Pages by Government agencies
CFS Organisations
Advocacy Sites
CFS Information Sites
CFS Sites on the Web
Need a CFS Specialist? After tons of emails asking for CFS specialists all over the world...I'm starting to compile a list of site that will offer many choices for CFS Specialists everywhere

Pages by government agencies

Chronic Fatigue Syndrome Information Page has been put together by the National Institute of Allergies and Infectios Diseases. It is a good overview of the illnesses and current theories about its cause.

A CFS page has been set up by the Centre for Disease Control (CDC), with sufficent information on who gets CFS, popular treatments, ideas on its cause and more.

Overview of NIAID Chronic Fatigue Research Program

The CFIDS Association of America

American Association for Chronic Fatigue Syndrome

CFS Organizations

The Worldwide Electronic CFIDS/ME Action Network (WECAN).

The American Association for Chronic Fatigue Syndrome (AACFS) is a non-profit organization of research scientists, physicians, licensed medical healthcare professionals, and other individuals and institutions interested in promoting the stimulation, coordination, and exchange of ideas for CFS research and patient care as well as periodic reviews of current clinical, research and treatment ideas on CFS for the benefit of CFS patients and others.

AYME is the Associtation for Youth with Myalgic Encephalomyelitis, based in England.

The CFIDS Association of America is the nation's leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS).

The National CFIDS Foundation, Inc. in America was founded in February 1997 by two 14 year activists of the CFIDS movement. The goals of the Foundation are to help fund medical research to expedite a treatment and eventual cure, to provide information, education, and support to those people who have CFIDS and related illnesses including FMS, GWS, and MCS.

Two Australian links: The Northern Rivers ME/CFS Society web page, with details of supports groups in northern NSW and southern Queensland; and the ME Society of NSW has a web page, with info on becoming a member and services available.

MPWC Is Medical Professionals With CFS. This group was formed in 1993 by Gail Dahlen and Meghan Shannon to give MPWC's an opportunity to coordinate their efforts, support each other, and make a difference for all PWC's.

RESCIND ("Repeal Existing Stereotypes about Chronic, Immunological and Neurological Diseases"), Inc. is a non- profit 501(c) 3 corporation. RESCIND's primary goal is to change the name "CFS" to something more accurate and less pejorative.

The Chronic Syndrome Support Association, Inc. is a 501(c)3 non-profit corporation. It was founded in order to educate the general population and health-care professionals who lack current knowledge of the research being done, and potential research that needs to be done,Ê on these serious, yet invisible, conditions [CFS and others].Ê It is our goal to promote awareness of these conditions, and in the process we hope to contribute to the growing body of knowledge about them.

Mediconsult Another great resources for CFS Sufferers.

Advocacy Sites

Listening to CFIDS: Works by PWCs and others who care has, among other things, a postcard utility where you can spread CFS awarness by sending postcards to others on the net.

The Memoriam Site for PWCs is a list of CFS sufferers of all ages. Add yourself or a sick friend and help remind everyone of the pervasiveness of this disease - both sexes, all ages.

WECAN has got a special May 12, 1998 CFS Awareness Day site going, with details of the Washington Rally and people's efforts from around the world.

B.R.A.M.E., Blue Ribbon Awareness for ME.

CFS Information Sites

Jaime has compiled and categorised many CFIDS-related sites at the Chronic Fatigue Syndrome Info Source .

The CAMEO Survey needs PWCs to fill out its questionnaire so accurate information on the symptomology of CFS can be gathered.

Moira Smith's Canberra Fibromyalgia and Chronic Fatigue Syndrome Page contains information on how to find Aus/NZ support groups, how to join various mailing lists and newsgroups, and a huge collection of links to useful websites all over the world where people can find information on the symptoms and management of FM, CFS and all the rest. It also contains four fairly long book extracts on how to manage your FM or CFS; the text of an excellent booklet from the ACT ME-CFS Society on Coping with CFS; factual articles about what CFS and FM are; six personal stories; a page of links to articles by people like Cheney and Lapp, including stuff about managing the illnesses and their symptoms; plus a page of links to articles on chronic pain management.

Gossamer's CFS page has an Open Letter to non CFS Sufferers, where the problems and thoughts of people with CFS are explained.

Jenn Munn's extensive CFIDS Site contains information on research, recent media mentions of CFS, and her own experiences.

Mary Schweitzer has written an article explaining why the CFS community hates the 'F Word' - Fatigue - so much. Read about it here.

From the M.E. & F.M. Manual are Charts showing the differences between ME and depression, the difference between ME and FM, effects and recovery rates, and the percentage of people able to return to work full- or part-time.

Abstracts presented at the Sydney 1998 CFS Conference show strong support for the case of CFS as a physical illness, and some interesting information on possible causes.

Robyn's CFS Index is one of the premier CFS web pages, having won both an A-List and Featured Page award from Geocities. Her NMH page is one of the biggest Neurally Mediated Hypotension information sites available on the web.

Ted Shaw's CFS Pages include a database of 1100 papers on CFS with abstracts categorised into 58 topics.

"Somebody help M.E." is an easily read, comprehensive book about living with CFS/ME. Written for young people with CFS and their families, information about it can be found at the AYME (Associtation for Youth with Myalgic Encaphalomyelitis) web page.

CFS Sites on the Web
Chronic Fatigue Syndrome FAQ

Chronic Fatigue Links on the Internet

Chronic Fatigue Syndrome

CFS Home Page

ME/CFS Links

CFS/ME Information - New Site by Roger Burns

CFS Ring

CFS/CFIDS/ME/... Reference Guide© v1.2

CFS on NCF

ME-NET

ME-NET CFS Resources Page

CFS Front Page

ME-WEB

ME Links

CFS Hot List

M.E. Canada

MEssenger a wonderful monthly newsletter with always the latest information and issues. You can order it on line as it is based in Ottawa, Ontario, Canda. I asked and they said they would ship it anywhere.

MESH Ottawa

The Nightengale Research Foundation - The reseach Foundation founded by Dr. Hyde. This organization is also in Ottawa, Ontario, Canada but Dr. Hyde travels all over the world and has given many many TV and radio shows on CFS/ME

ME Chat Page

Welcome to Alex Chapman's Link Page

ME/CFS Society

Mailing Lists

CFS/M.E. Information

The Cheney Clinic Information Services

Resources, Discussion Groups, Help, Organizations

Links to ME/CFS/FM/GWS Related Information

MJC Online

Chroniclllnet Home

Invisible Disabilities - Chronic Fatigue Syndrome

Brian's CFS Page

Dr. Roger G. Mazlen, MD

Pat McClendon's Clinic

The Mining Company

PWC's Address Book

Need a CFS Specialist? Then the CoCure Organization is one source that may help

http://hometown.aol.com/CoCure/co-cure.htm

If you know of any links that offer information on CFS Specialists anywhere, please email me and I'll add a link. Thanks!!

If you are planning on leaving after this page, please sign my guestbook. Thanks!!