October Postings

Comments:
Is there anything else ??? ( than Accutane ) I dont have that much of it (3-4 sometimes noothing) and i dont want to go to doctor and all that stuff around it. wally

Anon. - 10/30/98 15:44:10
Gender: Male
Age: 23

Comments:
Firstly to the previous post : you will have to see a dermo about your skin, then they can prescribe Roaccutane if required - at the correct dosage - with all the appropriate checks in place (blood tests etc..) Make an appointment today - Good Luck!!. Secondly, I am still somewhat sceptical about Roaccutane, having been on it now for about 12 weeks, currently on 80mg/day and still spots appear (stress has a *lot* to do with it!) Hopefully I will the clear skin I dream of soon, it's just hard to keep reminding yourself that the drug is NOT a panacea for Acne, but it does eventually help! Bye, and love to all. xxxxxxxx

wally - 10/30/98 05:29:58
My Email:vladik1@yahoo.com
Gender: Male
Age: 19

Comments:
Hi. I've read a lot about Accutane and i decided to give it a shot. I'm 19 and i was waiting to get my acne better but since i moved to Florida my face is oily like never before..... Where can i buy Accutane ??? How much does it cost ??? how should i star ??? Thanx in advance ....... wally

Sarah - 10/28/98 13:36:34
Gender: Female
Age: 30

Comments:
This is to Paul. I have been off Accutane for about 4 months. While on Accutane I had experience the common side effects, dry lips, dry peeling skin and quite a red face. After Accutane my skin did seem blotchy. I also have some red spots on my cheeks where the acne was the most severe. After 4 months the blotchiness is subsiding and I do find my complexion to be evening out. The red pots on my cheeks are improving but it is taking a lot of time. I think it will be probably 3 more months before they are completely gone. I still get the occasional little pimple but it goes away. Every time I got a spot I thought I was only a fractio away from a full out revenge attack of my acne. I was concerned that I would have to wait 8 weeks before a second course of Accutane. Fortunately, things do continue do improve. The skin has remarkable healing powers but it does seem to take a long time. If you have had good effects with Accutane I believe things will continue to improve. Although the five months of treatment were difficult, I am so grateful for the results of Accutane. Finally, in closing I would like to tell anyone on this drug not to drink AT ALL! Combining medication with any drug is dangerous. This is not advisable and can lead to problems. Good luck to everyone!

Paul - 10/28/98 02:05:56
My Email:pviolette@acnielsen.com
Gender: Male
Age: 27

Comments:
Hi I have just finished a 20 week treatment of Accutane. It was my second treatment. My first, three years ago worked beautifully but my acne returned - oddly enough it returned only in a place I had never had acne before, my forehead. Anyhow, I have now been off the drug for three weeks but it seems my acne may be coming back. For instance, my skin looks blotchy at times. Also, I have had a few minor pimples. My question is, are a few pimples after treatment normal or is it a sign that the drug did not work as intended and my acne will soon return? On the drug packet, it says not to take the drug for 8 weeks after treatment because the acne often gets better ith time - is my skin simply adapting to life without Acutane? Any personal advice or experiences with acne after Acutane would be greatly appreciated. Thank you.

Joanne - 10/27/98 14:56:08
My Email:joanne@brownandco.com
Gender: Female
Age: 36

Comments:
This is absolutely the best website I've found on Accutane! It's very comforting to hear from other people with the same problem. Sometimes you can't help but feel like the only one with a broke-out face. I am an American and still struggling with acne af er 26 years. I do not have cystic acne, but I breakout very easily and cannot think of too many times in my life that my face has been perfectly clear. In July of this year my skin took a turn for the worse. It is very frustrating to be in my mid-30s and till fighting oily skin and blemishes. On October 9, my dermatologist prescribed Accutane, and I am hopeful this drug will help me solve my problem. My skin problems cause me much distress and I am finding it exceedingly difficult to focus on the importan things in my life: husband, work and school. I know I am depressed, but I truly believe it is because of my complexion. The last two+ weeks on Accutane have been up and down for me. Like most people, I am experiencing the dry lips (not overly) and skin. orse, my skin is breaking out, which I understand is normal, but not too comforting all the same. Last week my skin looked a lot better. Over the weekend, I was truly encouraged, and then on Sunday night it all changed. My skin was broke out again. I am a so noticing a lot of blackheads coming out. I called Roche Laboratories yesterday and talked to a nurse who told me 9 out of 10 people experience a worsening of their acne. She told me my breakout means the drug is working and that it can take up to six w eks before my face stops breaking out. HOW MANY OF YOU HAVE EXPERIENCED THIS FRUSTRATING SIDE EFFECT, AND HOW LONG DID IT TAKE BEFORE YOUR FACE STOPPED BREAKING OUT? It took me many years to finally get the courage to try Accutane because of the scary sid effects (I wish now I wouldn't have waited so long!). At this point, I don't care about the side effects -- I just want a clear complexion! To all of you facing the same challenge as me, good luck to you. I hope you all get the clear skin you are hoping or. Sorry for the long note, but it's good to get my frustration out and to talk to people who can empathize.

Amie - 10/27/98 08:43:36
My Email:amieann@netscape.net
Gender: Female
Age: 26

Comments:
I just wanted to say that I am sooo glad I found this web page. Thanks so much for all your comments and positive feedback! I have had acne since I was in my teens. Suprising, my skin cleared while I was pregnant and for a period after my child was born. ut now my acne has become much worse. I just started my Accutane treatment 15 days ago! I don't want to go out of the house!!! The second week was the worst! Dry, peeling skin, and the worst part is the big cystic bumps because they hurt so much. My lips ave been really dry...but seem to be getting better..not so dry right now. I feel like some parts of my skin are getting better and where I feel that, my skin feels baby soft. The thing is its difficult to cover up the flare-ups when there's so much going on...peeling and bumps. But I really feel the worst may be over...I hope!!! I am on 40 mg per day...I am not drinking alcohol as much as usual...am drinking lots more water...would like to know at what point do I start using a moisturizer for my face??? I still have acne, so I am afraid the lotion will just make it worse! Any suggestions??? Oh, I also have had major back and neck aches. My neck was very stiff last week and all this pain with my joints and muscles and my face hurting too...put me in not so reat of a mood!!! Just hoping it will get better...keeping my fingers crossed. Hoping someday I can not worry about going somewhere with no makeup on!!! Good Luck to everyone. One more thing. My brother is 23. He took Accutane a couple of years ago. His a ne was severe! He has beautiful, flawless skin now. He still has a dry scalp and uses lot's of lotion, his face is a little red but it worked!!! One thing he learned though was not to go in the sun!!! He went skiing and came home with golf ball size red b isters on his neck...so don't go in the sun while on this medicine...Both of us tried all the other common treatments...none REALLY worked!!! Later-Amie

