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Name : : jade
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Email : :
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Comment : : You have wonderful parents. May God give them courage. There is a website for thals(www.thalassemiapatientsandfriends.com). It may be beneficial for your parents to join in since you will be kept updated with any new events regarding thalassemia and you w
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Name : : cheryl
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Email : : ang_cheryllk@yahoo.com
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Comment : :
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Name : : Amy Sportsman
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Email : :
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Comment : : Thank you for sharing your story!
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Name : : ad
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Email : : rano042000@yahoo.co.uk
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Comment : : Hi there Cheng
I think know what you are going through. Dont give up. Now they have exjade that could make your life better. let us pray that the scientists will find better means of curing this disorder.
take care.
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Name : : Hooi Loo
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Email : : hooi@nw.com.au
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Comment : : My son will be 4 soon. He has been on ICL670 for 6 months now. Perhaps not the right dosage yet. Ferritin level was 4000 last month. Have increased dosage now.
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Name : : ophelia l. abo
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Email : : oplac51@yahoo.com
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Comment : : the information in here is vital to learning about the disease...ill pray that he will survive and see more of the wonderful world..
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Name : : Hooi Loo
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Email : : hooi@nw.com.au
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Comment : : I reside in Australia. My son started transfusion at 11 months of age. He went through many tough moments too when the Hb dropped low. He is now handling it a lot better. Just waiting for ICL670 to be formally available to start his chelation. Ferritin le
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Name : : Hooi Loo
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Email : : hooi@nw.com.au
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Comment : : I have a son who has beta thalassemia major. He is now 3 years old. Havent started chelation yet.
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Name : :
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Email : :
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Comment : : Dear Chen Cheng,
Im an African American, female, diagnosed with Beta Thalasemia in 1999. I am 32 years old, will be 33 on August 6th. It took 22 years for me to be diagnosed. All the while I suffered in pain, without my grandmother or I knowing what wa
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Name : : Khoo
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Email : : khooht@yahoo.com.sg
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Comment : : Have seen your website while searching for more info on this diease. I have to say that it shows the endless love of a father.
My wife has been diagnose having beta-thal trait yesterday and she is 6 mths pregnant.My blood is normal, so is my 10 yrs old l
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Name : : Jacky
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Email : : kchinho@tm.net.my
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Comment : : My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah,My God,Ya Allah
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Name : : Jyama Ow
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Email : : jahlizay@hotmail.com
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Comment : : I just found out that I have the trait, beta thalasemia, about 8 years ago. Im 29 and have 4 children. Out of all my children only one has the trait. Im interested in knowing what this blood disorder is all about.
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Name : : ken Mwatha
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Email : :
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Comment : : thank you for sharing this and helping to educate a future physician.
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Name : : Asma
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Email : : asma_is@hotmail.com
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Comment : : You are so cute!! I hope your experiences will help you grow up to be a brave woman and I hope you will pass on all the kindness you are receiving from the universe. good luck with your life and may it be a very long one. Your mummy and Daddy are also ver
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Name : : Who am i
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Email : : betamek@po.jaring.my
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Comment : : Saddenly one more times,tomorrow will be better.
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Name : : Dipen Patel
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Email : : 200270269@nu.ac.za
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Comment : : I wish you guys all the lick in the world, I hope u get better!
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Name : : tony mouawad
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Email : : mouawada@ul.edu.lb
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Comment : : ill pray god to be with u in every step u make in ur life and im sure he is with u holding u bet his hand
we all love u
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Name : : Yen
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Email : : omigosh@hotmail.com
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Comment : : Cheng Cheng,
Youll be in my prayer today, tomorrow and always..take care.
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Name : : johnny foster
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Email : : johnfozz@aol.com
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Comment : : thanks for the mention in the cliff biog -
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Name : : Cindy Le
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Email : : Cindyhoale@yahoo.com
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Comment : : Hi Cheng Cheng, you are such a sweat little girl. I have a son who is having the same disease. Ive been crying a lot but I guess I have to be strong like your Dad to raise William up and do whatever possible to help him overcome this disease. I love you!
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Name : : Michelle
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Email : : michelleng@enersave.com.my
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Comment : : Dear Cheng Cheng,
Wish you will always be happy.
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Name : : Irene Chai
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Email : : rabbit_dinosaur@yahoo.com.sg
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Comment : : Hi Wei Cheng,
I just found out I am a Thalasaemia minor carrier, a bit sad but still going fine. I hope the same goes to you and be strong.
