January 2005
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January 1, 2005:
Happy New Year!
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January 10, 2005 (9am
- 5pm): The Federal CFS
Advisory Committee
will hold its first meeting of 2005 on Monday, January 10 in
Washington, D.C. There will be a special focus on youth with CFIDS at
this meeting, and several guests with expertise or personal experience
in this area have been invited to participate by committee chairman Dr.
David Bell. The agenda also includes health agency updates and public
testimony. The meeting will be held from 9:00 a.m. until 5:00 p.m. at
the Department of Health and Human Services, Hubert H. Humphrey
Building, 200 Independence Avenue, SW., Room 800, Washington, DC 20201.
It is open to the public. The official
meeting notice contains details of the agenda and how to
register to present testimony. For further information, see the Committee's
website or call 202-690-7694.
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Tuesday, January 11,
2005 (12 Noon - 2pm):
Mitral Valve Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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Saturday, January
15, 2005 (2-4 pm):
NoVa CFS/FMS Support Group monthly meeting, in
room 5 of the Education Conference Center building of Inova Fairfax
Hospital. For more information and directions, please see our Meetings and Speakers pages.
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January 17, 2005:
Martin
Luther King, Jr. Holiday
February
2005
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Tuesday, February 8,
2005 (12 Noon - 2pm):
Mitral Valve Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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February 9-11, 2005:
International
Conference on Fatigue Science 2005 in Karuizawa,
Japan. For more information, see the conference
website.
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February 14-20, 2005:
Random
Acts of Kindness Week
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Saturday,
February 19, 2005
(2-4 pm): NoVa CFS/FMS
Support Group monthly meeting, in room 5 of the
Education Conference Center building of Inova Fairfax Hospital.
Speaker: Author and Life Coach Deb DePorter
will join us to talk about "The HeartMath
Stress Relief Program - The Antidote for the Stresses of Everyday
Life". For more information and directions, please see our Meetings and Speakers pages.
March
2005
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Tuesday, March 8, 2005 (12
Noon - 2pm): Mitral Valve
Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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March 18-20, 2005:
The National Fibromyalgia Association (NFA) is sponsoring “Leaders Against
Pain”, a two-day advocacy and media
training seminar for support group leaders. Location: Orange County,
California. For more information, see the NFA
website .
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Saturday, March
19, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, in room 5 of the Education Conference Center building
of Inova Fairfax Hospital. Our scheduled speaker had to reschedule. So
this month's meeting now will be a general discussion, including
exploring the topic "How does one be gentle and kind to oneself when
the body and life seem to be falling apart, and why is that
important?". For more information and directions, please see our Meetings and Speakers pages.
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March 20, 2005:
Vernal
Equinox - it's Spring!
April
2005
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April 4, 2005
(9am-5pm): Quarterly public meeting of the Federal
CFS Advisory Committee in Washington, D.C. The
special focus of this meeting will be disability issues relating to
CFS. The meeting will be held Monday, April 4 from 9:00 am until 5:00
pm at the Department of Health and Human Services, Hubert H. Humphrey
Building, 200 Independence Avenue, SW, Room 800, Washington, DC 20201.
It is open to the public. The official
meeting notice will contain details of the agenda and how to
register to present testimony. For further information, see the Committee's
website or call 202-690-7694.
-
Tuesday, April 12, 2005
(12 Noon - 2pm): Mitral
Valve Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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April
15, 2005: "Advances
in Understanding and Treating Chronic Fatigue Syndrome and Fibromyalgia",
April 15-16, 2005, in the Salt Lake
City area. Sponsored by the Organization for Fatigue and Fibromyalgia
Education and Research (OFFER). Includes both a patient
conference on Friday and a provider
conference on Friday and Saturday. Scheduled speakers at the
patient conference are Patricia Fennell, MSW, CSW-R, Nancy Klimas, MD,
Lynne Matallana, and I. Jon Russell, MD.
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Saturday, April
16, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
For more information and directions, please see our Meetings and Speakers pages.