Baker - 10/27/98 03:04:13

Comments:
Sorry, one more thing. Gillian, this is a great site. I wish people weren't so scared by what they read on it. If you like my comment and want to put it somewhere else where more people can see it, PLEASE DO. Thanks and best wishes

BAKER - 10/27/98 03:00:34
Gender: Male
Age: 21

Comments:
EVERYONE PLEASE READ THIS!!! I took Accutane when I was almost 16 (about 6 yrs. ago). I took it for 20 weeks, at a dose of approx .75 g/kg/day. At the time, I didn't think much about it, but as I got older I started to want more information.Accutane had completely eliminated my acne, which I would call moderately severe (and more importantly, unresponsive to anything else), and I was grateful for that. Still, I wondered if I had made the right decision. Searching the internet for information, I came across some terrifying testimonials. It seems like one-third to one-half of the personal stories about Accutane say that it has caused disturbing long-term side effects, from hair loss to birth defects to h rpes(!) to painfully dry skin to irritable bowel syndrome to stunted growth, I mean it goes on and on. For a while I was _really_ frightened about this. I personally have not experienced any side effects besides moderately dry skin, but after reading these other people's experiences, I expected to drop dead on the spot, or actually, to gradually become a w thered bleeding husk of a person. I am writing this because I don't want anyone else to panic like I did. DO SOME RESEARCH!!! I have now done more research on Accutane (otherwise known as isotretinoin or 13-cis-retinoic acid or Roaccutane) than (I honestly believe) many dermatologists. I am a university student, so I have access to many materials like search engines for journal rticles, studies, medical books, etc., plus I have used every search engine on the web and looked at literally hundreds of pages about Accutane. MY CONCLUSION: Many people are saying that they have health problems which were caused by Accutane. They don't have ANY proof for this except that they took Accutane and now they have a health problem. This is a well-known fallacy of reasoning known as "p st hoc, propter ergo hoc," which means "after this, therefore because of this." Accutane is the only target of such reasoning. People will claim that almost every drug available causes some kind of damage. In some cases they are correct. However, in these cases, there is some SCIENTIFIC PROOF for the claims. First, let me give my personal experience. When I was on Accutane, I remember having dry skin, very dry lips, and a little muscle pain. It completely cured my acne. I quit and did not have any effects after that, and I was quite satisfied. My aunt, who s about 35, took the drug in the early 80s. She is extremely healthy, looks great, and has two healthy children. Of all the other people I know who have taken it (I haven't actively asked around) they are not suffering any major damage. One thing that did concern me about myself was my hair. I have developed a receding hairling, which started when I was about 19, and is now certainly noticable, but not major. I do seem a little young for such a thing, so I started to wonder if there was ome other cause for it (BTW, the closest person in relation to me who had much male-pattern baldness is my grandmother's father, quite removed from me) This did bother me for a while, and I noticed that another person who I knew who had taken Accutane als had male-pattern baldness. Could there be a connection?? I wondered. On the web there are a fair number of people who think Accutane caused their hair loss (and I don't mean temporary and all over the scalp, but progressive and in the normal male pattern). From my research, I would like to note that the same hormones which cause acne (androgens) also cause male pattern baldness. Accutane reduces the activity of these androgens, specifically their synthesis into 5-alpha reductase (the specific hormone involv d in MPB) so if anything, it might (but I doubt it) delay MPB. HOWEVER, because Accutane is a derivative of Vitamin A, and a symptom of Vitamin A toxicity is temporary diffuse (all over the scalp) hair thinning or loss, then someone who is going to lose t eir hair from male-pattern baldness might experience Vitamin A (Accutane) induced hair loss, and then not have it grow back as fully as before because of MPB. Sorry if that is a long explanation, but I think it is a good example of how people jump to conclusion and give simple explanations for complex phenomena that a little research might help explain. SO HERE IS my opinion of Accutane: Accutane has been used since the late 70s, by over 7 million people, for the treatment of moderate to severe acne. It is remarkably effective. It works by inhibiting sebum production, reducing bacteria in pores, and redu ing inflammation of pores. It seems to reduce sebum production by reducing the sebaceous glands' sensitivity to androgens (hormones). It DOES NOT, as you may read elsewhere, DESTROY the sebaceous glands. In fact, most peoples' problem with acne relapses i that the sebum production returns to normal after treatment, and thus their acne returns. Several studies of the long term effects of isotretinoin (use this name if you want scientific information- isotretinoin is the drug's real name, Accutane is just a brand name, as is Roaccutane (Roche+Accutane) have been performed. They ALL conclude that ccutane is a safe drug in the long-term if used correctly. Virtually the only long-term effects reported are dry skin, dry eye, dry lips (cheilitis), and some muscle aches. Isotretinoin is also used in the treatment of many other diseases, such as cancers, skin lesions, sebaceous disorders, AIDS, etc. Topical isotretinoin and other retinoids seem to reduce the appearance of aging in skin. I LEARNED ALL THIS INFORMATION BY A CAREFUL AND THOROUGH REVIEW OF THE LITERATURE. I READ EVERYTHING AND NOT JUST WHAT SUPPORTS MY OWN AGENDA. I HAVE USED ACCUTANE AND I CARE ABOUT WHAT HAPPENS TO ME AND ALL OF US. A few myths you might hear about Accutane: 1. It causes birth defects months or years after taking it- Like I said before, my aunt took it and her kids are fine. But I won't just rely on that. First, look at the studies of isotretinoin's elimination from the body. It has a half-life of only a few ays, and is completely gone within a few weeks. FOR GOD'S sake, they'll take blood donations from you only about six months after you've taken it. Would they do that if it weren't completely gone? These people who say that it persists in your body for yea s have NO evidence (like this guy who says his daughter took Accutane and now her two children have arthritis etc. etc. and there's only 13 other similar cases in Canada. LOOK, its not from the Accutane. Things happen) HOWEVER, I would like to say that Accutane's worst trait is that it absolutely without a doubt has teratogenic (birth defect-inducing, "tera-" from the Latin or Greek for "monster." nice, eh?) effects. There is a serious problem with either uneducated or rresponsible women getting pregnant while on isotretinoin. However, many people say that because of Accutane's proven teratogenic effects, it