Why is it called Down syndrome?

Sometimes people think of the word "down" as a negative word. But, the actual meaning of the word "down" has nothing to do with Down syndrome. A women with Down syndrome named Ann Forts even started a foundation called "Up Syndrome," to help change people's perspective of Down syndrome. A lot of people now prefer "Up Syndrome" to Down syndrome.

The syndrome is actually named after a guy named Dr. John Langdon Down. He was a doctor that became very interested in people with Down syndrome. This was back in the day when people with Down syndrome were put in insitutions and called "mongoloid idoits."

Anyway, Dr. Down saw that some of the people in the insitution looked similar to each other, but he knew they weren't related. So, he wrote down all their similarities in his essay. He also saw that they had potiental to learn, even though he never really knew how much potiental. He had a lot of guesses on why a person would have these features. He said that maybe they were a sign of transgression in evolution, but we now know that's wrong.

After Dr. Down passed away, the syndrome was named after him as Down's Syndrome. People were glad to get rid of the horrible term "Mongoloid," since people with Down syndrome have no relation to Mongolia (unless they are born there). Then, people began to realize that saying Down's syndrome implied that Dr. Down owned the syndrome, and/or the people who have the syndrome. All the business of ownership made people really uncomfortable, so the politically correct term has become Down syndrome. (In a lot of Europe, Down's Syndrome is still used.)

Want to know more? Pick another question.


What is Down Syndrome?
How did that extra chromosome get there?
When a person has DS, what's he/she like?


When a person has Down syndrome, that's not what they are all about. It's not even the most interesting part about them.

Just see for yourself

People

And if you have a child with DS, don't forget to add him/her.



Anything I missed?
Please, e-mail me and let me know at Basics@DSyndrome.com.



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