The walls in Michael J Fox's writing nook are a
testament to what he calls the most significant part
of his life; they're filled with photos of his wife,
actress Tracy Pollan, and their children. It was in
this quiet space that he wrote his biography, Lucky
Man, due out this month.
But much more than luck has held Michael and Tracy
together through almost 14 years of marriage and the
challenge of living with Parkinson's disease, a
degenerative neurological disorder he was diagnosed
with just three years after their wedding. Pollan, the
daughter of a prominent New York Family, first met Fox
- an army brat who'd dropped out of high school to
pursue acting - when she played his girlfriend on the
hit NBC show Family Ties in 1985. Pollan and Fox
didn't date until 1987, while working together on the
movie Bright Lights, Big City; they married the next
year. In 1991 while filming Doc Hollywood - one in a
string of movies, including Back to the Future, he
made during the 1980s and '90s - Fox developed a
twitch in his pinky that wouldn't go away. Within six
months the twitch had spread to his entire hand, then
his shoulder began to stiffen. But he and Pollan (who
had a toddler, Sam, now 12) kept his illness a secret.
A few years later she gave birth to twins, Aquinnah
and Schuyler, now 7, and he took the starring role in
the ABC sitcom Spin City. Finally, in the December 7,
1998 issue of People, Fox announced the news he feared
would shatter his career as a funnyman: He had
Parkinson's and had undergone brain surgery to
alleviate the tremors.
Fox's career worries were unfounded. If anything, his
announcement strengthened the public's support of the
man they'd come to know as Spin City's deputy mayor- a
portrayal for which he won three Golden Globe Awards,
an Emmy and a People's Choice Award. But as much as he
loved the show, by January 2000, Fox, then 38, felt an
even bigger calling: to use his time and energy
toward a cure for Parkinson's. After appearing in 100
episodes of Spin City, he said goodbye to his cast and
fans, and stepped into his role as founder of the
Michael J Fox Foundation for Parkinson's Research,
On the day I met with Fox and Pollan he proudly showed
me a small photo album filled with pictures of the
newest addition to their family: their fourth child,
Esme, born last November. It's clear to me that there
is a spiritual union - one that defines the way they
see each other, and themselves.
O: Has your relationship surpassed what you imagined
it would be?
MJF: Let me put it this way - my instincts were proven
out. Tracy was the right person for me, and it has
been amazing.
TP: Michael and I had great role models. Though his
father has passed away, his parents had an amazingly
strong marriage, as do mine. Both weathered really
tough times. For us it has been normal to stay
together through difficulties. We grew up witnessing
that first hand.
MJF: Not surprisingly, what Tracy just said is a more
eloquent way of putting what I was trying to say! When
we married, we married - and that was it. We were in
love then, as we are now, and we planned to stay
married.
O: I've had friends who have said, ‘I'll get
married, and if it doesn't work out, it doesn't work
out.’ You never said that?
TP: Never
O: How old were you when you married?
MJF: I was 27...
TP: And I was 28. That's funny, because now I'm
younger than him. When we married, I was actually
older, and then somehow, that changed.
MJF: It's magical - now she's two years younger than
me! The secret to the marriage is that I contribute
to that deception.
O: I've talked to many people who never discuss their
ideas about marriage. When they take their vows and
say, ‘For better or for worse’ they have no
idea what ‘worse’ might mean.
MJF: When Chris Rock did a benefit for our foundation,
he talked about the marriage vows. He said, ‘What
do they mean when they say, “For richer”? Of course a
woman will stay with you if you're rich! The vows
should ask, 'Will you stay with me if I'm sick and
broke?' If the woman says yes, then you're
in.
O: Tracy, I read that when you first met Michael on
the set of Family Ties, you weren't even attracted to
him.
TP: It wasn't that I wasn't attracted to him - I was
just dating someone else.
MJF: And it wasn't that I wasn't attracted to her -
the guy she was dating was just bigger than me.
TP: From the beginning, I loved his sense of humor and
that brain of his. He's so smart.
MJF: Before Tracy and I started seeing each other, I
was this boy prince of Hollywood. I had a Mercedes and
a Ferrari and a Range Rover, and I was really
nuts.
TP: He was out of control!