must be a horrible drug for grown people. Well, I drink quite a lot of alcohol, which is also proven to cause horrible birth defects, and while alcohol, if used is massive uantities, is indeed toxic (like anything really, you know you can die from drinking too much WATER) it does not affect grown humans in the same way as developing fetuses. Many, many drugs which are safe for adults can be quite harmful to fetuses. Myth 2. Accutane causes premature aging- There is one woman on her who says that she took several courses of Accutane and now her skin is paper-thin and she looks 10 years older. I have seen many people say that isotretinoin has destroyed their skin. Firs of all, topical isotretinoin is clinically used to REDUCE the signs of aging, is is pretty effective at this. Secondly, isotretinoin CAN cause premature aging IF someone gets too much sun while on Accutane. It makes your skin susceptible to sun damage, a is stated on the packaging, but you should always protect yourself from the sun. Third, if you look at AOL.com (which has great discussion groups for info on Accutane, with diverse and numerous comments, you will see a DERMATOLOGIST by the name of Dr. Jo (he just MIGHT know more than us non-doctors, huh?) who says that Accutane actually slows the loss of collagen, which is one of the causes of aging skin (collagen loss, I mean) I don't know about this, but it is a nice thought. One side note. There is at least one comment on the AOL board where someone says "Whenever I try to decide about taking Accutane, I just look at that sight at Geocities (the site you are reading) and it scares me off." NO WONDER, with all these people o here saying Accutane caused me to give birth to aliens and bleed from every orifice and I'm going to sue. Myth 3. Accutane causes permanent hair loss - I've already dealt with this mostly, but I would also like to note that birth control pills (which almost all women take with Accutane) can also cause hormonal changes including hair thinning. Myth 4 - Accutane causes brain tumors- Accutane very rarely causes something called "pseudotumor cerebri" (you know what pseudo means? It means "false." It's not a tumor, to quote Arnold Schwartzenegger. It is similar to one, and it can cause problems, bu after stopping Accutane treatment, it goes away (again, maybe some exceptions, but almost always). Also, most cases of pseudotumor cerebri occured when Accutane was used along with another drug (antibiotic, I think) and physicians are advised against thi . 4. Accutane causes bone deformities- OK Accutane can cause changes in bones. When I started Accutane, my docter did a test on me to see that I had grown all that I would (I am 5'9, and I stopped growing when I was about 15, probably not because of Accutan ). He did a check of my calcium levels or something, and it indicated that I wouldn't grow more or much more. There is a woman I've seen on several Accutane bulletin boards who says that her two sons stopped growing when they took Accutane and they should be over 6 feet but now they are closer to 5. Accutane is known to sometimes cause premature closing of a certain growth plate, and I wouldn't be suprised if this happend with her sons. However, both she and her dermatologists should have explored this bef re they started the treatment. In short (pun, sorry), be careful about taking Accutane if you are expecting to grow a lot more, because it could interfere with this (but then, so does Ritalin supposedly). Finally, Accutane can play havoc with the liver, but if you have regular blood tests, you can stop any damage (in the rare case that it occurs) before it starts. I'm almost done. I would like to make a few final comments regarding the Accutane controversy. There are a lot of people out there saying that Accutane is a horrible dangerous drug. It is not. It definitely can cause birth defects, and that is a serious p oblem, but it can be easily prevented. It has serious potential side effects, but they are almost always (and I admit there is an exception to every rule) mild and reversible. Also, many people consider it a "cosmetic" drug, and therefore somehow "frivolo s," although those of us with acne would argue that it can take over and damage a person's entire life. These three valid points: birth-defects, side-effects, and cosmetic, have been used to argue for Accutane being a terrible drug which should be banned. However, the medical community says that Accutane is an acceptably safe and effective drug for unresponsive, moderate to sever acne. In these cases it is felt to be worth the risk. We must all decide for ourselves. But these people who believe that Accuta e is the source of all their health problems and that Roche (the manufacturer) and the rest of the dermatological community are in a conspiracy against us to make money, are neither informed nor valuable in helping YOU make your own decision. They are eit er saying it out of misguided frustration (and I partially sympathize, I'm sure most of them have real health problems, however, pre-existing and NOT caused by Accutane) or an attempt to make money (by suing) out of an unfortunate situation which should h ve been avoided by research and common sense. I say again, DO NOT BE SCARED, BE WISE! Finally, if you want to do more research, here are my suggestions. Take personal testimonials with a grain of salt. Instead, look at medical and phameceutical abstracts (look at your library for computer indexes like MEDLINE, or HEALTHNET, your librarian an show you) and use the key word "isotretinoin." There are lots of studies. Also a good web info site is the discussion groups on AOL.com. Also, contact the FDA and Roche if you want info. FINALLY (for real) I typed this out because I want everyone searching the web for information to be level-headed and thirsty for real knowledge, and I don't want you to be scared. It disturbs me that the sites that come up at the top when you search for " ccutane" on Lycos and Yahoo, etc. are full of scare stories. I tried to post a message like this to them, but it wouldn't work for some reason. I would like you to know that ANYONE can reprint this or send it to other web sites AS MUCH AS YOU WANT, and te l people about it. There are 7 million of us out there who want some answers. PLEASE disperse this. I really hope that this helped you. With love, BAKER If you wonder why I don't give an email address or a full name, I'm just not ready for that. If you think I'm hiding or lying or a lobbyist for Roche, then you're paranoid and nothing I say is going to change your mind. Feel free to check my facts. In fac , please do. The truth will set you free.

James Burrel - 10/26/98 21:04:17
My Email:minemole@nbnet.nb.ca
Gender: male
Age: 17

Comments:
I agree with euradice (below)concerning her comments on depression. While Accutane is rumored to be a deppressant I wonder how may of the cases of depression are actually caused by the drug versus the number caused by feelings of anxiety over the acne tha the users suffer. Any comments? BTW: I am now into my 6th week of Accutane and results are definately showing, whiteheads down to almost none, a few new pimples but a big reduction from the pre accutane state!