Best Wishes
Irene Jiejie
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Name : : wendy
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Email : : wendy.ollenbach@btopenworld.com
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Comment : : i would like to send you love from us here in norwich england. you are a brave little girl and wish you all the best xxxxxxxx
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Name : : KoH Chin Ho
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Email : : kchinho@tm.net.my
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Comment : : Dear,
Mr Too, I like to know more about Beta Thalasemia. I wonder you can help me this because I have a friend, his son is also suffering from this diese. The doctor told them not to take any herds or nutrional supplement food that contain Iron. Plaese
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Name : : pektan
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Email : : peitan78@hotmail.com
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Comment : : this is a very nice webpage. i am very sympathy upon cheng cheng. anyway, did she been treated by any medicine? do u know that the bone marrow transplantation is now not the only way to cure the disease? now, there is a successful case in UMMC that anothe
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Name : : gloria
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Email : : g.shoemaker@mkis.edu.my
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Comment : : I am praying for you and hoping that science will have a major breakthrough for the treatment of iron storage overload, perhaps with a pill that is safe. I have somone in my family who takes Desferal each night too. Keep the faith. Yours.
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Name : : Vicky Fah
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Email : : vickyf@civdo.co.za
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Comment : : Hi there,
I am writing from SA, and am of Chinese decent, I am told that I am a Thalasaemic carrier. Good luck and thank you for the information in your website
Vicky
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Name : : ROVINA INTUNG
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Email : : donviena@yahoo.com
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Comment : : ...idea yang baik untuk makluman yang mempunyai thalasemia, untuk pengetahuan anda, anak saya juga sama seperti anak anda (2 tahun 2 bulan), Lee Sylvester Dauni
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Name : : Sam Lo
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Email : : samlo1998@yahoo.com
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Comment : : Hello, greetings from San Francisco
Wish you the best! I hope i can talk to your daddy via my email
address. Something I want to discuss with him.
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Name : : Tang Sook Wah
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Email : : albert@staroffice.com
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Comment : : Hope medical advancement can find a cure for your daughter,we will be on the look out,may god too.
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Name : : Terrie
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Email : : terrie4ste@yahoo.co.uk
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Comment : : I have a 2 year old daughter, and i know how i'd feel if it was my little girl suffering. Fingers crossed that little one will find a suitable donor soon... and that it all works out for her.
Always remember that you have a very special and beautiful l
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Name : : Abby Loh
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Email : : ybba_hol
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Comment : : Dearest Wei Cheng and family,
I am really sorry for the conditions that you are all facing. I will be delighted to give my services to you in which ever way i can. Don't worry because GOD is always there to help you . What you can do is pray and ask H
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Name : : Dr. R. Z. Azma
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Email : : s_zahratul@hotmail
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Comment : : Kepada Cheng Cheng, Saya adalah pelajar tahun 2 MPATH di UKM. Pada masa ini saya bertugas di makmal haematologi yang menganalisa Haemoglobin. Pada pendapat saya, sekiranya ayah dan ibu Cheng Cheng mahu menimang anak lagi, sebaik-baiknya membuat pemeriksaa
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Name : : christina
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Email : : autumngal1029@yahoo.com
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Comment : : Look upon the True and Living God who creats the world for He is the only Healer of us..........
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Name : : Chong Hong Kit
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Email : : chk_1982@yahoo.com.sg
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Comment : : hope u can recover soon!!!
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Name : : Frances Coulter
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Email : : fadgey@home.com
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Comment : : My good friend Margaret sent me your web site,I live in Canada and have never hear of Thalaseamia Disease.I enjoyed looking at your photos and you are a very cute little girl.I will enjoy checking out your web site from time to time to see how you are doi
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Name : : serena
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Email : : h2y01@yahoo.com
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Comment : : hi wei ching! a friend sent me the url to your site. i would like to wish you the best of luck and may GOD bless you. take care! ^_^
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Name : : Margaret
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Email : : tmsan1@pl.jaring.my
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Comment : : I feel sad when i saw her face. my deepest sympathy goes to your family, may be good Lord bless her.
great effort on your part, Mr Too
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Name : : Dora Latiff
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Email : : dora@pjholds.com.my
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Comment : : Hi Too
Me, auntie dora. Both, my hubby and me, we are thalassaemia traits. We have 4 children. during pregnancy of my fourth one, I went to see Dr Tan Teck Sin of SJMC, and found out that I'm a thalassaemia minor. Several blood tests done, my hubby was
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Name : : Kim
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Email : : sukim@maxis.net.my
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Comment : : U look like my daughter who is HbH disease.
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Name : : zhizhong
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Email : :
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Comment : : Just surf on this page from TAM discussion forum, I am an alpha-thallassemia trait [ carrier ]. May you be well and happy.
zhizhong
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Name : : Radziah
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Email : : radziahazmi@yahoo.com
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Comment : : Hi Cheng Cheng,
It's me again. You know what? We have another thing in common...my birthday is also in April! April 13 to be exact. That makes it easy for me to remember your birthday then.
Kind regards, radziah
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Name : : Radziah
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Email : : radziahazmi@yahoo.com
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Comment : : Cheng Cheng,
You know what? I had the same boyish look when I was 4 or 5 years old. You look really cute in that photo.
I hope the blood transfusions and desferal you're taking are helping you feel well. I am also Thalassaemic but I do not have to go
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Name : : Too Joon Choon
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Email : : jctoo@tm.net.my
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Comment : : I love you very much. I'll do whatever possible within my ability to give you a good life.
Daddy
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