I founded this site in June 2001, a mere 6 weeks after my own molar pregnancy. Confused and grieving, I searched the Internet for information about the condition and what it meant for me, in both the near and the distant future. A medical editor by trade, I was able to comprehend some of what I found online, but most of the sites I found were highly technical. Pregnancy sites offered little more than a blurb about molar pregnancies, and finding women on those sites who had had or were having the same experience was too difficult, because it meant wading through messages from countless happy moms-to-be. I was angry, and hurting, and jealous of those women and looking for comfort and support.

Among the sites I visited in those days, I came across a site created by Kendra Inman. Kendra's site was a tribute to the baby she'd lost as well as a personal recounting of her experiences with molar pregnancy. I first learned of the cancerous nature of molar pregnancy while reading her story; my doctors had left that little detail out. I was so grateful to her for sharing her feelings and experiences that I had to tell her, so I signed her guestbook. It was then, while reviewing my own message to Kendra, that I found the hundreds of other women who'd been touched by this tragic and little-known condition. There were pages and pages of messages from women thanking Kendra for her work, asking for more information, seeking links and references, and sharing their own stories. I decided that I, too, could turn my loss into something useful.

In my work as a medical editor, I use a vast array of references, both books and web based. I thought I could put those references, my writing ability, my passion for journaling, and my emotional turmoil to good use. I already had a website of my own, so creating a page involved little more than writing the text. The original MyMolarPregnancy site was a spinoff of sorts from that site. I spent a week typing and editing and formatting, and MyMolarPregnancy.com went live on June 14, 2001. In addition to the site itself, I added a guestbook and started a Support Group where women who had had a molar pregnancy could meet and share their stories and their feelings with each other. I collected email addresses from the women who'd signed Kendra's guestbook and invited them to join, and within a few weeks I had nearly 20 members. The healing, for me, had finally begun.

Writing my story, sharing it with others, providing a place for women with molar pregnancies to meet and talk…all of these things have been very therapeutic for me. To this day I still receive emails and messages all the time thanking me for my efforts, and those letters make me feel that I've turned a terrible thing into something good, something positive, something that helps others as well as myself.

In February 2002 my little website spinoff became a website in its own right, with its own title and domain name. My support group had over 40 members at that time and was still growing. Since then, I have added personal stories submitted by women all over the world, because each of us has had different experiences. In 2004 I conducted an informal survey of women with molar pregnancies to try to find common links among us. The results of that survey are now posted. In 2007 I added a MySpace page and a Facebook group as well, both to try to reach new audiences and to open up new avenues for visitors to meet and communicate with each other.

In 2008 I published a book, My Molar Pregnancy: A Collection of Personal Stories From Diagnosis Through Recovery, a compilation of stories from women with molar pregnancies as well as my own story, a description of the condition and the experience of being diagnosed, and useful web sites and references. This achievement was the realization of a goal more than 6 years in the making, and I couldn't have done it without the selfless contribution of the 34 women who joined me in sharing their stories as well as all the women who have sent me their stories for the web site over the years. The book is one more way in which I hope to reach out to women with molar pregnancies to show them they are not alone and to give them hope for the future.

I design and run this site by myself, in between being a mom, a wife, a freelance editor, and everything else we women do these days! As a result, the site may sometimes lag behind in style or content. If you send in your story, it may be some time before you see it online. I do my best, however, and I hope that what you find here will help you as you recover in both body and spirit.