MJF: I had so many cars that I needed a valet parking
guy to get them out. I was stupid - I was like the
Publisher Clearing House Sweepstakes winner. I was
always hanging out with Woody Harrelson and Julian
Lennon, you know? When Tracy was leaving the show, she
played me this James Taylor song called “That's
Why I'm Here.” It said something like Learn not
to burn means turn on a dime / Walk on if you're
walking, even if it's an uphill climb / Try to
remember that working's no crime / Just don't let them
take and waste your time. And that song stayed with
me. The next spring I was casting a movie in New York
and I saw Tracy, who had come in to read for a part. I
said, ‘How's so-and-so?’ She said,
‘We're not together anymore.’ I was like,
‘(a) You have the job and (b) let's have
lunch.’ By the time the movie was finished, we
were on vacation together - and less than a year
later, we were married.
O: In your marriage, one of the unexpected challenges
has been Parkinson's. Can you tell me what the disease
is exactly?
MJF: Having Parkinson's is like having your brain talk
to your body on a cell phone in a tunnel. When the
medication is working, all the transmissions are
smooth. But between dosages you loose control, which
can show up in everything from an inability to express
emotion facially to the inability to articulate
speech. You might also shuffle or have a hitch in your
gait. Parkinson's occurs when nerve cells in a part of
your brain that controls movement begin to die, and
your brain stops producing a chemical called dopamine.
In fact, by the time you notice symptoms, about 80
percent of those cells are already dead. At first you
have a lot of tremors, but as the disease progresses
you actually become more and more still. Tracy used to
tell me, ‘You're like inertia - once you get
going you can't stop, but once you stop nothing will
get you going again.’
TP: But that's not related to the Parkinson's - that's
just your personality.
MJF: Exactly. But that's also an apt description of
living with the disease.
O: Do you feel self-conscious in public?
MJF: Once we went to a benefit where a band we wanted
to hear was playing. During the early part of the
evening when the lights were on, I was shaking badly
and people were coming up to me, hugging me and
looking at me with that look I recognize, and...
O: What is that look?
MJF: They're looking for fear in me. When they don't
see that, they then see their own fear reflected back
at them and they start to freak out. I end up saying
to them, ‘You're going to be fine.’ You want
to tell them that bad things can happen to you and you
don't know where they'll take you, and that is okay. I
don't discount for a second that people care for me or
that their concern is genuine. But at the same time
people look at me and think, My God, could that happen
to me? And when I look back at them it's as if I'm
saying ‘It might, and maybe you'll be okay. Just
get there when you get there.’
O: That's profound.
MJF: So that night at the concert when the lights went
out, I felt great because my pills had kicked in.
Tracy and I were holding hands in the dark as the band
was playing, and we were groovin'. I said to Tracy,
‘This is the difference in my life now, as
opposed to a few year ago. A few years ago I would've
said, 'God, I just want the pills to work until the
lights go out - and after that I won't care, because
no one will see me.' Now I say, 'I don't care if the
pills aren't working when the band's not playing. But
when the band comes on, I want to be feeling good so I
can enjoy this!' In fact, Oprah, I want to stop
right now and take a pill.
O: Okay. So Tracy, have you had to progressively
adjust to Michael having Parkinson's?
TP: Absolutely. A lot of my adjustment has been
dictated my Michael's point of view. He so relaxed and
so accepting of were he is, and that makes it easier
for me, the kids, and everyone around him.
O: Michael, when you take a pill, how does it help
you?
MJF: It takes a while for it to work - like right now,
I'll have to wait for the pill to kick in. Then
suddenly, I'll feel this energy on my left side, and
my foot will start twisting around. Then the tremors
will seem to push out through the bottom of my foot,
and it's like my body and my mind are back together
again. Then I'm good for another couple hours before I
start tremoring.
O: Are you comfortable sitting here talking to me?
MJF: I'm moving around a lot, but I'm comfortable.
When you have Parkinson's, your body language lies.
Before I went public about the disease, I read these
interviews that journalists had done with me, and
they'd write, ‘Michael was really nervous - he
was pacing like a cat!’ I wasn't nervous at all.
My brain was just screwed up.
O: Tracy, how did Michael first tell you he had
Parkinson's?
TP: He just came home from the doctor and told me.
Before he visited the doctor, we didn't think there
was anything seriously wrong.
