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This has been the hardest thing that I have ever been challenged with.  Living with MCS is a very difficult thing to do.  Life has for me taken on a whole new meaning.  MCS is a very challenging illness. So many of the variables that make you sick will be out of your control.  The key to remember I think is to put as many of they variables under your own control as possible.

  • Limiting your exposures is absolutely crucial.  This in my opinion is one of the most difficult things that you will encounter.   It is considerably easier if you do not work.  Working with MCS has a whole set of problems in itself.     If you are fortunate enough to not have to work.  Then I would suggest that you take a good look at your surroundings.  Where are they located? What is nearby?  What materials is your environment made of and prominent there?   What types of products do you have in your home and car?

 

  • If you must relocate be very careful in your choices.  Bad choices would be near any manufacturing companies. A highly populated and polluted city etc.  A great resource for locating possible problems with the environment and giving you all sorts of wonderful information  in which to help you make your choice is Scorecard.org  If you are staying where you are.  Then you must Really look at your surroundings.  You must get educated about the products around you and what chemicals they contain.   You must educate yourself about the dangers in the choices you probably have been making for years.   These are everyday things like what shampoo, conditioner and soap you and your family use.  Cosmetic choices.  I had a hard time with this one in particular.  I did find however there are some really nice beauty products out there that we can choose.  Don't expect that they will be sold in Department stores however.  For a listing of some of the products that I have used and tested personally please visit my page Tolerated or NOT. 

 

  • I felt absolutely lost until I knew what I had.  As with all the people that I have met and corresponded with.  We have all pretty much become sick over a period  of time.  It was not an immediate thing.  Little by little we had more and more symptoms.  For me I started with the headaches that I got every day.  I though this was a normal thing to happen if you had allergies and sinus trouble.  For me I had found that one particular over the counter medicine helped me combat the headaches and congestion with no side affects.  I would take this medicine usually every day.  Then at one point the medicine was not helping anymore.  I went to the Doctor and they tried other things for a period of time- no relief.  They also wanted me to try and pinpoint if I was coming in contact with something that may be triggering these headaches.  For me I found the cause of the headaches.  But when I explained the cause the Doctor's really started shaking their heads.  Well as more time went on the list of symptoms, the frequency of trouble and severity increased.   I was ignorant to MCS.  But what was about to happen would change my life forever.  All of a sudden I started having problems with more and more things.  Like Pine type cleaners and bleach.  I also had troubles going into shoe stores.   I would notice strong smells coming from the drains in the apartment I was staying in temporarily.  I started having real severe piercing headaches when I would go to the mall and now when I come in contact with perfumes and colognes.  It is now very apparent that it is MCS.  I react to all of the chemicals now.   car/bus exhaust, perfumes, air fresheners, paints and building products, hairsprays and scented personal care items, plastics, gasoline, propane, natural gas, ...on and on.

 

  • I have been educating myself and that is a very important thing to do when you suffer or suspect you suffer from MCS.   You MUST read product labels!  You also must learn what chemicals are in the products that you are reacting to.  Then you MUST try and limit if not completely stop your exposure to these chemicals and products.  In allot of cases I know this is much easier to say than to do.   I have found several books that are really good resources for looking up products and also chemicals.   One really good book that is a good starter for MCS is by Pamela Reed Gibson, PH.D, Titled Multiple Chemical Sensitivity- A Survival Guide.  I found this book to be very good for the people who is new to MCS or someone who is thinking this may be them.  Dr. Gibson includes many things that can affect your health whether you are an MCS sufferer or not. 

            for more book ideas please see my page   Books to Check out.

 

 

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