This was such a busy month. I felt really felt good too! The headache I've had for the past 2 years while on treatment was virtually gone. No more Darvocet!! My energy level has come up quite a bit too. We went to Washington DC at the end of the month for 10 days and walked all over that city. I did need to lay down every afternoon for an hour or so, but other than that (and the pouring rain), we had a great time. I was able to concentrate pretty well, and I even noticed that my words came out of my mouth the way my brain told them to.

The brain fog is still a big factor though. I still can't recall simple things from even the day before. I was hoping it would be getting better by now, but so far no go. I'm beginning to wonder if it is going to get any better than it is right now. I hope it does, as I hate feeling like an idiot when I forget things that should be important...like paying the light bill before they shut it off.

I had my appointment with SSDI to turn in my paperwork on March 10. The lady was very nice, and told me they would pay me back to Feb. 1999, since I had received State disability the year prior to that. Then she told me that IF I were approved, I would hear from them in the next 4 to 6 MONTHS! I went in pretty prepared though, so I have a good feeling about it.

I have gained about 5 pounds since stopping treatment in January. Most of that was probably gained in DC! I can taste food again, and for some reason, still have the exessive need for sugar. When I was on treatment, sugar seemed to be the only thing I wanted and needed. I have to watch that now. I don't want to gain back too much weight, since I shouldn't weigh more than 125 anyway. (I'm a shortie)

Hopefully, we will get my biopsy done pretty soon. I was really wanting to do it in February to get a good reading of what the treatment really did for me. It will now be done next month and that gives the virus 3 months post-treatment to attack. Good thing this virus goes slow. My PCR is now almost the highest it's ever been at 1.2 million. I have to remember that it is just a number!

The insomnia is back. It's 3 am now as I write this. I go to bed fine, wake up in the middle of the night, and am up for a couple hours before getting back to bed. That makes for a rough day afterward. Of course this is usually when I get my webpages updated so at least being up in the middle of the night is productive!