Phoenix
There was a time when swords and sorcery were what
people believed in, and magic was a way of life. But that was eons
ago, and times have changed.
Today, people believe in technology and
standardized tests and scores. A single number is used to help set
the course and tone of your life.
I approached the school building with trepidation.
I had heard stories from other parents that the school lawyer often
acted like Perry Mason in this type of meeting. If the parents
disagreed with the school's suggestion, he would quote test scores
and legal terms until the parents would give in like a courtroom
confession.
The trees rustled softly as I entered the building
and made my way down the deserted hallways to the appointed room. I
knew the conference room was going to be small; but it was only about
half as big as I had expected.
As I walked through the room's doorway, the
temperature rose at least 20 degrees. The walls were painted an ugly
dark green. An old-fashioned chalkboard covered over half of one wall
of the room. On it were written the results of a ton of tests that
had helped to prompt this meeting. An ugly and battered brown table
occupied most of the floor space in the room; there was barely a
walking path around its perimeter. A simple empty chair sat at one
end of the table for me to use. A dozen or more chairs were clsutered
around the other three sides and were overflowing with educational
experts discussing my child's future.
As I scanned the room, I didn't see many familiar
faces. I almost laughed when I noticed the principal and
superintendent dressed in their identical black suits; they looked
like the Blues Brothers minus the hats and shades. I noticed
that Mrs. White, the special education teacher, still constantly
twisted the long row of beads that hung from her neck. She had doen
this every time I had ever seen her. Mrs. Gilbert, the new special
educaation director, looked and acted like a bull elephant. She had
been my daughter's kindergarten teacher before getting her master's
degree. We had disagreed about almost everything from the first day
of school.
The panel's leader was Mr. Marsh, the school
attorney. Wearing a three-piece Armani suit, he looked bored as he
looked at his Rolex watch and asked the panel members to take their
seats so the meeting could begin. As the others wandered to the
table, he looked at me as if i were his favorite doggie
treat.
I couldn't begin to imagine the reason for his
stare. Granted, I have long blonde hair and green eyes that guys seem
to like. But my figure is like a linebacker in reverse, big in all
the wrong places, since I had my baby.
"I really don't understand your expectations,"
said Mr. Marsh, looking down his patrician nose. "I'm sure you can
appreciate our position, Mrs. Sheppard. There's really nothing we can
do for your daughter here."
"First," I said, "my name is Crystal, not Mrs.
Sheppard. That's my mother. And secondly, I don't have a clue what
your position is. I thought the purpose of this meeting was to
develop a plan for my daughter so she could be with her
classmates."
"That's not exactly true, dear," said Mrs.
Gilbert. "We're here to decide what the best placement for
your daughter is. The team feels that it wouldn't be in her best
interests to place her in a regular classroom at this
time."
"A self-contained classroom is fine."
"The team has decided that the best placement for
your daughter is at a state facility."
"I don't understand," I said. "Why is that
even an option?"
Eight years ago, my daughter had steamrooled into
the world six weeks early. The hospital room was painted a dingy
shade of yellow that reminded me of the leavings of a dog in the
snow. But my friends had redecorated it with wall-to-wall
flowers.
My mother, Elizabeth, sat beside the hospital bed
as I nursed my new daughter. I named her Phoenix, after the
mythological bird, because I felt invincible whenever I looked at
her. She was about the size of a Cabbage Patch doll I had played with
in elementary school. But my doll had more hair. She had only a
dusting of blond hair; but her green eyes shimmered whenever they
were open. With only one look, I was in love with my little
girl.
"I still think you're making a big mistake," my
mother said. "You should give her up for adoption."
"I can't," I said. "She's perfect and she's
mine."
"Then you should have gotten an abortion," she
said. "You're too young to be a mother."
I looked up at her in surprise. "How could I take
her head and her power before it had even begun?"
"Her power? You've been watching that stupid
Highlander show too much. I don't understand your fascination
with it."
"Because everyone dreams of immortatlity at some
point. I am your immortatlity and she is mine. Through her, I will
never die. Haveing children is the only way that mortals can achieve
immortality. That's all I'm doing."
"This isn't science fiction, Crystal. Immortals
and quickenings don't exist. But your child does. She doesn't make
you immortal. Just a mother."
"That's enough, isn't it?"
"Let's review some of the facts about this case,"
said Mr. Marsh, gracing me with a patronizing smile. "What's the file
number again, Mrs. Gilbert?:
She referred to her list. "Number
1-8-3-9."
"Thank you," he said. He shuffled through the pile
of folders in front of him until he found the one he wanted. He
slowly opened it. "Yes, Phoenix Ann Sheppard, born March 31, 1988.
Mother was 15 years old at the time of child's birth." He looked at
me disapprovingly. "Child has had no contact with her father. No
developmental difficulties or delays were observed during the infant
or toddler years. Entered regular kindergarten at age 5. No academic
difficulties were noted. Child seems a perfectly, healthy and normal
five-year-old. February, 1992, child injured in hit-and-run accident
while riding her bicycle. Child suffered massive head
trauma."
