December 1999



Dec. 1 ~ Dec. 7 ~

This was a weird week. I felt really lousy Monday and didn't have a shot till that night. I was pretty active all weekend so maybe I just wore myself out! I also did bloodwork on Monday and that may have been part of the reason. My taste buds are gone again. I can't seem to taste anything, including peppermint! I've noticed my sinuses getting worse again as well. It could be from the wind we are having too, though, as my skin seems to be drying out more and itching alot. The wind usually does that to me. My appetite has been pretty good so far. I'm not gaining any weight but I've stopped losing it. I've still got my hair, although I do see it coming out in bits and pieces. Not like on the combo though, thank goodness!  I have noticed that my strength is all but gone. I have a hard time just holding my granddaughter for any length of time. I have to sit down or pass out. Climbing the stairs is getting to me again too. I still feel much better than when I was doing this stuff every day so I'm not really complaining!
 

Dec. 8 ~ Dec 14 ~

Boy my Wednesday shot was a killer! I felt awful on Thursday. I've been having a terrible afternoon headache too. Even the Darvocet isn't doing much for it. I think it may be from all the wind we are having here. I'm also getting real itchy again. It seems to start behind my knees and goes on down to my ankles. I hope it doesn't get as bad as last summer. I have scars all over my legs from itching when I was on the combo. I sure am glad I'm not doing this stuff every day now. I feel so much better since dropping down to 3 days a week. I wouldn't recommend ANYONE try doing this stuff every day for more than 2 weeks. The doctor called to check up on me this week. It's nice that he does that...makes me feel like he thinks about me once in awhile!  With Christmas only 10 days away, I am feeling like I will be able to have a real good one this year. It will be fun with the baby too.
 

Dec. 15 ~ Dec. 21 ~

I saw the doctor on the 15th and he wants to stick with the 3 days a week for another month. He is concerned that my WBC are still low.  We didn't have the PCR back yet even though we ran it on the 6th. The lab must be busy doing alot of them. The doc also mentioned doing another biopsy in the next couple of months. I imagine we will have that done in February. That will be 2 years since all this started and 2 years on treatment. If nothing else, it BETTER show some improvement. I am eating alot better these days and even sleeping better!
We got the PCR back on the 20th. It's back. My viral load is 54,850. At least it isn't very high.  I can't believe it. I just sat here and cried when I looked at the report. Everything I am doing, and still the virus won't lay down. It is depressing and kind of makes me want to just say "OK, take my damn liver now!" Of course, I won't really say that, but it would sure be nice to get some good results and have them be consistant for once. This has been the longest 2 years of my life and I had thought things were looking up.
I kind of figured it would go back up, after we dropped my shots down to 3 days a week. I think the doctor figured the same thing. I don't think he will stop the Infergen yet, but he may up the days now. I'll wait till after Christmas to find out! Maybe even after the new year. It will take the insurance that long just to give me authorization to go back to see him!
WHAT is the purpose of all this?????
 

Dec. 22 ~ Dec. 28 ~

With this being Christmas week it was busy as ever! My Monday shot naturally clobbered me, but I was too busy to let it get me down. The only real problem I had was with the constant headache. I try not to take too much of the Darvocet, so I kind of suffer instead. My memory seems to be getting worse. I can hardly remember what time it is anymore. I find myself in conversations, and then I have to just stop because I have no idea what I want to say. Luckily, my family is used to this by now and they wait patiently for me to recall what I was wanting to say. Sometimes I don't and sometimes I do!  I've noticed my eyes getting more and more blurry now as well. This is just so much fun!
 

Dec. 29 ~ Dec. 31 ~

This week has been weird. I have had a constant headache every day. The Dr. called on the 29th and because of the viral load coming back he is moving me back up to 5 days a week. I'll still be doing 15 mcg, which comes out to 5 mu. We will be doing bloodwork every week, and if the WBC drops, or anything else goes haywire again, he will drop me back down to 3 days a week again. I'm going to start on Sunday night. I'll take Wednesday and Saturday nights off. Hopefully, this will be the mode of treatment that my body can handle. I figure I can go out on New Years' and unless Y2K destroys the world, I'll start up on Sunday night! Of course I'll be lucky to stay AWAKE for the New Year! If you don't hear any more from me here, I didn't make it thru the Y2K!
 
 

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