Volume II
Volume I
Volume IV: C.P. related Guestbook Entries from 04/19/98 to 12/01/98
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Catherine - 11/24/98 18:21:04 My Email:cnh.cottle@thegrid.net | Comments: I'm 37 & have C.P. in my right side. I'm glad to hear someone else talking about C.P. & aging. I went to a seminar 6 months ago on C.P. & the doctors seem to be beginning to look into it seriously. They do not know much right now. Keep up the good work! |
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Carlina Wilkes - 11/23/98 21:32:59 My Email:cwilkes@bamarplastics.com Interests: need to know more about this disease | Comments: I viewed this site looking for information about this disease. My husband and I are adopting a little girl who was born with this disease. We have gotten alot of help but I would just like to read some general information on it. Thanks |
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Casie Gray - 11/18/98 14:57:47 | Comments: I'm looking for information for a report in my psychology class and I wanted to know what it was like to have CP. I picked this topic because my little cousin has CP and so does my uncle, and I wanted to know what it is and how it happens and anything el e I can find about it. Thanks for your website, Sincerely, Casie Gray. |
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Rick Kreiling - 11/13/98 18:49:50 My Email:rdk@prairieweb.com Interests: Computers, Camping | Comments: I was surfin' the 'net and found your homepage. I am 41 with a mild case of CP. I have to walk with crutches, but that is about all. Keep up the good work. |
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C. McGriff - 10/30/98 21:01:53 My Email:NSGL65A@prodigy.com Interests: many From:: Florida | Comments: Tell me what type of medical advancements you would like to see, wtih regard to future treatment for this condition. |
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PAM PINE - 10/26/98 17:48:21 My Email:PAMPINE@HOTMAIL.COM Interests: SPORTS AND FAMILY From:: KANSAS | Comments: i HAVE AN 8 YEAR OLD SON WITH CP. HE CAN'T SPEAK AND HAS SPASTICITY IN HIS LEGS.HE CAN WALK BUT USES A CHAIR FOR MOST OF THE TIME. HE IS VERY BRIGHT AND IS A STRONG MINDED YOUNG MAN. HE WORKS HARD EVERY DAY JUST TO GET AROUND. HE HAS A LOT OF FRIENDS AND A GREAT BIG SISTER.I JUST WANTED TO TELL YOU I WAS INSPIRED BY YOUR PAGE.THANKS PAM PINE |
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Ashley Ritchie - 10/18/98 05:22:37 My Email:nikkiritchie7@hotmail.com Interests: hanging out, chatting, and havinh fun From:: ashley | Comments: hi i wanted just wanted to let you know that i think your sight is one of the most interesting one that i have come across I have viewed it and i really hope that everything works out for everyone that has wrote you because i am 17 years old and just rece tly was injured in a really bad car accident i feel lucky because all that happened was i broke my thigh bone but knowing how much worse it could have been makes me want to give people new hope from a different perspective, to sum it all up for you if you looked at me then looked at my car you would wander why i wasn't dead (i hit a tree) this is why i feel it necessary to show people a different side of pain. I was a dancer before everything happened now i am currently spending three times a week in ther py to regain full use of my leg, just recently i returned to a dance session, akthiugh it was limited it was still amazing, because my wreck occured only one month ago and my bone is still broken, so please mail me at nikkiritchie@hotmail.com listen to th positive side of things , "There is hope!" love ashley (aka-TY_REE) |
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John Jones - 10/11/98 00:45:26 My Email:littlejohn@seacove.net Interests: CP From:: Texas | Comments: I have a minor case of cerebral Palsy. I knew other people had it but until I read your page I really felt like I was in a place where people understand. I am a 26 year old male getting a bachelors degree in psych. Thanks for creating this page it real y helps! |
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Laura - 09/23/98 02:32:05 My Email:riffy@swbell.net Interests: teaching cp kids From:: Kansas | Comments: I work with Severely Multiply Disabled Students. Several have CP. I want to help them become more independent. If you have any articles that would help please e-mail them to me at the above address. I am having many successes but I'm never too old to earn some new tricks. Thanks. |
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Pat Janousek - 09/13/98 21:32:57 My URL:http://members.iquest.net My Email:pattti@iquest.net Interests: Fishing, Computers From:: Indiana | Comments: Hi, I am on the net to gather info on C.P. I have C.P.; and besides you, I am the oldest living C.P. survivor I know. I am 54. I was not suppose to live beyond age 2, but God had a plan, I just haven't figured it out yet. I am going to college and writing an essay about C.P. If you have any tips, please let me know. My paper is due Sept. 16. Pattti |