Kim - 10/26/98 16:53:27
My Email:eurydice@nfer.ac.uk
Gender: Female
Age: 32

Comments:
Hi there! I am 32 years old and after suffering for the past 20 years with acne, mainly across my chest and back, I have just started a course of Roaccutane, having previously been unsuccessful with oxytetracycline and all the other antibiotic and antibacterial creams and potions. I had also been on Dianette, the acne contraceptive pill, for two years but this had no effect on my acne whatsoever. I have now been taking Roaccutane, at a dosage of 60mg a day, for two months and my face is a mess! The spots which were already on my face (mainly my chin) when I began the treatment have now erupted into dry, red, flaky patches which will not heal and look awful (like a pepperoni pizza!) and because I am prone also to cold sores, I have one inside my nose which will not heal and hurts like hell! My lips are constantly dry and I fear that they also will break out in cold sores soon, which again will not heal. I have tried heavy moisturising lotions, cold sore creams (Zovirax etc.) and medicated lip salves to no avail. My chest, arms and back still have spots developing, although again as they heal, these are flaking and looking hideous! I am suffering with dry flaky skin on the back of my hands and lower forearms which looks like psoriasis or eczema. Does it get any better? I have two months left of treatment and I am due to see my skin specialist next week who may be able to help me, but when I spoke to her on the telephone last week explaining my problems, she said that unfortunately this was something I would have to put up with! I do not want to come off the tablets as I have come this far and if they do eventually work then it will all be worth it, but at the moment things don't look too good! The daft thing is that people say that Roaccutane can cause depression, but when you look like I do at the moment with this red, angry, flaking, weeping, dry itchy (and ultimately ugly!) face I don't think the tablets need any help! Anyone able to offer any advice/help? I'm desperate .....!

Elaine - 10/26/98 15:07:07
My Email:Zzannee@aol.com
Gender: female
Age: 35

Comments:
I am just starting my eighth week of accutane. I must say the first few weeks were really rough. Especially when the acne flared up. The worst seems over now. I haven't had any new acne in a couple weeks. My skin is not oily like before. It isn't really d y either. It just feels normal for the first time in my life. I do have the dry eyes (use artificial tears), dry lips (always have lip balm with you), and dry skin (use a good lotion).This is the first time in my life I feel like the acne may go away for ood. I wish everyone the best results.

Sarah - 10/26/98 11:19:14
Gender: Female
Age: 22

Comments:
I found this site one week after I started a four month treatment of Roaccutane, and with all the horror stories, I became very apprehensive about continuing the treatment. Despite the negative feedback, I continued the treatment and am now into the last month. I am pleased to report that I have never been so happy to look in the mirror. I have not had a pimple now for about one month (I'm told it continues to improve after treatment has stopped) and no longer do I have to deal with that annoying "shine to the skin. Like everyone else I've had to deal with the common side effects such as flakey, red skin, dry eyes, and incredibly dry lips (I thought my eyelashes were falling out for a minute there too), but nothing a little oil-free moisturiser and lip balm couldn't handle. I understand there are many people who have had bad experiences with Roaccutane, and unfortunately it seems this acne treatment is a very personal thing. I however, am extremely pleased with the results and don't regret a thing. To the guy who wanted to know about the affect of XTC in conjunction with Roaccutane - I know of people who have been on this treatment and used XTC a number of times, with no harm done. However, as I said, it seems Roaccutane is a personal thing - don't quote me on that. I'd also like to say that I continued my regular trips to the gym while on Roaccutane, without any hassles. Goodluck!

Hugo Burger - 10/26/98 10:22:33
My Email:h.burger@ecn.nl
Gender: male
Age: 24

Comments:
First of all, great website, it is really nice to read all the experiences of fellow (ro)accutaners. I have been using 40 mg a day for almost 3 months now. I would like to mention that in Holland it is not mentioned that alcohol is prohibited. My dermatol gist just told me not to drink too much. But I am aware of the stress it puts on to my liver, so though I have not stopped drinking, I certainly have stopped it from being a habit. Now another question: *****DOES ANYONE KNOW THE EFFECTS OF A LITTLE XTC (yes the guy's from holland- I wonder how the cliches get around) ON YOUR HEALTH WHEN ON ROACCUTANE????**** Many thanks. By the way: my cure is getting along pretty well, dry lips, hair and eyes - no more contact lenzes - but my skin is soft like a baby and the infections are gone with 85%. It almost seems that my skin is too thin to harbour the enfections. Gre tings and goodluck to all of us.

David - 10/25/98 14:02:49
My Email:d.chow@dial.pipex.co.uk
Gender: Male
Age: 22

Comments:
I took Roaccutane 5 years ago and had all the usual side effects. These went away after the treatment but have always since then suffered from dry lips and used vasaline on the lips constantly after finishing the course. After about 2 years of finisihing the course I contracted an infection in my lips as a result of using Vasaline because this helped harbour bacteria. At the moment I have, I think got rid of the infection in my mouth by taking a very new drug called Alcide which I applied directly onto the lips. That was a year ago now and my lips now still have not recovered. My lips are constanly cracked and sore. T e skin on the lips just does not want to stay on. At the moment I am constantly having to apply cream E45 to keep the lips moist. This experiance has changed my entire life and I constantly have to watch what I do. I have to sometimes stop talking because my mouth hurts so much. At the moment I am seeing the leading oral medicine professor In Britain at Guys Hospital in London and we are stuck for ideas to try. If there is anyone in the world that has any ideas or suggestions, I would greatly like to hear, because this condition, trivial it may seem to some people is destroying my life. I would do anything to get rid of this evil condition.