O: During that time, were you still in that romantic
stage of heightened delight in your marriage?
MJF: Kinda. We had a young baby...
TP: And up to that point, we hadn't had anything major
happen. Before then, I had always been a horrible
hypochondriac, and Michael had helped me through many
fictional illnesses.
O: Like?
TP: Everything! Elephantiasis - it ran the gamut.
MJF: Poor Tracy was always telling me, ‘I think I
have this,’ and I'd say, ‘Look you don't
have that.’ And of course she'd always think she
had an embolism on a Friday night....
TP: When the doctors weren't available.
MJF: I'd say, ‘Why is it always on a Friday? On
Monday you'll find out you're fine, so let's not have
the disease until Monday.’ So when I called her
and said, ‘Tracy, there's something weird going
on with my hand,’ she of course said, ‘Don't
worry, it's nothing.’ Then I come home from the
doctors and say, ‘Honey, I have an incurable
brain disease - how 'bout that?’
TP: That cured my hypochondria.
O: When you were told the disease was degenerative,
what was your first reaction?
TP: We went through a day or two of shock and had a
feeling of devastation.
O: You felt like, What does this mean?
TP: Yes. I had spent so much time worrying about these
horrible fantasies, but when presented with something
this huge and terrifying, my reaction was completely
opposite from what I thought it would be. I just dealt
with it every day as it came. We stopped thinking
about the big picture. Michael was instrumental at
that - he has always been like, ‘Today I'm still
okay.’
MJF: When I was first diagnosed, my line to Tracy was
‘It's going to be okay’ - but I was really
freaking out. I had no idea what Parkinson's was, and
I was in denial. After the diagnosis I didn't even get
a neurologist. You've probably read in People that I'm
a nice guy - but when the doctors first told me I had
Parkinson's, I wanted to kill him. I thought, What a
really shitty thing to say to somebody! I just knew it
was a mistake. So I started drinking a little more to
keep from looking at it. I finally got to a pivotal
point where I really worked on understanding it. About
three years after I'd been diagnosed, I was okay - and
that's when life got much better.
O: Was the disease beginning to show?
MJF: To me, but not to others. And for a lot of
reasons, I kept it a secret. In a way, I was also
trying to keep it a secret from myself. Eventually, my
whole left side was shaking. There were other symptoms
too, like a feeling of rigidity. After I quit
drinking, I had a couple of years of just being crazy
- I didn't have anything to replace the drinking with.
Then in the beginning of 1994, I went to analysis and
started to look at it. After that, Tracy said to me,
‘You showed up again. Your sense of humor was
back and you were just there.’
O: Three years is a long time to be gone.
MJF: For better or for worse.
TP: There were definitely good days in those three
years.
O: Tracy, was there ever a time when you said,
‘This isn't what I bought into’?
TP: Definitely, but that was more of a day-to-day
thought rather than a stepping back to say,
‘Whoa, this isn't what I want in my
life.’
O: That's because you knew you would always be with
him.
TP:Exactly.
MJF: Through it all, we've loved each other....
TP: And that love never died. We had a solid
foundation to begin with.
O: Michael, I read that there was a time when you knew
Tracy had bought in for the long run.
MJF: There were a lot of questions I was afraid to ask
Tracy, like ‘Does it scare you that I'm sick? Do
you not love me because I'm sick?’ I didn't ask
her those questions.
O: You were saying to yourself, Why would she want to
be with me?
MJF: Yes, but nothing Tracy was doing was showing me
that she didn't want to be with me.
TP: Anytime I would say to myself, ‘This isn't
what I bought into’, it wasn't about Michael
being sick. It was about his doubting and the behavior
that came out of that fear.
MJF: Once I got a doctor and really started thinking
about my situation, it was like boom! - a second
honeymoon.
O: The truth will set you free every time.
MJF: In a sense, I kind of went away to deal with the
Parkinson's myself. And though I was present in our
everyday lives...
O: You withdrew.
MJF: I just took my carcass back into my cave and
scratched at it for a bit, and when I popped my head
up again in 1994, Tracy was like, ‘I've been
waiting for you.’ That's when we decided to have
more kids - and then we got twins. It was as if we
were being told, ‘Listen, don't worry about loss
and timing. That will be taken care of.’
