

Please read the story of Leisha's Lights below.
She gave so much
to be so little
(Leisha's picture takes time to load, but it is so worth the wait.
So I put the text first.)
Leisha was born with 18q deletion which is
translated to a partial deletion of the 18th Chromosome.
Anyone wishing more information on this syndrome is
very welcome to email me and I will be happy to share
all information that I have.
Leisha died at the age of 8. She weighed 14 pounds
and this was top weight for her. She had many problems,
including failure to thrive (the most obvious), cleft
palate (not lip), hypotonia, and microcephaly.
And she was so beautiful - I can't describe her well enough -
please check out her picture.
There are few children actually born with this
syndrome because the rate of viability is very low.
All that being said, I want you to know that she is my angel.
I feel so very priviledged to have had her for as long
as I did and I feel great comfort in knowing that she
is back in God's hands and suffers no more.
She is truly the 'Little Angel of Mine'.
One day not long after her first or second Christmas - I took the Christmas tree down as we all do. Leisha seemed to be looking at the spot where the tree was. She fussed out loud in the sweetest way and I tried to figure out what it was that she was trying to tell me.
Then one day, I could tell that she was looking at a bright colorful light and smiling the biggest smile such a small girl could have....and it dawned on me that she could see the Christmas tree lights and she 'missed' them.
That very day I went out and bought a 6' silk ficus tree and put 280 or so lights on it and set it up in the living room (this was around February or March). I took Leisha in to lay on 'her spot' on the sofa and faced her to the tree. Then I cautiously and hopefully went to the tree and light switch and holding my breath---I turned on the lights... 280 of them.
I saw Leisha's eyes shine and a smile came upon her face-and at that moment I knew that she could see - she could at least see colors, bright beautiful colors and the smile on her face was worth a million times the cost of the tree and finding the lights 'at that time of year'.
So year after year, at Valentine's Day, Memorial Day, Halloween, and every other day of the year----Leisha's tree was on for her when she was home in her comfy little spot in this earth---and she smiled, and smiled, and smiled, the smile that only an Angel has.
And I remember a Halloween night when children were coming to our door for their trick or treats, some parents that were accompanying their children saw the lights (and they were Christmas lights) so I explained briefly why they were there (this was October). I knew that some of those parents left there with a greater love for their own children and for God.
God does protect us, watch over us and he never - ever gives us more than we can handle if we ask his help (and even if we don't ask).
Leisha, my little angel, here are the lights-- and they are all for you. Enjoy!





Please give your child a great big hug tonight.
I traveled along as I usually do
Hurried - with foot on the gas,
Then I spied the presence of
The angel in my path,
Disguised in a robe of yellow
She fluttered to be seen,
Her appearance as a butterfly
Surely did not fool me.
The angel danced before me
In the breezes of the day,
She knew just how to touch my heart
In the sweetest way.
—Rhonda Highsmith—

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The music you are listening to is 'Angels In The Wind'.
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