Monday, November 4, 2002 No entry for a long time again!! A lot has been going on the past 2 months. I was doing really well in school at midterms. STRAIGHT A'S!!! :) My teachers were really great and I was having a wonderful time. But then I caught a really bad virus. It made me achy all over with a really stiff spine and joints, increased fatigue, and a horrible headache that hasn't gone away for about 8 1/2 weeks, along with other symptoms. Not much stops the headache. My primary care doctor was on vacation for a long time so we had to go see a different doctor. She's nice and a really good doctor, but I don't think she pushed hard enough to get rid of this headache. Needless to say, I missed a TON of school!!! But I worked really hard on catching up and did pretty good! I still have a few issues to address with my teachers about a few things but I think I did a good job trying to make up somewhere around 6 weeks of school missed. I had blood tests and a CT Scan and it all showed up normal. So then we went to a rheumatologist and he was able to confirm my diagnosis of Fibromyalgia given to me by my primary care doctor about 2 years ago. He said that it was all a bad virus that triggered a really bad Fibromyalgia flare-up. So we're trying to get a 504 plan and home-hospital school in place. It's really hard for me to have to struggle so much with my education. I feel I am a very intelligent and capable student and because I am different I don't get a fair chance at the good grades I know I can get. My teachers have been really good trying to accomodate me the best that they can. It's nice to have people that support me. I don't feel that I should suffer academically because of my differences from other people. I mean, if I was STUPID I would understand, but I'm not! I'm an intelligent person. We have a meeting with some people from the school tomorrow. I hope they are able to see things more from my point of view and try to help me. I REALLY want to go to college! I want to become a child/teen psychologist. I want to attend BYU, an LDS-based 4-year private college in Provo, Utah. You have to have a really good academic record to get in there and I SHOULD have one because I have the brains, determination, and potential to have one. As for medications, I'm still on the 40mg of Celexa and 5mg of Buspar. My doctor wanted me to try a medicine called Provigil to see if it would help me with my fatigue. Some recent studies have shown that it helps some Fibromyalgia patients with their fatigue. I had to stop taking it for now, though, because with all the health problems I couldn't tell what was what anymore! I am still doing the horseback riding. It's really cool! I enjoy it a lot. I go for one hour every Saturday. It gives me a little weekly boost for my self-esteem. I feel that it has helped me a great deal. Like I said, it's up in Park City at the National Abilities Center. It's a really nice place. My horse is named AA Omner. He is so awesome! He has an attitude, but it fits me perfectly. Haha. :) He is an Arabian endurance champion. He won all sorts of endurance races in his day. He is a cancer survivor so it's kind of interesting how we got matched up. We celebrated my youngest brother's birthday (now 4) in September and my oldest brother's birthday (now 18) in October. My little sister's birthday is this month (she'll be 8) and my younger brother's birthday is in December after mine (he'll be 9). I will be 15 in 34 days (December 9th)!! Yea! :) I would like to thank everybody for their love and support! Where would I be without you?! :) Also, if any of you guys find a site that might be willing to put a link to this website on theirs, please tell me! I want to make this site as accessible as possible so it can help as many people as it can! Thanks again and love you all, Katie |
Thursday, October 9, 2003 WOW. It has been almost a year since I last wrote. Much has happened and I have been meaning to update it, but it was always "I will tomorrow" and you know how that goes! The school let me do home hospital school, and I did that for the rest of the school year. I didn't enjoy it much... I really longed for the social interaction of school and to be taught in a classroom. But it worked to get the credits and such. I went to band a few days a week or as my health permitted. In December I celebrated my 15th birthday. Later in the month I started having pains in my lower abdomen and discovered that I had ovarian multicystic disease. In January I had surgery to have them removed and have been on medication to help it. About a week after my surgery I went to Phoenix, Arizona to visit my grandparents and cousins down there. My grandparents actually live here in Utah, but they have a condo in Phoenix and my cousins live there. They were staying there for the summer. I flew by myself, I was very proud. ;) I had a really relaxing time and after 1 week my mother and sister also flew down and we spent another week there, just the girls. In February my mom was having a lot of trouble with her depression and was hospitalized. That was really hard for my family to handle and she still struggles with it a lot. Eventually, the school year from heck came to an end. I was able to go to 9th grade promotion and yearbook day. I had a really fun summer. A lot of the teens in the neighborhood came to our house and played games almost every night. We had a lot of good times. I took a musical theater class every day for 2 weeks during the summer and I had a great time with that. We also went as a family to visit my cousins in Denver. That was a lot of fun, too. I also broke my tailbone, in kind of a funny way. I had fallen on it earlier and it hurt but not too bad, but then I sneezed and it popped! It's hurt like crazy ever since, although it's beginning to get better. I managed to catch pink eye in BOTH EYES and ever since then my right eye has been blurry. I went to the eye doctor and he told my mom that he supstected that I saw fine. How stupid does he think I am? Like I'm going to have my mom take time out of her busy day to take me to the eye doctor so they can put some drops in my eyes, I can wear those "attractive" paper sunglasses, and maybe get glasses. Needless to say, I'm sick of doctors telling me that I'm fine. I still struggle with seeing out of my right eye but I'm not sure what to do about it right now. August rolled around and I really wanted to be back in school. We met with the high school counselor and were able to work out a schedule in which I go for period 4-7. It has worked really well for me. I have only missed 2 days and am getting good grades. I'm not doing the horseback riding right now because of my tailbone, but I tried out for A Christmas Carol at a local theater. I made call-backs but not the show. However, it was good to get some auditioning experience. It sort of threw me for a loop, though. I've been on a bit of a depression downfall ever since. I believe it's starting to even out, but slowly. I have been having trouble meeting new people in high school, and I've kind of had to start over with meeting people and such because I wasn't in school last year. It's been tough, but I am just glad to be back in school again. I am going to try adding another period to the day. My mother is also having a hard time again and my dad is having to travel a lot for his job. Life never calms down, does it? I am still on the same medication and it still seems to help. I turn 16 in exactly 2 months from today and I have been in drivers education. My younger brother turned 5 in September and my older brother turns 19 on the 18th of this month. I have gotten a few emails from people thanking me for the help this site was to them, and I would just like to say that I am grateful that I could help them in some way. I will try to update a little sooner next time!!! :) luv, katie |
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