Erythema Nodosum
Pronounced: AIR-uh-THEE-ma no-DOSE-um

 

 

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The purpose of our Support Group is to create the space where people who have been diagnosed with Erythema Nodosum (EN) can share information regarding their experiences in their quest for treatments and cures.

Erythema Nodosum is a form of Panniculitis that appears as Painful Red, Hot Lumps, Bumps or Nodules on the Legs or elsewhere. It is considered either Auto-Immune, or a Delayed Allergic Response in nature. It is often a reaction to a Bacterial, Fungal, or Viral Infection and can be a side effect of certain medications, particularly birth control pills. The vast majority of EN patients are younger women, but men, older women, and even children can be affected. Up to 50% of Erythema Nodosum cases are idiopathic, where no trigger has been found.

Our members discuss all aspects of our health including IBS, Fibromyalgia, Crohn's, Pyoderma Gangrenosum, Sarcoidosis , and Depression.

Our Group approaches EN from every angle. We know from experience that stress is a trigger for many EN sufferers and so we have shared methods of stress reduction including yoga. We have also looked into vitamin therapy as well as prayer, forgiveness, laughter, and prescription drug treatments both old and new.

We are conducting on-going polls to discover the effect of stress and hormones on EN. Stress has been shown to effect other autoimmune diseases in recent studies.

Our site includes Member Case Histories, and informative Links and Files. We also have a large collection of Photos showing what EN looks like on many different people, including some group members.

We welcome both EN sufferers and their loved ones. Our goal is to discover ways to lengthen our Remissions and make our Flare-ups briefer. As a true Support Group, we provide a safe place where our members can freely express themselves and share their mutual support, respect and love.

 

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We have very active on-line support groups.

Click here for an invitation to join the group.

Visit Our Erythema Nodosum Support Group!

Visit our EN Fundraisers Support Group

An Invitation For Your Doctor

 

Find out how you can help find a cure for EN Here.

 

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