Sairina - 10/25/98 07:18:00
My Email:sairina@hotmail.com
Gender: female
Age: 26

Comments:
I have been on Roaccutane 10mg/day for the last one month. so far i have side effects of dry lips,and I feel very thirsty. I would wanna know if it is safe to conceive about 3 months after the treatment is over. thanx

katherine - 10/24/98 17:17:01
My Email:kwhittaker01@dominic.barry.edu
Gender: female
Age: 30

Comments:
Great website. I've suffered with ance forever. In January of this year I started using Glymed, an Alpha Hydroxy Acid product that comes complete with a wash, astringent and moisturizer, and I've had success with it. I've also, very important, started to rink lots of water, eat more vegetables, fruits and lower my fat intake as well as lower my caffine level. I've been exercising regularly and just basically improved my lifestyle. I'm not belittling the effects of ance as I've lived with it all my life nd it will no doubt always be a part of it. However, please do not overlook REALLY looking at your lifestyle before going on accutane. It is within each of us to control acne from the inside. Yes, I still get occassional cysts and yes they do swell, bl ed and fisture; however, I now try to look for the cause of it. Usually, when I have a breakout is when I'm stressed, depressed - not because of my acne, or I'm eating poorly or it's that 'time of the month'. I 'take inventory' and give my body what it eeds - more attention to my diet or my emotional state. I know where some of you are. Trust me I've been there. I'm a person of colour and I've had RED swollen spots. I've also had people who I don't know come up to me and offer a solution that their g andmother knows for 'that problem you have'. However, I've started looking at my lifestyle changed it and I've had good - not perfect- but darned good results. Taking a medication that is as powerful and mysterious as accutane is a BIG decision and not o be taken lightly. I've had friends and a family member, who is very meticulous, take accutane and their problem has presisted and looks worse than when they started the program. When my family member 'bothers' to improve her diet and lifestyle for sho t periods of time her condition does show improvement. Not enough is known about accutane. Some doctors don't know enough about the proper use of it. Give improving your lifestyle an honest shot before you make a decision to use accutane. All the best. br>
Karlo - 10/22/98 02:24:49
My Email:spikerboy@cryogen.com
Gender: Male
Age: 17

Comments:
Hi! I'd like to know how long the treatment for roaccutane lasts. I'm on my 2nd week and to tell you frankly, I find the treatment expensive. I've been reading here about treatments that last for more than 10 weeks. How much is that, more than two months? How many boxes of roaccutane is that, 5 or 6? Well anyway, my best wished to everyone and may all the acne in the world disappear forever (yeah right! I wish...)
-Karlo

colette - 10/21/98 21:48:03
My Email:colette_miller@eee.org
Gender: Female
Age: 25

Comments:
I just started my treatment about 4 weeks ago. I can not tell a tremendous amount of difference yet. I do have a concern. I am a dancer. I do ballet, tap, and jazz many times a week. I also teach the little ones. My doctor has recommended that I quit all activities until my treatment is complete. A whole six months without dance seems like a lifetime. I guess the accutane dries out your joints. If anyone has similiar stories about your experience with physical activity during treatment, let me know His ending comment of me walking with a cane if I don't stop has led me to cut back A LOT of my activities. Let me know...

Ricardo Meza - 10/21/98 00:51:20
My Email:ricardomeza@hotmail.com
Gender: male
Age: 23

Comments:
Hi Gill!!!!! How are you? My name is Ricardo, i have been taking Roaccutan for five months my face is better, but i still have a few pimples and stains. Gill this is my cure for acne??? give me a information, please. my pimples and stains will dissappear and never will come back again???? Im from Ecuador, Guayaquil.......... I can eat hamburguers with mayonaise during the treatment????? please give me some information!!!!! my email: ricardomeza@hotmail.com thanks Gill, see you!!!!!!

Natalia - 10/20/98 20:00:25
My Email:nataliad@mweb.co.za
Gender: Female
Age: 22

Comments:
Hi everyone! I hope all's well while on Roacutane! I've just past the 7 week mark. unfortunately my skin has really flared up these fast couple of weeks. I've noticed that I do not have black heads/white heads at all anymore. But I do have many more cysts---uuuuggggh hhhh!!! My skin is not that dry but my eyes are extremely dry, so is my hair!!! I was on 40mg/day for the first month, now the dose has been upped to 50mg/day. What Im worried about is the scarring. I have noticed red scars on my face, but even worse than that - I am full of BROWNISH marks on my back!!!! Can anyone tell me what they've been using to get rid of thier scars? oh, and another thing....has anyone been taking other vitamins in conjunction with Roacutane? Im a little worried about taking any oth r medication/vitamins in case of side effects, or worse! Please write back and let me know! THANKS AND GOOD LUCK!

T. Church - 10/20/98 15:46:42
My Email:tami.church@gte.net
Gender: female
Age: 27

Comments:
For those females out there who are tired of hearing about contraception during tratments of Accutane, let me tell you why it is so important. If you were to get pregnant during treatment it is usually grounds for a theraputic abortion (at least here in hio, USA). This is because Accutane is a highly powerful form of Vitamin A, which you shouldn't take more than 5,000 I.U.'s of duting pregnancy. It causes SEVERE birth defects. Severe deformity, Brain damage, and severe internal defects on such organs s heart, glands, and nervous system. Here in USA, at least in Ohio, you are required to have pregnancy test done, and sign form stating that you will use 2 forms of effective birth control 1 month prior and for 1 month after treatment. I myself have suf erend from Acne for 16 years. My dermotologist never believed that I had it bad enough, even though no other treatments ever worked. It wasn't until after the birth of my second child that a Dr. concented to let me try it - my selfesteem had been so des royed by years of acne and taunting by peers. For the first time in my life (this past year) I am considered "beautiful" on the outside in addition to the inside. Thankfully my husband always saw this beauty, but now can see it more clearly!! Even afte all the side effects (I had extremely dry skin,lips,and bad nosebleeds), the inconveniences of tests and contraceptives (2 forms), I would do it all over again in a heartbeat because of the results!! Hopefully I won't have to though!! You're welcome to email me if you need support, uplifting, or even information.

- 10/20/98 01:30:54

Comments:


- 10/18/98 14:59:27

Comments:
Graham, read your email!

Julie - 10/18/98 09:51:03
My Email:Julie_A@forum.dk
Gender: female
Age: 22

Comments:
This is my second treatment. The sideeffects are a bit worse this time, my skin is extremely dry, my lips seem to be falling apart, and -worst of all- sex is a little difficult because im so dry. Hope it wont get worse. Does anybody know where I can buy Roaccutane to a fair price on the net? If you do, please respond. And have a nice life, it will get better!!!!

Wendy - 10/18/98 09:50:00
My Email:weidman.wendy@HQEXCH1.elmendorf.af.mil
Gender: Female
Age: 28

Comments:
Hi I have been on accutane for about 10 weeks now and I can see a dramatic difference in my skin and a tremendous difference in my attitude change twards life. I didnt realize how much ance was controlling my self confidence, I was hesitant at first to tr accutane because of all the side effects but for those of you that are not so sure trust me, from a true pesimist its definatley worth the effort. Thanks for having this site, it makes me realize I am so not alone!!!!