O: Michael, I've read that your children call you
Shaky Dad. How much do they know about the
disease?
MJF: When our oldest child, Sam, was about 4, we
started playing a game where I showed him how to
short-circuit my tremors - if you occupy yourself with
an activity, it stops the shaking for a certain amount
of time. If Sam saw my ‘wiggly hand’, he'd
grab my finger and thumb so he could stop it.
He'd count to five and let go before grabbing it
again. So we had a connection, which has continued.
He's a frighteningly bright kid, so now we talk about
the disease in specific ways. He probably knows more
about it than I do.
O: Tracy, after having Sam early in your marriage,
what has it been like for you to have another child at
this age?
TP: That sounds so bad: ‘At this age’!
O: Earlier, when I asked you how you got back in shape
so quickly after the baby, you said, ‘I stopped
eating desserts.’ Is that it, Tracy? I guess
that's the key I've been missing all these years!
TP: Dessert was big for me!
O: Well, you look like you just stepped out of a
magazine. How was having this baby different from
having your oldest child, Sam?
TP: Sam was our science project. Thank God he has
turned out as well as he has, because we didn't know
what we were doing.
MJF: When you have your first baby and the pacifier
falls on the floor, you pick it up and boil it. But
when you get to the fourth, you just lick the pacifier
and give it back. You realize that all you need to do
is feed `em, love `em, and keep `em out of traffic.
And when you have children in your forties, you're not
looking for them to complete anything for you. You're
a done deal, you're cooked. You're just sharing you're
experience with a new person.
TP: The biggest difference I've noticed is that I'm
enjoying every second of having a tiny, little baby.
Sam and the girls were overwhelming. I wished a lot of
it away. With this baby, I'm not wishing it away at
all. It's so fun.
MJF: When you meet the person you want to spend the
rest of your life with, you realize you'd step in
front of a train for her - that's love. Then when you
have a baby, you say, ‘I'd step in front of a
train right now - and I don't even know you!’ We
love each of our children just the same. When you hear
your own parents say that, you say, ‘Bullshit! I
know you love him more than me!’ But I tell my
kids, ‘I just love each of you so much - every
one of you is your own story.
O: What an outstanding thing it is to share your life
with someone for whom you'd be willing to step in
front of a train.
MJF: Absolutely. Choo-choo! I feel really lucky and
smart. I look at Tracy sometimes and I have two
feelings. One is that she becomes more beautiful every
second; and more important, I look at her and say to
myself, Damn, you're smart. Boy did you make the right
choice.
O: What would you add to that, Tracy?
TP: The pressure! I can't add much. I feel the same
way about him.
O: As I sit here talking with you, you seem like much
more than a couple. You have a spiritual
partnership.
TP: Yes.
MJF: What Tracy has done for me is amazing. She's
married to this Mickey Mouse, this...
TP: Mister Mayor.
MJF: And yet everyday she shows me she's a person with
an incredible sense of dignity and
responsibility.
O: Where did that come from, Tracy?
TP: I'm very grounded - that's how I would put it. If
you met my mother, you would probably say the same
thing about her. I had a very sane upbringing, though
some very insane things happened.
O: Is your marriage still in the state it was in
during 1994?
TP: Yes. And as our marriage grows and changes, we
have to explain so little to each other.
MJF: That's the key.
TP: It took a long time to get to this place - there's
an understanding between us.
MJF: And a trust.
TP: One of us can be in a horrible mood and say the
worst things to the other one. Right after I'd had the
baby, I was getting dressed, and nothing fit. Michael
came in to ask me a question, and I just turned around
and said, ‘What do you want? Get out of my
closet! You shouldn't even be in this room!’ He
was like, ‘Okay, honey, I'll see you later.’
The fact that I can have an outburst like that and not
have to say ‘I've just had a baby and my thighs
are a little big’ is so important. He totally
understands. The same is true the other way
around.
O: Would you say that Parkinson's has been a gift in
your marriage?
MJF: I've often referred to Parkinson's as the gift
that keeps on taking. It's a gift in that it really
gave me a whole different appreciation for life. I
discovered that it wasn't me minus Parkinson's. It was
me plus it. I have been enriched by what it has opened
up for me. It hasn't allowed me to take anything for
granted.
O: I love the beautiful quote I saw about your
book.
