* T o g e t h e r . . . W e   C a n *

Thanks, L. Smith

Symptoms

1. Pain
   A. Headaches
   • a. Explosion of burning needles in head causing temporary blindness occurring every 3 to 4 hours (lasting 15-30 sec.)
   • b. Sick, swollen feeling in head
   • c. Dull pressure pain in sinuses, jaw, forehead and behind eyes.
   B. Hot needles and pins in head, chest, eyelids and down limbs.

2. Loss of sensation in extremities
3. Nausea - After meals and other times during the day.
4. Memory Loss - Loss of thought in mid sentence. Temporary loss, ie. Log On to Internet, telephone number, zip_code, etc.
5. Emotional Swings - Occasional crying jags and many periods of euphoria
6. Vision Impairment - Blurred vision in left eye when tired, overheated or emotionally upset
7. Spasticity - Muscles in legs, hands and arms
8. Drowsiness - Various times throughout day
9. Loss of Balance - Minimized through maintaining emotional calm, control of body heat and keeping well rested
10. Muscle Numbness/Weakness - Keep cool, rested and unemotional.
11. Periodic trouble understanding what I read and hear in conversations
12. Chills and night sweats
13. Periods of insomnia.

Medical History

• Jan 1969 - Removal herniated spinal disk
• May 1972 - Coronary thrombosis
• Jan 1977 - Paralysis right side (cause unknown)
• Oct 1978 - Colitis
• Oct 1982 - Multiple Sclerosis
• Mar 1984 - Ileostomy - complete colectomy [Non A-NonB (C) Hepatitus from a blood transfusion]
• Apr 1994 - High blood pressure
• Jan 1996 - Liver Biopsy [signs of liver disease]
• Jan 1996 - Basal cell Cancer
• Sep 1996 - Blinding head pain - cause unknown *
• Sep 28-Oct 1 - Hospitalized OLV (Possibly Trigeminal Neurolgia triggered by MS)
• Jun 1997 - Massive coronary
• Jun 25-26 - OLV Hospital
• Jun 1997 - Triple By-pass
• Jun 27-Jul 3 - Millard Fillmore Hospital (Gates Circle)
• Jul 1997 - Acquired hemolytic anemia due to autoantibodies
• Jul 11-16 - Hospitalized OLV
• Dec 1997 - Intron-A (Interferon) treatment for liver disease
• Jan 1998 - Sinus bradycardia/sinus tachycardia, dehydratation
• Jan 12-14 - Hospitalized OLV

They all helped to a point - but no further. I always thought that something was missing. Then I met a friend on an MS board who introduced me to the concept of glyconutritionals. She has been symptom free since 1997.

She put me in touch with others who have had similar results. I researched glyconutritionals and decided to try them. It's only been a few months but I have already seen some improvement in my symptoms. I hope I can be as successful as they are and that I will regain my life as I once knew it.

I was first diagnosed in 1990. Diagnosed Chronic/Progressive in 1995 I feel as though my body is slowly coming to a halt.

But it is sure depressing in the a.m. to wake up and see a wheelchair besid the bed. The bright side is that once my leg brace gets on, I can walk with use of a cane and try to make the most of the day.

I'm hanging on and keep working to keep me focused on life and not on how bad I feel and what I can't do.

The sx went away, not to return until 5 years later, in 1994 when I was diagnosed with MS. In the meantime, I've had minimal symptoms with numbness of legs that only lasted a few days, I've seen 4 different neurologists, but none in the past 2 1/2 years.

In mid June of this year, it was like MS said, "Hey, looks like you forgot about me. Just to remind you that I'm always here, let's take away your feeling in the right side of your body, and make you tired and fuzzy-headed."

That's where I'm at now. I had my first SoluMedrol treatment today by a local internal med doc and have an appt with (I hope) the best neurologist in KC on August 10 to discuss and start one of the A,B, or C meds.

I'm married, a Registered Nurse, and have a 6 year old son. Sure wish I would have started something sooner. This web site has been great to be able to hear how others with MS are doing and keeps me focused that this relapse WILL come to an end.

Anyone with info on the ABC's, please let me know.  Mae

You have so much to offer and we have so much to ask. I've had MS for three years now and I am as scared now as I was the day I found out I had it. But the more we find out about it the better I feel and the better I can deal with it.

Looking foward to learning more. I am sure it will help a lot of people.

I am a musician - teach private piano & organ - head organist and choir accompanist at church - school accompanist.

So far I have been very fortunate to not have major vision or hand movement problems. It scares me though to imagine life without being able to play!

Music is a VERY important part of my life. Maybe that is my silver lining! My doctor is urging me to start Avonex.

Would love to hear from others on it and how severe the side effects are.