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Chris - 09/06/98 20:50:07 My Email:horsey_83@yahoo.com Interests: Horse riding + Camping From:: Havelock, NC | Comments: Over this summer I met someone that I'll never forget, I guess it is like we both fell in love with each other. I don't see why a lot of people don't want to be near someone who has CP, it's not like they are going to get it to. Kelli has a mild CP, her m in thing she does is run into walls or trip walking up steps. She also has I think it is called 'twitching' where her eyes move back and for at like 50 mph, so she is very sight disabled. But I see past that, and love her for who she is. I am probably bor ng you all, so see ya later! |
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Carla MacInnis - 08/20/98 23:58:33 My URL:http://www.brunnet.net/terrier My Email:terrier@brunnet.net Interests: Almost Everything! :) From:: New Brunswick, Canada | Comments: Great Site. I've bookmarked it for a future tour. Like you, I'm aging with c.p. I've written a few articles about it. I'm a free-lance writer, contributing to Ability Network Magazine - http://www.ability.ns.ca Have a great day! Cheers! Carla |
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Michele Leber - 08/12/98 02:23:59 My Email:michele@enter.net Interests: My handsome hubby, my CP, birdfeeding/birdwatching, the Libertarian Party, computers | Comments: Just toured your site. Found it be quite informative, supportive, stimulating. Keep up the good work. I'll be back! Us baby-boomer, CP adults out there need to unite. As I see it, if we're not part of the solution then we're just part of the problem |
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Christyna Hunter - 08/01/98 20:31:00 My Email:chunter2@osf1.gmu.edu Interests: Animals, Reading From:: Virginia | Comments: I am a 23 yr. old woman with mild cerebral palsy that resulted from a difficult birth. I am about to graduate from college. I have enjoyed reading this webpage because I have discovered that I am not alone in having mild CP. I often felt I was the only one in the world! Now I see that CP affects different people in a variety of different ways. It is comforting to learn about others' experiences. I plan to check in to this site often. |
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Tammy Ramey, a.k.a. "Texas T" - 07/31/98 00:09:30 My URL:http://www.oocities.org/BourbonStreet/Delta/2674/index.html My Email:ms.texast@mailexcite.com Interests: learning more about diffent things, reading, writing my novel, I have been working on one for several years now, my job, and the love of my life, and a wonderfuly awesome man, my boyfriend.signifigant other, "Southern Man®" learn more ab ut us, by visiting our page thru my web pages... From:: a Texan who now lives in Monroe, Louisiana... | Comments: please let my know more about you, I have CP also, it effects my left side of my body, and the right side of my brain. I had surgery to stretch, or correct the short muscle in my left leg, so I could walk better, I have a limp that goes from barely notica le, to very noticable. I am 29 now, and the surgery was at least 20 years ago, I graduated from hight school, a year later than most my age, and now I am thinking of doing my own CP page. You have imspired me!!! Talk to you so, please email me....Would l ve to chat..or ICQ me at 4458175.... |
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Angela - 07/13/98 03:59:58 My Email:adgould@adnc.com Interests: computers | Comments: Thank you for inviting me down. Like you I am finding out more about CP and aging. Like is this affecting my hormone levels. What about chronic pain? and the list goes on. Any info I find I will pass it on. One thing I have researched is Botox Inject ons. The NIH does not reccomend it for adults with CP because it is unsure how the body matabolizes botox. It is also not recommeded for large muscles. Angela |
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Nils Bjerke - 07/09/98 20:20:14 My Email:nbjerke@online.no From:: Oslo, Norway | Comments: I am a 28 year old man with CP mostly affecting my left side. I believe it’s called spastic hemiplegi (?) All my life I have been very active, walking and bicycling. My expirience is that the training has helped improve balance and muscle-strength. In the last two or three years I have expirienced a little more spasticity in my legs. I am from Norway. Some specilalists in my country says that an too active lifestyle (exercises and training) might cause my CP –condition to get worse. Please let me know if there are anyone with similar expirience -use my email. Finally I would like to say that you have a ve y interesting site here! |
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Mary Dilda - 07/09/98 17:55:13 My Email:rdilda@swbell.net Interests: Sewing, Gardening | Comments: I am 46 years old, born with a tumor on my upper spine. I have a form of CP. I have been on crutches for over 30 years after corrective orthopedic surgeries. My shoulders are worn out, I have had surgery on the left. In the last six months I have gott n considerably weaker. I have trouble getting up out of a chair, etc. I have to use my crutches all the time. I do ride an exercise bike at least 15-20 miles a week. I have not found a doctor that knows what to do. I am seeing a Neurosurgeon on Tuesd y because of problems seen on the first MRI I have ever had. Any ideas my e-mail is rdilda@swbell.net. |