MJF: Yes – ‘I couldn't be still until I couldn't
be still.’ I couldn't trust that I could just
take an action and let go of the result.
O: Before the disease, your whole focus in life was
different.
MJF: I had been constantly taking care of this and
making sure that was okay, and now Tracy and I are
just in it.
TP: I feel more at peace. There are days when I don't
feel that way, but for the most part I trust that
what's supposed to happen will. Worrying won't prevent
the worst outcome. I've learned to live in the moment,
which is not my natural tendency. I always thought
that if I worried about something enough, it wouldn't
happen. I forgot to worry about Parkinson's.
MJF: People are often surprised to hear that
Parkinson's doesn't come up that much in out house -
it's not the major focus everyday. Sometimes I'll joke
with Tracy, ‘Honey, I got that Parkinson's, you
know? That whole degenerative brain disease!’
O: But it doesn't affect your thinking, does it?
MJF: Not at all.
O: Do you think a cure will be discovered in your
lifetime?
MJF: Absolutely. There will be a cure.
O: So you're not interested in better drugs, just a
cure, right?
MJF: Better drugs are great. I'd love to see people's
quality of life improve. But we now know how
Parkinson's is created. - there are even chemicals
that can cause a Parkinsonian reaction. And now
there's all this work with cells and DNA. We're trying
to bring the tipping point closer and closer. A cure
is inevitable - we just have to light a fire under
everyone to make it happen soon. When I hired the
person who runs our foundation, the first thing I told
her was ‘If we have a tenth anniversary, you're
fired.’
O: Has your involvement with the foundation turned up
the volume in your life?
MJF: I'm pumped!
O: I know you left Spin City so you could do more work
with the foundation. Why did you decide to take a role
on the show in the first place?
MJF: After we had the twins, I went to New Zealand to
make a movie while Tracy stayed here with the girls.
Being separated felt like a step backwards. I thought,
I'd love to go back to TV and get a job with regular
hours so I can be with Tracy and the kids. Then
everything just fell together!
O: Lucky Man!
MJF: It was fantastic - but there was a time when it
was too difficult for me to do the show, especially
without everyone knowing my secret. There were a few
people who knew I had Parkinson's, and I put them in a
position of always having to cover up for me when I
couldn't be somewhere on time. I thought, this is
stupid. Why am I not telling people? The reason I
wasn't telling was that I wondered if people would
still laugh if they knew I was sick. Can you laugh at
a sick person and not feel like an asshole? I finally
thought, ‘Let me not worry about that. What other
people think is none of my business. If it's funny
they'll laugh.’ Sure enough, everyone was great,
and I did the job for another year and a half. But at
some point I realized there was a lot of work to be
done to raise awareness of Parkinson's. I thought, if
the meter is running in terms of my effectiveness, it
may be better to apply my energy here.
O: Were you frightened when you first told the world
you had Parkinson's?
MJF: By the time I announced it, I had gone through
seven years of dealing with it - of running from it
and then stopping running from it. Once you're
diagnosed you have the feeling you're predictable,
because doctors can predict your prognosis. I hated
being predictable, right down to the point where some
Swiss woman I'd never met, Elisabeth Kubler-Ross
[author of Death: The Final Stage of Growth], could
say I would go through five stages of grief - denial,
anger, negotiating depression and acceptance. And in
the first seven years, I went through all five of
those stages. When I made my disease public, I was
ready.
O: Now that everyone knows you have Parkinson's, are
you overwhelmed by people's compassion?
MJF: Since September 11 everyone has been watching
footage of people picking up strangers on the street
and carrying them through the smoke and hearing about
the firemen that walked into those buildings. While
I've been just as blown away by this as everyone else,
part of me has been thinking, I've known this side of
people for years. I've seen this level of compassion
and selflessness. I've seen it shown to myself and to
others.
O: Do you have any regrets, Michael?
MJF: What am I going to do with regrets? I only have
so much time in the day. Regrets are like the word
should. The only application of the word should is to
say that it should not exist. The only worthwhile use
for regret is to say, ‘In the past I did
something I didn't like, and now when I'm in a
similar situation, I'm going to make a different
decision.’
O: You should write a book!
MJF: I'm thinking about it!
O: Thank you both for your time.
TP: Thank you, Oprah.