To subscribe to the discussion and support list for MALT/monocytoid lymphoma, send an empty message to nhl-malt-subscribe@yahoogroups.com. (By an empty message, I mean nothing in the subject line, and nothing in the body of the message. If on AOL, place a hyphen in subject and message space, as AOL will not send empty messages.)
To unsubscribe, send an empty message to nhl-malt-unsubscribe@yahoogroups.com
This list was started in 1999, and you can browse thru the archives at the yahoogroups.com website.
If you would like to follow the announcements regarding the latest research for low grade lymphomas, Ben Haines' list is the place to be.
To subscribe: send an empty message to nhllow-subscribe@yahoogroups.com. Or you can follow the messages from the archives: go to yahoogroups.com and do a search, then enter the nhllow list.
To unsubscribe: send an empty message to nhllow-unsubscribe@yahoogroups.com.
For those interested in alternatives and complementary treatments, there is a NHL list for discussing them and sharing experiences. To subscribe, send an empty message to nhl-info-subscribe@yahoogroups.com
The oldest NHL list is run by Scott Pollock, and was created for all lymphoma types. This list does not have a rule against chit chat and has a very high message load. It can be of particular use to people going thru treatments or a health crisis and needing a lot of support. To subscribe, send a message to nhl-request@jubjub.wizard.com. The subject line should say SUBSCRIBE. The body of the message should read SUBSCRIBE TO NHL LIST.
Useful links:
www.lymphomainfo.net/nhl/types/mzl.html
www.moffitt.usf.edu/providers/ccj/v4n3/article6.html
oncology.about.com/health/oncology/library/weekly/aa110300.htm
www.pathnet.medsch.ucla.edu/med-edu/pathrev/MALT.htm
www.thedoctorsdoctor.com/diseases/lymphoma_monocytoidbcell.htm
Books:
A series of articles by a MALToma patient was published by Self Magazine, starting with the August 1996 issue. Eventually, it was turned into a book called Living in the Lightning : A Cancer Journal by Natalie S. Robins. Amazon.com carries it.
Non-Hodgkin's Lymphomas: Making Sense of Diagnosis, Treatment and Options by Lorraine Johnston, Linda Lamb(Editor) came out recently. It is written by a wife of a lymphoma patient and is very informative.
Also check out the several cancer books by Wendy Harpham M.D. who has been dealing herself with lymphoma for many years now.
Researched by Vera Bradova © 1999-2001
Updated 9-2-2001