Jenny - 10/18/98 07:31:54
My Email:yforever@hotmail.com
Gender: Female
Age: 16

Comments:
I'm in my 12th week of Roaccutane. I have experienced no flaring and no improvements. Nothing is happening at all except for the dryness. Someone please help me or give me info please. I'm on 40mg/day. How does does it "usually" take. I know it varies fro ppl to ppl. Thank-you!

Julian - 10/17/98 14:27:03
My Email:hullianx13@hotmail.com
Gender: male
Age: 16

Comments:
Anybody tried Zinc? Anybody tried the AMBI stuff? Can you tell me about your experiences if you did?

Andy - 10/17/98 07:33:56
My Email:palace30@hotmail.com
Gender: Male
Age: 26

Comments:
Well, it's now 11 days on Roaccutane, and the dry, flaky skin is coming thick and fast! my lips are dry, but not bad at all. I'm still getting regular whiteheads bubbling up, but the spots seem to be getting smaller, or maybe I'm just me imagining they ar ! I have read that the first couple of weeks are usually the worst, I guess this means that it takes a while to get used to the effects, and also, if your skin is going to react badly, then it will be in the early stages. I'll send an update in a few days. If anyone would like to send me thier experience's with the drug, I'd be glad to read them.

Jennifer - 10/16/98 21:03:30
My Email:rward@iol.ie
Gender: Female
Age: 16

Comments:
Congratulations! I was thrilled to see someone who knew what they were talking about. It's really great to know that others are going through the same thing aswell. I have had acne since I was about 11 and have used just about everything ( Panoxyl 5, Dala in-T, Oxytetracycline, Erethromycin, Dianette) over the last 4 years. It was really hard being the only person in my class with spots. You may think this is crazy but I reckon it's character building. You get teased and after a while you just have to rise above it . But then in other ways, obviously it's probably one of the worst things that can happen to a kid. No-one wants to be different from their friends. I started my Roaccutane treatment on July 1st '98 after a month of deciding. My parents left it c mpletely up to me and said they would go along with whatever I wanted. They've been gret as have all my friends. But it's not the same as someone who's been there, done that. I didn't realise how many sacrifices I'd have to make i.e. sport has been comple ely out of the question, I can hardly run up the stairs! I think it has been worth it. I definitely DO NOT regret my decision. I'm still yong and the way I see it I will. hopefully, have clear skin for the rest of my life. I've had my bad days and my BAD ays but you get through it.I'll be finished in just under 4 weeks. I was wondering has anyone had the experienc of instant reults that are absolutely incredible to acne worse than you've ever had in a couple of months? Mine got so bad about three weeks ag it was like sores on my face. It made me so self-concious. I had a few days where I thought I couldn't handle it anymore, but I did (thanks to my mum!).Thanks for letting me get this off my (acne-free!) chest. And a bit of advice to anyone who feels depr ssed: YOU'VE GOT TO TELL SOMEONE. DON'T EVEN DREAM OF TRYING TO GO THROUGH IT ALONE. It's not worth the pain. If you're really low why not write an e-mail tpt this page? Believe me, it's really theraputic!

J - 10/16/98 20:36:33
Gender: Female
Age: 16

Comments:
Congratulations! I was thrilled to see someone who knew what they were talking about. It's really great to know that others are going through the same thing aswell. I have had acne since I was about 11 and have used just about everything ( Panoxyl 5, Dala in-T, Oxytetracycline, Erethromycin, Dianette) over the last 4 years. It was really hard being the only person in my class with spots. You may think this is crazy but I reckon it's character building. You get teased and after a while you just have to rise above it . But then in other ways, obviously it's probably one of the worst things that can happen to a kid. No-one wants to be different from their friends. I started my Roaccutane treatment on July 1st '98 after a month of deciding. My parents left it c mpletely up to me and said they would go along with whatever I wanted. They've been gret as have all my friends. But it's not the same as someone who's been there, done that. I didn't realise how many sacrifices I'd have to make i.e. sport has been comple ely out of the question, I can hardly run up the stairs! I think it has been worth it. I definitely DO NOT regret my decision. I'm still yong and the way I see it I will. hopefully, have clear skin for the rest of my life. I've had my bad days and my BAD ays but you get through it.I'll be finished in just under 4 weeks. I was wondering has anyone had the experienc of instant reults that are absolutely incredible to acne worse than you've ever had in a couple of months? Mine got so bad about three weeks ag it was like sores on my face. It made me so self-concious. I had a few days where I thought I couldn't handle it anymore, but I did (thanks to my mum!).Thanks for letting me get this off my (acne-free!) chest. And a bit of advice to anyone who feels depr ssed: YOU'VE GOT TO TELL SOMEONE. DON'T EVEN DREAM OF TRYING TO GO THROUGH IT ALONE. It's not worth the pain. If you're really low why not write an e-mail tpt this page? Believe me, it's really theraputic!

Michael Garber - 10/14/98 22:14:22
My URL:don't have one
My Email:flubb1@hotmail.com
Gender: male
Age: 14

Comments:
Hello, I have been on Accutane for a little over a month now, and my face isn't horrible, but it's not real great yet either. It's really starting to get annoying standing in front of the mirror for 2 hours every morning, Anyone that has been on accutane can you tell me when my face will start looking any better? PLEASE someone. Oh and also I want everyone to know that this stuff does work really great. My brother took it like 4 years ago, and his face is completely clear, and he never get's zits. Well ood luck with accutane if your on it.

Christer - 10/14/98 18:42:51
My Email:skicka63@hotmail.com
Gender: male
Age: 23

Comments:
********Depression******** Have been two times on roaccutane and after the second time I feel like I wanna die. The depressions I got is that deep that I dont know where to go really. The hurt in stomach is very strong and the body feels very week almost in schock-state. Have any o you had these experiences? My hair is also totally losing. None of these effects where after my first course. I was very happy before and a top-student in school, now I just wanna quit school. The suecide-thoughts appears often. I regret this a lot that took the tablets and if this wont pass I hope I will have nicer life in next life. Please, if you have experinced things like this respond to me. Thanks.

James Bonick - 10/14/98 11:19:36
My Email:minemole@nbnet.nb.ca
Gender: Male
Age: 17

Comments:
I do not belive that alcahol is an instagator of side effects. Just that it wreaks havoc along with the accutane (or roaccutane for you brits) on the liver. How much havoc is wreaked im not sure of as there is no warning against alcahol on the info pack o the package insert here in Canada or the US.