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April
16, 2005: Connecticut
CFIDS & FM Association, Inc. Spring Conference
in Farmington, CT. "The Politics of Epidemiology and Name Change; How
to Differentiate
between CFIDS and Depression", presented by Leonard Jason, PhD; and
"The Role of NMR Spectroscopy in Evaluation of CFIDS Patients; Possible
Genetic Link in CFIDS Population", presented by Susan M. Levine, MD.
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April 22, 2005:
Earth
Day
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April 23, 2005:
Learning to Live Well with Fibromyalgia. A
fibromyalgia mini-conference taking place in Terre Haute, Indiana.
Sponsored by Indiana University School of Medicine, West Central
Indiana Area Health Education Center, and the Living Well with
Fibromyalgia Terre Haute Support Group.
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April
30, 2005: "Chronic Fatigue Syndrome Update on Research
and Care", the 14th Annual
NJCFSA Conference in cooperation with Robert
Wood Johnson University Hospital Community Education Department. From
12:00pm to 5:00pm at Robert Wood Johnson University Hospital, New
Brunswick, NJ. Presenters include William Reeves, MD, Julian M.
Stewart, MD, PhD, Rosemary A.
Underhill , MB,
BS, MRCOG, FRCSE, and Barbara Comerford, Esq. For more info, see http://www.njcfsa.org/
or call 609-219-0662.
May
2005
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May 8, 2005: Mothers'
Day
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Tuesday, May 10, 2005 (12
Noon - 2pm): Mitral Valve
Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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May 11-12, 2005:
The CFIDS Association's
Lobby Day 2005, in Washington, DC. Mandatory
training is on Wednesday, May 11, 2005 and Lobby Day is Thursday, May
12. Please help to make your Congressional representatives
more responsive to CFIDS as an important public health concern by
participating in Lobby Day 2005 in
Washington , DC
. For further information, contact The CFIDS Association of America
(telephone: 704-365-2343, fax: 704-365-9755, e-mail: LobbyDay05@cfids.org
, or see the Lobby
Day website.
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May 12, 2005:
International
Awareness Day for CFS & FMS
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Saturday, May
21, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
For more information and directions, please see our Meetings and Speakers pages.
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May 27-29, 2005:
We Are FMily
Conference 2005 in Arlington, Texas. Speakers
include Disability Attorney Jeff Rabin, Fibromyalgia Therapist Frankie
Burget, DO Dr. Larry Sharp, and Aromatherapist Rhavada Emison. For more
information, see the conference
website or email tigi15@DelphiForums.com
.
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May 30, 2005:
Memorial
Day
June
2005
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Tuesday, June 14, 2005 (12
Noon - 2pm): Mitral Valve
Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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Saturday, June
18, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
Our speaker will be Kumunda
Reddy, MD, who will talk with us about Ayurvedic
medicine for chronic illness. For more information and directions,
please see our Meetings
and Speakers pages.
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June 19, 2005:
Fathers'
Day
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June 21, 2005:
Summer
Solstice
- June 25, 2005
(1-4:30pm): The
NoVA CFS/FMS Support Group and The CFIDS Association of
America's KNOW MORE CFS Education and Empowerment Series.
Bechtel Conference Center, Reston, VA. Featured speakers will be
internist Lucinda Bateman, MD, of OFFER
in Utah and exercise physicologist Staci Stevens, MA. Tickets for this
half-day seminar are $15. To register, please call 704-364-0466 or
visit the CFIDS
website. To receive a brochure with complete details and
registration form, please send an e-mail to cfids@cfids.org with
the subject line "KNOW MORE."
July
2005
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July 4, 2005:
US
Independence Day
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Tuesday, July 12, 2005 (12
Noon - 2pm): Mitral Valve
Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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Saturday, July
16, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
For more information and directions, please see our Meetings and Speakers pages.
August
2005
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August 7, 2005:
Friendship
Day
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Tuesday, August 9, 2005
(12 Noon - 2pm): Mitral
Valve Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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Saturday, August
20, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
Our speaker will be Michael
Jawer, on "Environmental Sensitivity and Psi:
Are They Linked?" For more information and directions, please see our Meetings and Speakers pages.
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Monday, August 29, 2005
(12 Noon-2pm): Elly's
Gratitude Group monthly meeting, in
Centreville, VA. We will be watching and discussing the movie "What the Bleep Do We
Know?" For more information, contact Elly at 703-968-9818 or EllysGratitudeGroup@cox.net
.
