Upcoming CFS/FMS/OI
Events
in the
US National Capital Area
Northern Virginia, Washington, DC, and Suburban MD
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NOVA CFS/ME, FMS & OI SG
meetings are usually the
3rd Saturdays, 2-4 p.m.
(ends
closer to 4:30 for speaker meetings)
Sully Governmental Center
James McDonnell Room
4900 Stonecroft Blvd, Chantilly VA 20151
Free, close parking. No stairs.
Same building as the Fairfax
Co. Sully District
Police Station
Outside 495, The Capital Beltway
South of Dulles Airport and
South of Route 50
North of Manassas, North of Route 66, North
of Route 29
Very close to the interection of Westfields Blvd
and Route 28
Sully
Directions Page
Please refrain from wearing scented products. Thank you.
CFS, CFIDS, M.E. ~ Chronic
Fatigue Syndrome, Myalgic Encephalomyelitis
FM, FMS ~
Fibromyalgia Syndrome
OI ~
Orthostatic
Intolerance (Becoming more symptomatic when upright and still)
POTS ~
Postural Tachycardia
Syndrome
NMH ~
Neurally
Mediated Hypotension
MVPS/D ~
Mitral
Valve Prolapse Syndrome / Dysautonomia
2009 NOVA CFS/ME,
FMS, &
OI Meeting
Schedule Overview
(CHANTILLY, VA, unless otherwise
noted)
Jan 17 -
Medical Qigong & Self-Health. Matt Hayat, PhD, NMQ
Feb 28 - 4th Saturday, 2 pm - 4 pm,
discussion meeting
Mar 21 - "Update on
Orthostatic Intolerance in Chronic Fatigue Syndrome
(CFS)"
Peter Rowe, MD, of Johns
Hopkins.
Apr 18 - Discussion
Apr 25 - "CFS: Is Oxygen
the Problem and Why?" Paul Cheney, MD, PhD
(Location: Fairfax Gov't
Center, 6-9 pm, 4th Saturday)
May 12
-
Awareness Day. -- Support Teleconference
May 16 - Discussion
June
20 - TBD
July 18 - 10
am - 12 pm. Social Security Attorney Mitch Lambros, J.D.
Aug 15 - TBD
Sep
19 - 10
am - 12 pm. TBD
Oct 17 - TBD
Nov 21 - TBD
Dec
19 ~
Social/ POTS Luck
May 2009
- For
Worldwide Awareness Day Events around May 12 check
- May
12, 2009: International CFIDS, FM, CIND Awareness Day
-
May 12, 2009, 2nd Tues,
12-2
PM: NOVA MVPS/ D & OI
Support Group
By
teleconference!!**** Let's call
this one our Awareness day event.
No
registration required.
People w/CFS/FMS
also welcome since often have overlapping symptoms.
Free,
but any long distances telephone charges apply.
Sign up for montly reminder emails conference calls and codes at
mvps-d_oi_nova at Yahoo,
write mvps-d_oi__nova-owner@yahoogroups.com
or call 703-968-9818
or 410-647-7578 for information.
(CFSupport email members also get reminders with number and code.)
-
May 16,
2009, 3rd Saturday,
2 - 4 pm: NOVA
CFS/FMS Support Group
Discussion meeting.
Sully
Governmental Center, James McDonnell Room
(same building as
Sully District Police Station)
4900 Stonecroft
Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings,
Directions.
- May
18. 2009, Monday Series,
1:30 - 3 pm: Pain
Connection Speakers
"Communication
Skills
and Techniques
for Couples & Family Members"
Anita
Bains,
LCSW
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999 (directions only)
For info, Pain Connection Support Groups,
call (301) 309-2444.
Eastern Loudoun
(Cascades) Library
21030 Whitfield
Place, Sterling VA 20165. Free.
Across library from the front door, a
smaller room enclosed in glass.