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Kevin Anderson - 06/24/98 05:30:51 My URL:http://members.tripod.com/~Kevin_Anderson/ My Email:Lightamir@Geocities.com Interests: Cerebral Palsy From:: Huntsville, Texas | Comments: Hello, I'm a 22 yr. old college student at SHSU and I have a slight case of CP on my Left and I doing really well for myself. I graduate in August 1998. I'm excitied to get out the real world! I love to see that there are other people with CP. It make me feel like I'm not the only one with C.P. trying to make it. Good Page! |
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Michael Larish - 06/18/98 17:34:16 My Email:Michaeljfox@juno.com Interests: "God" Wine woman and song. Ha! Ha! From:: Phoenix, Az.1337 E. Wickieup Ln. | Comments: I'm a 48yr. old Male with C.P. with changes taking place that happen until much older. Looking for information about C.P. and aging?? |
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Janet Fitzjerald - 06/11/98 14:06:00 My Email:mjfitz@haysco.net Interests: Athetoid CP From:: San Marcos, TX | Comments: I am a 34 year old female with mild athetoid CP seeking information. I am happily married and function well in the work place (health care). Thank you for your efforts. |
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Ronnie - 06/06/98 15:40:07 My URL:http://expage.com/page/ronniem My Email:RMeisheid@aol.com Interests: Cerebral Palsy, adults & aging From:: Orlando FL., USA | Comments: I have found your Web-Site very interesting, I'm 54, having been born with Cerebral Palsy..... I too have found very little information, on Aging & C.P. and other's who I have talked with also find very little too .... I would enjoy exchanging Ideas about C.P. with anyone who is interested and hope they find my Homepage of some help, as i'm always trying to ad more Links of information, on many subjects and places ...... I've added your link today, as we all search for nswers and new friends ......... Ronnie |
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Metal Tiger - 05/25/98 19:41:42 Interests: multi-faceted | Comments: I am 48 with very mild CP affecting my right side. What I have discovered is the Feldenkrais Method of Movement. That and weight training (Okay, I have been lazy of late but I am ready to get back on track) has helped me greatly. My knees have really impr ved (The muscles surrounding them are getting toned) |
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Jo Jackson - 05/09/98 15:39:50 My URL:http://geocities.com/Heartland/Pointe/8301/ My Email:jjackson796@msn.com Interests: cooking-Genealogy-family | Comments: I saw your page while looking for C.P resources. I'm nearly 65 and from my experience it just progresses a bit. I can't move around as much as I used to, but thank goodness for computers. My mind is better than ever. I guess I'm one of the luckey ones. Th nks and please visit my page. Jo |
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salvin Ficara - 05/04/98 16:55:17 My Email:Salvin Ficara@spldcol.edu From:: Springfield Ma | Comments: Hi Pierre. I wanted you to know our pilot study propsal to do research on CP and aging is on its way to completion. I wuold welcome your feedback on it,If you would like to give us some feedback feel free to contact me. |
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Susie - 04/30/98 02:22:47 My Email:galloway@flash.net | Comments: I am excited to be teaching a young man with cerebral palsy next year (grade 3). I want to learn more about his condition, what are some good informative books? |
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Ray Semczak - 04/30/98 01:11:05 My Email:Ray.Semczak@gte.net Interests: Travel, From:: Mi | Comments: I am 48 and have a slight cp. I am a father of two, and will have married for 19 years next month. My daughter, 18 will be gradutate in June from HS, she also has CP. As I was 'surffinf the Web,' I came accross this web site, and I must say, "I'am very impressed!" and will be a frenquent visitor. Keep up the good work! |
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Beth Christensen - 04/26/98 03:43:43 My Email:tar@abacus.net.au Interests: music, reading,all sorts! From:: Cerebral Palsy South Australia | Comments: I work for Cerebral Palsy South Australia. We are looking to hear from anyone and everyone relating to new research, good publications, parenting with CP (both being a parent with CP and being a parent of someone with CP)and aging issues. What happens, hat changes. Send info. to email address or to me at 23a King William Road, Unley SA 5061, Australia Thanks |
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kathy keys - 04/19/98 06:00:03 My Email:kathy118@budsters.com Interests: cp From:: kathy | Comments: hi my little girl has cp in her left side she is 12 now i has been though 3 sugerys on her left heel cord i like to know more about cp kathy |