September
2005
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September 5, 2005:
Labor
Day
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September 11, 2005:
Grandparents
Day
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Tuesday, September 13,
2005 (12 Noon - 2pm): Mitral
Valve Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
-
Saturday, September
17, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
Ous speaker will be Jonathan
Gilbert, Diplomate of Chinese Herbal Medicine & Acupuncture.
For more information and directions, please see our Meetings and Speakers pages.
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September 22, 2005:
Autumnal
Equinox
-
Thursday, September 29,
2005: Elly's
Gratitude Group monthly meeting. Time and place
to be announced. For more information, contact Elly at 703-968-9818 or EllysGratitudeGroup@cox.net
.
October
2005
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Tuesday, October 11,
2005 (12 Noon - 2pm): Mitral
Valve Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
-
Saturday, October
15, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
Scheduled: general discussion. For more information and directions,
please see our Meetings
and Speakers pages.
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October 22, 2005
(9am - 4pm): SC
Fibromyalgia Support Group Second Annual Fibromyalgia Conference,
in Greenville, South Carolina. For more information, go to http://www.scfibromyalgiasupportgroup.com/
.
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October 29, 2005
(9am - 3:30pm) 5th Annual Neuroendocrineimmune
Disorders Conference hosted by P.A.N.D.O.R.A.,
in Pompano Beach, Florida. For more information, go to http://www.pandoranet.info/con5.html
.
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October 31, 2005:
Halloween
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Note:
Elly's Gratitude Group will
not have a meeting in October, due to preparations for Halloween at
Elly's house (which is a true source of gratitude for all who get to
experience it!). For more information, contact Elly at 703-968-9818 or EllysGratitudeGroup@cox.net
.
November
2005
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Thursday, November
3, 2005 (7:00-7:50pm): Elly's
Gratitude Group monthly meeting. This meeting
will be held by conference call. No need to leave home, and our members
from outside the DC area can join in! For more information, contact
Elly at 703-968-9818 or EllysGratitudeGroup@cox.net
.
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November
5, 2005 (12 - 5pm): New
Jersey Chronic Fatigue Syndrome Association's Fall Conference - New
Medical Findings in Chronic Fatigue Syndrome.
Location: Sheraton Conference Center in Eatontown, New Jersey.
Featuring speakers Dr. Paul Cheney, Dr. Susan Levine, and
Shanon McQuown. For more
information, go to http://www.njcfsa.org/CONF.html
.
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Tuesday, November
8, 2005 (12 Noon - 2pm): Mitral
Valve Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
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November 11, 2005:
Veterans
Day
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November 11-13, 2005:
Wise Traditions
2005 - The Weston A. Price Foundation Sixth Annual Conference,
at the Westfields Marriott Hotel, Chantilly, VA. For detailed
information about the schedule and speakers, see the conference
website .
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November 12, 2005 (11:30am
- 4:00pm): Minnesota
Chronic Fatigue Syndrome & Fibromyalgia Association's
Conference of Hope and Education. At
the Crowne Plaza Hotel, in
Brooklyn Center, MN. Featuring speakers Dr.
Lucinda Bateman and Dr. Bruce Fischer. For more information, go to http://www.mncfsfm.org/events.htm#Conference .
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November 13, 2005
(1-4:30pm): The CFIDS
Association of America's KNOW MORE CFS Education and Empowerment Series.
Charlotte, NC. Featured speakers will be Dr. Nancy Klimas of the
University of Miami School of Medicine and Dr. Peter Rowe of Johns
Hopkins University. Tickets for this half-day seminar are just $15 if
purchased before November 7, 2005 and $20 after the deadline and at the
door. To register, please call 704-364-0466 or visit the CFIDS
website. To receive a brochure with complete details and
registration form, please send an e-mail to cfids@cfids.org with
the subject line "KNOW MORE."
-
Saturday,
November 19, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
Our speaker will be attorney
Mitch Lambros, on applying for Social Security
benefits.
For more information and
directions, please see our Meetings
and Speakers pages.