For information,
email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st
Floor)
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
A
meeting of the CFSAC, held
in
Washington, D.C. Agenda usually includes health agency
updates and public
testimony. This meeting is at
the Department of Health and Human Services, Hubert H. Humphrey
Building, 200 Independence Avenue, SW, Room 800, Washington, DC 20201.
Photo ID req'd. Open to the public. Pre-registration required
for public testimony with Dr. Wanda K. Jones, Deputy
Assistant Secretary for Health (Women's Health), (202) 690-7650. The
CFIDS Association's meeting reports, dating back to 2003 are
available as are schedule
updates, reports via
the CFIDSLink. See also the About
the CFSAC.
Reston Town Center
11900 Market St,
Reston VA 20190
Sponsored by the Sjorgren's Syndrome Foundation
(800) 475-6473
In addition to
support groups
having tables, there will be booths by
booths, a "Walkabout,"
a Simon Says exercise warm up,
Door
Prizes, Games, and
Interactive Exhibits.
See June 1, 2009
June 2009
For those with CFS/FMS/OI.
Mind-body-spirit Conference Call.
Join our email
list for the
number and code or
call 703-968-9818,
write eggdish-owner@yahoogroups.com
or see EGG.
No
fee, but each caller pays his or her own long
distance charges.
Overland
Park, Kansas
For more information, see the FCI
website at
http://www.fibrocoalition.org/
Speaker:
Martha Calihan, MD
Lansdown
Leesburg Hospital
44045 Riverside
Parkway, Leesburg, VA
Conference room
A/B
(No longer a monthly group.)
For
more information, contact
CFSupport
at 703-968-9818.
PDF Flyer for Loudoun Group
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st
Floor)
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield
Place, Sterling VA 20165. Free.
Across library from the front door, a
smaller room enclosed in glass.
For information,
email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
"Treating
Pain with
Acupuncture"
Lisa Marie Price, L.Ac., Dipl. Ac.
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999 (directions only)
For info, Pain Connection Support Groups,
call (301) 309-2444.
For those with CFS/FMS/OI.
Mind-body-spirit Conference Call.
Join our email
list for the
number and code or
call 703-968-9818,
write eggdish-owner@yahoogroups.com
or see EGG.
No
fee, but each caller pays his or her own long
distance charges.
July 2009
Eastern Loudoun
(Cascades) Library
21030 Whitfield
Place, Sterling VA 20165. Free.
Across library from the front door, a
smaller room enclosed in glass.
For information,
email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
Christ
Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
For those with CFS/FMS/OI.
Mind-body-spirit Conference Call.
Join our email
list for the
number and code or
call 703-968-9818,
write eggdish-owner@yahoogroups.com
or see EGG.
No
fee, but each caller pays his or her own long
distance charges.
August 2009
-
August 11, 2009, 2nd
Tues, 12-2
PM: NOVA MVPS/ D & OI
Support Group
By
teleconference!!****
No
registration required.
People w/CFS/FMS
also welcome since often have overlapping symptoms.
Free,
but any long distances telephone charges apply.
Sign up for montly reminder emails conference calls and codes at
mvps-d_oi_nova at Yahoo,
write mvps-d_oi__nova-owner@yahoogroups.com
or call 703-968-9818 or 410-647-7578
for information.
(CFSupport email members also get reminders with
number and code.)
-
August 17,
2009, 3rd Saturday,
2 - 4 pm: NOVA
CFS/FMS Support Group
Discussion meeting or TBD.
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings,
Directions.
- Aug 19, 2009, 3rd Wed, 1 - 2:30 pm: Loudoun Daytime Fibro/CFS
Support Group
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Across library from the front door, a
smaller room enclosed in glass.
For information, email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
For those with CFS/FMS/OI.
Mind-body-spirit Conference Call.
Join our email
list for the
number and code or
call 703-968-9818,
write eggdish-owner@yahoogroups.com
or see EGG.
No fee, but
each caller pays his or her own long
distance charges.
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