Dec. 1 ~ Dec. 7 ~
This was a weird
week. I felt really lousy Monday and didn't have a shot till that night.
I was pretty active all weekend so maybe I just wore myself out! I also
did bloodwork on Monday and that may have been part of the reason. My taste
buds are gone again. I can't seem to taste anything, including peppermint!
I've noticed my sinuses getting worse again as well. It could be from the
wind we are having too, though, as my skin seems to be drying out more
and itching alot. The wind usually does that to me. My appetite has been
pretty good so far. I'm not gaining any weight but I've stopped losing
it. I've still got my hair, although I do see it coming out in bits and
pieces. Not like on the combo though, thank goodness! I have noticed
that my strength is all but gone. I have a hard time just holding my granddaughter
for any length of time. I have to sit down or pass out. Climbing the stairs
is getting to me again too. I still feel much better than when I was doing
this stuff every day so I'm not really complaining!
Dec. 8 ~ Dec 14 ~
Boy my Wednesday
shot was a killer! I felt awful on Thursday. I've been having a terrible
afternoon headache too. Even the Darvocet isn't doing much for it. I think
it may be from all the wind we are having here. I'm also getting real itchy
again. It seems to start behind my knees and goes on down to my ankles.
I hope it doesn't get as bad as last summer. I have scars all over my legs
from itching when I was on the combo. I sure am glad I'm not doing this
stuff every day now. I feel so much better since dropping down to 3 days
a week. I wouldn't recommend ANYONE try doing this stuff every day for
more than 2 weeks. The doctor called to check up on me this week. It's
nice that he does that...makes me feel like he thinks about me once in
awhile! With Christmas only 10 days away, I am feeling like I will
be able to have a real good one this year. It will be fun with the baby
too.
Dec. 15 ~ Dec. 21 ~
I saw the doctor
on the 15th and he wants to stick with the 3 days a week for another month.
He is concerned that my WBC are still low. We didn't have the PCR
back yet even though we ran it on the 6th. The lab must be busy doing alot
of them. The doc also mentioned doing another biopsy in the next couple
of months. I imagine we will have that done in February. That will be 2
years since all this started and 2 years on treatment. If nothing else,
it BETTER show some improvement. I am eating alot better these days and
even sleeping better!
We got the PCR
back on the 20th. It's back. My viral load is 54,850. At least it isn't
very high. I can't believe it. I just sat here and cried when I looked
at the report. Everything I am doing, and still the virus won't lay down.
It is depressing and kind of makes me want to just say "OK, take my damn
liver now!" Of course, I won't really say that, but it would sure be nice
to get some good results and have them be consistant for once. This has
been the longest 2 years of my life and I had thought things were looking
up.
I kind of figured
it would go back up, after we dropped my shots down to 3 days a week. I
think the doctor figured the same thing. I don't think he will stop the
Infergen yet, but he may up the days now. I'll wait till after Christmas
to find out! Maybe even after the new year. It will take the insurance
that long just to give me authorization to go back to see him!
WHAT
is the purpose of all this?????
Dec. 22 ~ Dec. 28 ~
With this being
Christmas week it was busy as ever! My Monday shot naturally clobbered
me, but I was too busy to let it get me down. The only real problem I had
was with the constant headache. I try not to take too much of the Darvocet,
so I kind of suffer instead. My memory seems to be getting worse. I can
hardly remember what time it is anymore. I find myself in conversations,
and then I have to just stop because I have no idea what I want to say.
Luckily, my family is used to this by now and they wait patiently for me
to recall what I was wanting to say. Sometimes I don't and sometimes I
do! I've noticed my eyes getting more and more blurry now as well.
This is just so much fun!
Dec. 29 ~ Dec. 31 ~
This week has
been weird. I have had a constant headache every day. The Dr. called on
the 29th and because of the viral load coming back he is moving me back
up to 5 days a week. I'll still be doing 15 mcg, which comes out to 5 mu.
We will be doing bloodwork every week, and if the WBC drops, or anything
else goes haywire again, he will drop me back down to 3 days a week again.
I'm going to start on Sunday night. I'll take Wednesday and Saturday nights
off. Hopefully, this will be the mode of treatment that my body can handle.
I figure I can go out on New Years' and unless Y2K destroys the world,
I'll start up on Sunday night! Of course I'll be lucky to stay AWAKE for
the New Year! If you don't hear any more from me here, I didn't make it
thru the Y2K!