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Finally Home
  • May 11th Well it's been a long week. But an enjoyable one. We realized on Tuesday(5/5) after Timothy spent a day throwing up that his NJ tube had been pulled back into his stomach and he we took him to the hospital to have it replaced. On Friday(5/8) Timothy had his 1 week check up with the dr. He weighs 8 pounds 4 ounces and is 20 inches long. Timothy is still having Brady spells and has also been having apnea spells. The monitor that we have for him records his alarms and events and then we take the monitor to the company and they download and make a print out for us everything.
  • May ?th-- Timothy has been doing well at home. On Monday(5/11) we took Timothy back up to the hospital because he was dehydrated and he had been throwing up so we thought his NJ tube had become dislodged again, but come to find out it hadn't been. So, the dr. thinks he has a stomach

  • bug. Timothy had an x-ray taken to determine the placement of his NJ tube and it showed it was fine but the x-ray did show that he has a fractured rib. Well had a fractured rib they are judging it to be about 6 weeks old and it has healed nicely. The think maybe it was fractured during CPT(this is a form of therapy where a respiratory therapist tries to loosen secretions by pounding on the chest). They are doing a full body x-ray to make sure there are no more fractures or breaks.
  • May 30th-- Timothy turned 4 months old on the 28th of this month. He went to the dr. last on the 27th. His reflux is to severe to be controlled with medication. He is still aspirating into his lungs and requires oxygen at times. His NJ feeds have been turned up to a rate of 25 ccs an hour to give him his calorie intake. By bottle he is getting 25 ccs(30 is an ounce) with 3/4 of a tsp. of cereal. We will see the doctor weekly for another 2 weeks and then we will schedule surgery(Nissen-I will add a link to this procedure shortly so you can see exactly what it is) for his reflux. Timothy tries to be a happy baby but is usually in to much pain to be a happy baby. He does smile for us occasionally and can roll over when he is really mad. But doesn't try to roll over just for the heck of it. We are hoping to have the surgery done the end of June. The drs. want to wait a little bit longer so he can have that much more time to grow. At his last visit he weighed 9 pounds even. On the 3rd of June he goes in for his 4 month baby check. His Apnea and Brady episodes have increased over the last couple of weeks.
  • June 4th-- Timothy's check up went well. He weighed 10 pounds 7 ounces and is almost 22 inches long. He will be 5 months on the 28th.
  • June 22nd-- This week we got tired of listening to Timothy screaming and not knowing what was wrong so we decided to just feed him when he was hungry and give him what he wanted. Well that was the majority of his problem..he was hungry. He was eating so well that we pulled his tube out on Saturday.(We knew he was seeing the dr. monday). Timothy has gotten big enough that he can handle the reflux better. He is drinking 4 ounces of formula(24 cal.) every 2 to 3 hours. We have also started him on cereal. As long as Timothy can keep his intake where it is or greater he will not need the NJ tubing anymore. So, it looks like we don't have to worry about surgery as long as things keep going like they are.
  • July 8th-- Timothy is now off his reflux meds and doing well. On 7/2 Timothy became monitor free when we were able to turn in all the equipment. He drinks around 40 ounces of formula a day as well as cereal/baby food in the morning and evening. Timothy now weighs 11 pounds 8 pounds and is just over 22 inches. He isn't rolling over yet but its just a matter of time now. He is gaining strength everyday. He smiles and giggles and loves to watch baseball. He goes back to the dr. on 7/29, for his 6 month baby check. We are expecting him to get a clean bill of health at that time and possibly even be on the charts for his age group in weight and height.
  • July 11th-- Timothy has his front two bottom teeth. The first one came in yesterday and the other one today.
  • July 29th-- At Timothy's 6 month check-up he did get a clean bill of health. He weighed 14 pounds 10 ounces and was 23 1/3 inches long. He is eating 3 meals a day and loves to giggle and play with his brothers.
  • August 17-- Timothy weighs 16 pounds 1 ounce and is 23 1/3 inches long. He rolls from his tummy to his back but not from back to tummy.
  • January 10, 2000-- Timothy turns 2 on the 28th of this month. It's so hard to believe. He is a very active toddler. He enjoys playing with hs brothers(actually beating up on them). I'll update more after his 2 year checkup. But estimating at this time I'd say he weighs about 28/30 pounds. Not sure about his height but he seems to where his brothers were at this time. Pictures are also coming soon.
  • April 29, 2000-- Timothy had his check-up last week. He weighs 27 lbs. 6 ozs. and is 33 1/2 inches tall. In his age group he is in the 25th percentile for weight and 10th percentile for height. He's not much of a talker but is really trying to form words now. His vocabulary right now consists of Blue(blues clues), Bear(in the big blue house), Bye, Mama, Da(dad). As with James we used Baby Signs with Timothy and although it took him a little longer to catch on he now makes up his own signs for things he needs which is good but frustrating until you figure out what he is talking about. He loves to play cars and trucks and is starting to build houses with his waffle blocks. Although he shows no interest in potty training right now we are going to give it a go over the summer and see what happens but mom isn't expecting him to want to do it but it's worth a shot.

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