That day has been only the second time in
Phoenix's life she'd ever been in the hospital. But this time was not
a joyous time.I sat on the hard plastic chair in the dimly lit
waiting room; I had lost any feeling in my legs and feet many hours
before. A TV droned in the background about the latest world crisis;
it sounded more like Charlie Brown's teacher than anything
important.
Tear tracks had dried on her face as my mother had
paced the waiting room for hours as we waited for the doctor to
finish performing major brain surgery on my daughter. The doctor
emerged thirteen hours to say my daughter was still alive. But she
suffered major brain damage and would probably never be "normal"
again.
I'm still not sure how long my mother talked to
the doctor. Or how she managed to pry me loose from my perch on the
chair to walk to the ICU. But she forced me to walk to to my
daughters room. I refused to go into her room. Through the window of
the ICU, I looked at Phoenix. The scene reminded me of
Frankenstein and the first time the doctor sees his monster.
They had cut her beautiful waist-length hair to a military buss, and
half of her head had been shaved for the surgery. Next to her right
temple was an indentation; the doctor said it was caused by a piece
of skull that was missing. If she survived, they would put a metal
plate in her head so she would look normal. A body cast covered her
torso and her right leg; it was the only way the doctors could set
all of her broken bones at the same time. The cuts on her face and
head took 72 stiches to close; it looked like the crazy quilt
covering my bed. She didn't look like Phoenix to my heart.
"We'll have to make arrangements for her care," my
mother said. "Phoenix is a good name for her."
I looked at her, my voice rising as I spoke.
"That's not Phoenix. Phoenix is dead. That thing in that room is not
my daughter! My daughter was perfect in every way! That thing is
missing part of its brain! I don't know what it is that's in that
room, but it's not my daughter! It isn't even human
anymore!"
"Crystal," my mother said, "you don't know what
you're saying."
My voice was perfectly calm and quiet as I spoke.
"I know exactly what I'm saying. My daughter is dead. That thing is
not what I gave birth to. I should have listened to you, Mother. I
wish it had never been born."
But, like her name, Phoenix rose from the flames
and survived. She wasn't the same. But neither was the mythological
Phoenix. And I changed right along with her. I had to learn how to be
a mother all over again. Which brought us to today.
Mr. Marsh referred to the file again. "Child has
had extensive rehabilitation, but remains primarily nonverbal. Speaks
an occasional word, usually 'no.' Periodically becomes violent
towards herself or caregiver. You expect us to put her with other
children."
"Why not?" I asked.
"Her test scores indicate she only functions like
a five-year-old!"
"Test scores are just a number," I said. "They
don't tell you who my daughter is. All they measure is a single
behavior on a given day."
"There is still the matter of her violent
behavior."
"That is a rarity, Mr. Marsh, " I said, "and I
know exactly how my daughter behaves."
"I hate to even say it," my mother began. "But are
you sure that you can care for Phoenix yourself. All she does is
stare at the TV."
"Mother," I said, we've had this conversation a
hundred times. Phoenix is still inside that shell somewhere. I won't
give up on her."
Phoenix sat mesmerized by the latest video from
Puff Daddy on MTV. She stated at the screen with dull, lifeless eyes
and her mouth open.
My mother stepped in front of the TV. Phoenix
screamed. My mother leaned over to kiss her on the nose. Phoenix
slapped her. "This can't go on, Crystal."
I sighed and walked to my daughter. "Phoenix, it's
time for lunch."
She turned and looked at me for the first time in
two months. Her eyes shimmered with life. "No, Mommy, TV," she said
and turned back to the TV slipping into oblivion once
more.
I blinked to keep the tears that threatened from
beginning. "How can a number tell you what my daughter is capable
of?"
"We don't have the money to take care of a child
with such profound needs," Mrs. Gilbert said. "The state school is
much better equipped to care for a case such as your
daughter."
"I used to dream of immortality and magic. I
thought I understood what that was all about the day my daughter was
born. But I had no idea. My daughter is not the same now. But every
now and then, Phoenix says no or looks at me, and the dullness isn't
in her eyes. I see a glimpse of the way my daughter was. Somewhere,
inside that shell, she's still alive. That's magic, just a different
kind. My immortality lives on."
"The state school," said Mrs. Gilbert, "is the
only option at this time."
"Then I guess I'll see all of you at a due process
hearing. my daughter is entitled to a free education at the local
school. Just like any other child." I put my coat on and rose to
leave.
As I reached the doorway, I heard Mrs. Gilbert
say, "You can't possibly win, Miss Sheppard."
Mr. Marsh interrupted. "Actually, she might. But
even if the school won, it would be very expensive."
I turned aorund and looked at them. "Then work
with me to make school possible for Phoenix. The only way either of
us will truly win is to work together. Yes, I believe in magic, but
I'm also realistic. I'm not looking for a cure or a miracle for my
daughter. Just a chance."
"I think that can be arranged," he
said.
Like a phoenix from the flames, immortality has
its price. Phoenix is mine.