Andy - 10/14/98 06:39:23
My Email:palace30@hotmail.com
Gender: Male
Age: 26

Comments:
Great site Gill ! I have just started my second week on Roaccutane, so far I haven't had any nasty side affects, my lips are a little bit dry, and my skin is quite flaky in places, I think the drug is just starting to get to work on reducing the oil produ tion in my skin, so I've started using E45 cream on the dry area's. I'm wondering if I'm not suffering any bad side affects because I don't drink any alcohol ?? I'll write again in a week or so.

Shirl - 10/14/98 04:01:22
My Email:cyberchicky@juno.com
Gender: Female
Age: 43

Comments:
I recently finished taking Prednisone for a poison rash and then developed acne-like symptoms all over my chest, neck & face. Ton of tiny whiteheads surrounded by redness. The dermatologist thinks it may be related to the Prednisone. Has anyone had this xperience? I didn't have even one blemish before this. How long will these symtoms stick around after stopping the Prednisone? Please respond.

- 10/13/98 14:38:33
Age: 28

Comments:
Blisteze cream works really well for your lips, better than greasy chapsticks which aren't absorbed. You can rub it into the skin around your mouth too. It won't block your pores, and it's medicated, so it helps the skin heal.

Ace - 10/13/98 08:21:42
Gender: Male
Age: 23

Comments:
I've been for roaccutane for about 3 months now (currently at 80mg/day) and the results have been reasonable so far. The main problem I have is the area around my mouth , where the skin is very sore, red and peeling. I use a gentle-soap free facial wash ( on-comedogenic, hypo-allergenic, perfume free) and a dry-skin moisturiser (again same as above) but cannot seem to beat this. It makes it hard to smile, for example as I am afraid to the skin 'ripping open'. Some has told me about E45 facial wash (which apparently is just moisturiser that lathers up) I don't know if this is any good, my main concern being that it may not be non-comedogenic (non-pore blocking) Has anyone else experienced this nasty side effect, and how did they overcome or control it - Please help !!!

Matthew - 10/12/98 04:42:30
My URL:http://www.oocities.org/SouthBeach/Jetty/2043
My Email:mv200098@yahoo.com
Gender: Male
Age: 15

Comments:
Here's my story. I never really had acne that bad until I was almost 13. I did have one or two all the time, but then the Christmas before I was 13, then I had 2 big cysts to come up. Well, I went up to this little crappy clinic in my small town, and t ey prescribed some crap for me, and it didn't help at all, then up came another cyst. A month later, I went to a real dermatologist, and he prescribed accutane for me, but he didn't give me a blood test, and everybody I've ever know to take it has had to have a blood test. Anyway, I was on it for 5 months and on a horrible diet, I was practically eating bread and water. The only side effect I had then was that I went into a huge depression, that I just have got out of. Plus whenever I went to school, pe ple looked at me like I was some kind of freak or something. Well, my face cleared up, and he gave me some antibiotics, and told me to come back if it ever started to get worse, well, the stuff didn't work, so I switched doctors, and he just put me on acc tane for the second time, and now I have to give blood tests every month. I think I'll like this doctor, after all he's almost completely cleared up my cousin. I've only been on accutane this time for a week, and I can tell a difference already! I'm no in a depression, but however, I am a little fatigued, I rode my bike for 2 miles today, and I thought I was gonna have a heart attack. Usually I can ride 6 without it even phasing me. I believe that I'm on the road to recovery, and I'll come back later and write about how I'm doing then. Well, it's 11:40 here, and I need to get to bed. Later y'all.

Rebecca - 10/11/98 21:29:07
My Email:bheidt@hotmail.com
Gender: female
Age: 24

Comments:
Hi! I had a question to all you women out there who have had a child and developed acne since your pregnancy. My child is almost four and my acne is now at the point of needing Accutane. I had perfect skin my whole life until I had my son. Now I am ha ing to deal with this skin problem. Has anyone else noticed the same pattern. Child then acne? Please let me know! I am curious.

Rebecca - 10/11/98 21:29:06
My Email:bheidt@hotmail.com
Gender: female
Age: 24

Comments:
Hi! I had a question to all you women out there who have had a child and developed acne since your pregnancy. My child is almost four and my acne is now at the point of needing Accutane. I had perfect skin my whole life until I had my son. Now I am ha ing to deal with this skin problem. Has anyone else noticed the same pattern. Child then acne? Please let me know! I am curious.

James Bonick - 10/11/98 01:17:27
My Email:minemole@nbnet.nb.ca
Gender: male
Age: 17

Comments:
hello My experience with acne began last may. before then I NEVER had acne at all. the acne came quickly and hit hard, the shock sent me to my GP after a month af all th over the counter stuff I could get my hands on. She prescribed peeling agents (benzoil eroxide and tetracycline) and shortly after that minocycline. None of these worked so at the beggining of september I went to a dermatologist who prescribed accutane. I was on 20mg a day for 3 1/2 weeks, and for the last week it's been bumped up to 40mg/d y. I have a couple of questions can dark spots be scars (some people mentioned on this page of "the red mark type of scar). my second question is about alcahol use and accutane, this is my first year of university and drinking is a big part of life here. If it is such a big deal why is it not mentioned at all in the package insert or the information pamphlet!!?? I drink but am otherwise very health concious, i\I eat very well and am very involved in sports. If somone could fill me in it would be nice. Thank you

Darlene - 10/10/98 03:13:17
My Email:Darlene@comports.com
Gender: Female
Age: 30

Comments:
Hi Everyone, This is my second time writing to this site. I'm now in my 5th week of Accutane. I was wondering if any of you that may wear contacts have had any problems wearing them while on your treatment? I'm really concerned about this because I read that you may not be able to tolerate contact lenses even after treatment. Also can anyone suggest a good cleanser and moisturizer? I would really appreciate it if anyone has any advice or information to share via email. Thanks so much! Darlene.

Candace - 10/09/98 20:26:33
My Email:rmarlin@avalon.net
Age: 49

Comments:
Is anyone familiar with obagi products. We know its expensive but quite possibly very helpful, especially in lessening existing scarring. Is it available only through certain dermatologists?