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November 24, 2005:
Thanksgiving
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Thursday, November 24,
2005 (5-6pm): Elly's
Gratitude Group special Thanksgiving Day
meeting. This meeting will be held by conference call. No need to leave
home, and our members from outside the DC area can join in! For more
information, see our email notice, or contact Elly at 703-968-9818 or EllysGratitudeGroup@cox.net
.
December
2005
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December 3, 2005:
International
Day of Disabled Persons
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Tuesday, December 13,
2005 (12 Noon - 2pm): Mitral
Valve Prolapse Syndrome / Dysautonomia & OI Support Group
of Northern VA, in Centreville, VA. For more information, email Elly at
MVPS-D_OI_NOVA-owner@yahoogroups.com
.
-
Saturday,
December 17, 2005 (2-4 pm): NoVa CFS/FMS Support Group
monthly meeting, at the Mason
Governmental Center, 6507 Columbia Pike, Annandale, VA 22003.
Our speaker will be life
coach and a workshop presenter Christel Libiot,
on seeing chronic illness from different perspectives. For more
information and directions, please see our Meetings
and Speakers pages.
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December 25, 2005:
Christmas
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December 25, 2005:
First night of Hannukah
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December 26, 2005:
Kwanzaa
begins
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December 31, 2005:
New
Year's Eve
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TBA: Elly's Gratitude Group monthly
meeting. For more information, contact Elly at 703-968-9818 or EllysGratitudeGroup@cox.net
.
2006 Preview
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Tuesday, January 10,
2006 (12-2pm): MVPS /D & OI Support Group meeting.
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Saturday, January 21,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
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TBA, January 2006:
Elly's Gratitude Group meeting.
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Tuesday, February 14,
2006 (12-2pm): MVPS /D & OI Support Group meeting.
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Saturday, February 18,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, February 2006:
Elly's Gratitude Group meeting.
-
Tuesday, March 14, 2006
(12-2pm): MVPS /D & OI Support Group
meeting.
-
March 17-19, 2006:
National
Fibromyalgia Association's FAME 2006 National Patient Summit,
in Orange County, California. For more information, see the conference
website .
-
Saturday, March 18,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, March 2006:
Elly's Gratitude Group meeting.
-
Tuesday, April 11, 2006
(12-2pm): MVPS /D & OI Support Group
meeting.
-
Saturday, April 15,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, April 2006:
Elly's Gratitude Group meeting.
-
Tuesday, May 9, 2006 (12-2pm):
MVPS /D & OI Support Group meeting.
-
Saturday, May 20, 2006 (2-4pm):
NoVa CFS/FMS Support Group meeting.
-
TBA, May 2006:
Elly's Gratitude Group meeting.
-
Tuesday, June 13, 2006 (12-2pm):
MVPS /D & OI Support Group meeting.
-
Saturday, June 17, 2006
(2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, June 2006:
Elly's Gratitude Group meeting.
-
Tuesday, July 11, 2006 (12-2pm):
MVPS /D & OI Support Group meeting.
-
Saturday, July 15, 2006
(2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, July 2006:
Elly's Gratitude Group meeting.
-
Tuesday, August 8, 2006
(12-2pm): MVPS /D & OI Support Group
meeting.
-
Saturday, August 19,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, August 2006:
Elly's Gratitude Group meeting.
-
Tuesday, September 12,
2006 (12-2pm): MVPS /D & OI Support Group meeting.
-
Saturday, September 16,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, September 2006:
Elly's Gratitude Group meeting.
-
Tuesday, October 10,
2006 (12-2pm): MVPS /D & OI Support Group meeting.
-
Saturday, October 21,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, October 2006:
Elly's Gratitude Group meeting.
-
Tuesday, November 14,
2006 (12-2pm): MVPS /D & OI Support Group meeting.
-
Saturday, November 18,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, November 2006:
Elly's Gratitude Group meeting.
-
Tuesday, December 12,
2006 (12-2pm): MVPS /D & OI Support Group meeting.
-
Saturday, December 16,
2006 (2-4pm): NoVa CFS/FMS Support Group meeting.
-
TBA, December 2006:
Elly's Gratitude Group meeting.
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