad cramping. The MD basically to me to suck it up and this is what women go through. I never saw that physician again !!!!
As my teenage years progressed, I noticed that I had a lot of facial and body hair. I thought this was normal until I asked my friends. None of them had facial hair or body hair like mine. I spent countless hours trying many methods of hair removal. I will never forget the time when one of my boyfriends commented and teased me about my hairy arms and peach fuzz face. As a result of these comments, my self-esteem was the lowest of all my peers. I hid my body a lot and refused to go swimming due to the hair and the effects the hair removal had on my body.
MY first pregnancy was an ectopic. Luckily, the surgeon was able to keep my fallopian tube and ovary that was affected. When the surgery was complete, my MD told me that I would be fine and I should be able to have a family without any problems. Little did I know the effects the ectopic would have on me. Little did he know what my future would hold.
On October 29, 1994, I married the love of my life. We decided to elope and save the money that would have been used for a wedding to build a home. I will never forget parking outside the Justive of the Peace's house and exchanging life long promises to each other. I made DH promise that if there ever came a day when I couldn't take care of myself, he would make sure my facial hair was plucked daily............HOW ROMANTIC!!!!!!
Three months after we were married I had my second miscarriage. This was a total shock to us because we weren't even trying to have a family. I was upset but also happy at the same time. I was able to get pregnant and couldn't wait to really try!!! Shortly after my miscarriage, I went from 110lbs to 200lbs. The facial and body hair got worse and I began to have bad hot flashes. My periods started to go from every 28 days to every 28-40 days. My primary care physician asked if I would see a fertility specialist since I had a history of DES, an ectopic and all the symptoms of PCOS.
A few weeks later I found myself going through all the routine infertility tests. The RE discovered that I had a very low progesterone level that could have been the cause of my miscarriage. I was put on a progesterone medication to bootst my levels. I had to take it 3 days after I ovulated and continue until I got AF. The side effects of the med drove me nuts!!! It made me nervous, irritable and edgy. DH stayed away while I was on it. Poor guy!!!
I countinued my meds and still did not get pregnant. At the advice of my RE I had an HSG. I wont get into the gory details but it did show that my fallopian tubes were blocked. I had a laporoscopy and a hysteroscopy and the surgeon was able to clear both tubes. After the surgery, my RE put me on clomid to boost my ovulation. I took 3 months of the drug and did not get PG.
After all of my IF work ups and surgery, I decided to take a much needed break from all this stuff. I went 1.5 years without concentrating on getting pregnant, even though each month I would hope and pray that my dream would come true.
On september 13, I had the shock of my life. I was late for AF.....which wasn't unusual.....I was having some funny brown discharge and for the heck of it decided to take an HPT. Much to my disbelief it came out +++++ !!! I immediately called my RE to tell him the news. He suggested that I start my progesterone ASAP and come see him the next day.
The RE did an HCG 24 hours apart. I spent the next few days in heaven. I just knew this was going to work out!!!! I spent my days and nights dreaming and planning for this baby. I was the happiest woman in the world!! A few days later, my world came crashing down. My HCG level went from 500 to 100.......I was miscarrying again. DH and I cried and consoled each other. We looked down at our fury son Morgan and thought. As long as we have him, we will be ok (to some it may sound corny, but if you are an animal lover you will understand). Morgan was the fury baby that helped me make it through good and bad. He was the kinda dog that knew when I was sad and never hesitated to lick my tears.
A few days after my miscarriage Morgan had to be put to sleep. He was only 5 years old and had lived that past 2 years with a degenerative disc disease. The events of the past few days certainly did test my emotional well being. I will miss Morgann and he will truly live in my heart and soul forever. We now have a new fury baby. His name is Reilly and he is 10 weeks old. He is a cairn terrier, I chose this baby cuz he reminded me a lot of Morgan. He has Morgan's eyes and Morgan's spirit. I just hope he loves me like Morgan did.
It has now been 3 weeks since my miscarriage and I am gonna go at this infertility thing with a vengeance!!! My RE has sent DH for a chromosome study. I guess if his chromosomes are abnormal, we have a 20% chance of ever having a baby. There is also a slight chance that I have an autoimmune disorder. My RE thinks I may be allergic to DH's sperm or my body and immune system is killing the pregnancy like it is an illness or something. I have an appointment to see a "top of the line" RE and I am hoping and praying that he will have the answers to my dreams. Until then, I am happy to take comfort in the Precious Dreams Support group. I created it knowing that there are so many women out there with PCOS and Infertility who have unanswered questions, feel alone, and need to be surrounded by others with compassion. I truly hope you find it here. I don't know which road lies ahead of me, I do know the journey was made much easier by having the internet as a wonderful gateway. Through the internet, I have made so many wonderful friendships that are full of love, warmth and support. We all met the same way, we were looking for answers and comfort to aid us in battling our PCO or Infertility. My prayer is that all women will be as touched as I have been and find strenght in the Precious Dreams Support Group. We may be friends without faces but we will have a lifetime of support, laughs, tears and triumphs!!!
If your ever have comments or suggestions about the Precious Dreams web site. Please do not hesitate to email me.
If you would like to join the PCO and Infertility Friends Support Group, Just follow this link:
I hope you find support and comfort in our support group. This site is constantly changing so don't forget to reload your browser upon each visit!!
Best Wishes That All Of Your Hopes And Dreams Come True Cyndie
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