Candace - 10/09/98 20:20:22
My Email:rmarlin@avalon.net
Age: 49

Comments:
My daughter, a college sophomore, and I visited a dermatologist in Des Moines, Iowa, today. Treatment with accutane for cystic acne will begin in a month if a new regimen of minocycline and new topicals don't help her. She's developing some scarring on her cheeks. She wears contacts and is a singer. What safeguards can she take against the immediate side effects? So glad to discover your home page. Thank you.

candace - 10/09/98 20:11:21

Comments:


dawn - 10/09/98 08:21:24
Gender: female
Age: 37

Comments:
Gill - great website! You may want to add this site to your links: the UK based "Acne Support Group" (which you can join even if not resident in Great Britain): it also has a couple of free factsheets: http://www.m2w3.com/acne/what_is.html

dawn - 10/09/98 08:21:11
Gender: female
Age: 37

Comments:
Gill - great website! You may want to add this site to your links: the UK based "Acne Support Group" (which you can join even if not resident in Great Britain): it also has a couple of free factsheets: http://www.m2w3.com/acne/what_is.html

Jochan - 10/07/98 21:00:31
My Email:cosmic888@hotmail.com
Gender: Male
Age: 19

Comments:
Hello to everyone.My course of Roaccutan started 15 days ago and after 4 years of acne.The worse period of my life was last year when i had a face which was terribly red with a lot of white heads.I have tried all other methods like creams,gels but with th se topical solutions my skin was becoming even more red and ugly because they were "burning" it in a way.Then i moved to antibiotics (Minocin,hostacyclin etc).But i used them a lot of time (over 8 months) and the effects were too short.Only 3 months of cl ar skin and then the same story,acne came back.So i decided to go on Roaccutan.I learned about all side effects and my dermatologist told me that i would be completely cured with it.I am now at 2 pills of 20 mg and 1 of 10 mg everyday .Of course the spots now look awful but that's the initial part of the treatment.The first positive results are visible after the first month.I have NO nasty (and i mean it) side effects.The only thing till now is that my lips are kind of dry but i am used to it and i can han le the problem with an usual lip balsam. No pains,no bleeding,no other stuff. And i know a lot of people that had no side effects apart from the dryness.Of course there are some restrictions while taking the drug like healthy diet ,sun restriction and mon hly blood tests so that your doctor will be able to check if you can handle the drug. I have a lot of time yet till i will have my acne cured but i see the whole situation very optimistic and of course i am looking forward to have my skin cleared . As soo as my treatment will be over i am gonna sign again.Wish to all of us good luck oh and a piece of advice.If you don't want to take pills ,just have in mind that the best natural treatment for acne is the sun.Just a few minutes daily ,do wonders for the sk n (but of course if you are on Roaccutan you HAVE TO AVOID SUN).And always choose a good dermatolist to start your treatment :)

Colin - 10/07/98 16:29:13
My Email:mmmp8crr@stud.man.ac.uk
Gender: male
Age: 18

Comments:
I've had acne for approximately three years. I've been throught most of the other courses of therapy e.g. oxytetracycline, erythromycin, zineryt and quinoderm cream which have only had a temporary effect on my acne condition which covers my forehead, mout region, neck, chest and upper back. I started taking Roaccutane on the 28th Sept 98 with a dose of 25mg morning and night. On the instructions it says to take with food or milk - why is this? (I'm worried about stomach ulcers.) The dermatologist put me o a course of eight weeks but I have read that the drug is processed in the liver - will this course of treatment course any long term effects to my liver? I have experienced flakiness of skin around the mouth area and my eyes have become drier - will thes side-effects disappear or will they remain for the rest of the course? Also, I've had no notification of any one month blood tests or does that only happen in the US? (I had an initial blood test to make sure the fat levels were not too high.) Thank you or taking the time to read this and I would welcome any comments and advice.

sharon - 10/06/98 11:20:31
Gender: female
Age: 29

Comments:
This is for Nele. I mentioned in an earlier posting that a person shouldn't drink alcohol while on accutane. In the simplest terms, accutane is processed through your liver. So is alcohol. (which is why alcoholics could develop cirrhosis of the liver) Alcohol puts an additional, and unneeded, stress on your liver. When you get your monthly blood tests (which you absolutely should be getting) the heath of your liver is one of the things your doctor is monitoring.

Mina - 10/05/98 13:30:12
Gender: female
Age: 22

Comments:
I've been on roaccutane for about 10 weeks now, and there has been alot of improvement. However i have noticed that i now get smaller zits which occasionally flair into spots. The only side effect i have suffered is dry lips and dry skin, so it it doesn't seem that bad.

Jenny - 10/05/98 10:10:59
Gender: Female
Age: 21

Comments:
hi, I have been on Roaccutane for about 3 months and have seen some improvements, my acne have gone but there are still lots of red spots or something that looks like rashes on my cheek, can anyone tell me how long does it take to disappear and will it di appear? Thank you.

Nele - 10/03/98 13:13:40
My Email:nele.poelmans@student.kuleuven.ac.be
Gender: female
Age: 20

Comments:
I started taking Roaccutane 2 months ago, and it seems to work. I 've read now on this site, that you shouldn't drink alcohol. I didn't know that; it's not mentioned in the precautions, and my dermatologist hasn't told me. Is there someone who can tell me more about it?

gil meir - 10/02/98 20:11:07
My Email:gilme@walla.co.il
Gender: male
Age: 13

Comments:
did you recommand to me "reoccutan" its good" its no dengerous thanks gil (israel)

Tim - 10/02/98 10:00:28
Gender: Male
Age: 19

Comments:
I just finished my Roaccutane treatment and the one week I had that my back was not covered in cystic acne was the happiest week of my life. Unfortunatley now my acne has has come back. I have another appointment with a dermatologist to go on some antib otics. As I can't do back on Roaccutane for a while. So I think the Roaccutane was successful in cutting down the oil, but I must have a poor imune system that causing the acne now.

Julian - 10/01/98 19:18:56
My Email:hullianx13@hotmail.com
Gender: male
Age: 16

Comments:
I was very frustrated about my acne-which keeps getting worse. I don't have cystic acne or many pimples-but my face is full of blackheads. Does anyone know how I can get rid of my blackheads. Are the blackhead removing strips safe -or do they irritate ne's skin? Also, I started using this cleanser-unfortunately it irritated my skin and seemingly killed it. It produced redness-which was normal at first. I still have redness-how do I continue with the treatment that I used to use (Which worked) without irritatin my skin more? I also started taking Zinc, two weeks ago, (100mg a day), but my skin is awful. Isn't it supposed to be working? Help!

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