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| ```````````````````````````````````````````````````````````````````````` MANY ILLNESS WE DEAL WITH TODAY HAVE TREATMENTS AND EVEN CURES. BUT THERE ARE THOSE THAT DO NOT HAVE MANY OPTIONS AVAILABLE TO TREAT THEM. SOMETIMES THE ONLY CHOICE IS TO HOPE FOR ONE TO BE DISCOVERED. UNTIL THEN, WE HAVE THE CHOICE TO LIVE OUR LOVES TO THE FULLEST. IT IS A CHALLENGE, MORE FOR SOME THAN OTHERS. AS AN ADULT THIS IS TOUGH ENOUGH, BUT WHEN YOU ARE A CHILD IT IS CONFUSING, FRUSTRATING AND EVEN FRIGHTENING AT TIMES. A POSITIVE ATTITUDE IS VERY IMPORTANT AND THAT IS WHERE PARENTS COME IN ...IT IS UP TO US TO KEEP THEIR SPIRITS UP- NOT AN EASY TASK TO SAY THE LEAST, BUT WHAT EVER WORKS, THAT IS USUALLY BEST. ROUTINE IS GOOD, BUT IT CAN BE BORING.DEPENDING ON THEIR CONDITION AND DOCTORS ORDERS. SURPRISES ARE STIMULATING. VISITS FROM FRIENDS, AND DEPENDING ON THE ILLNESS AND THE DEGREE OF IMMOBILITY- ie: IF BEDRIDDEN, YOU CAN SING AND DANCE FOR THEM INSTEAD OF RUNNING A TV ALL DAY. HOLD YOUR CHILD'S HAND- TELL THEM A STORY OR JUST TALK TO THEM- USE YOUR IMAGINATION AND GIVE THEM SOMETHING TO DREAM ABOUT- I REMEMBER MY SONS, THEY BOTH HAD SEVERE ASTHMA FROM THE AGES OF 4 AND 5. WE WERE RUSHING TO THE EMERGENCY ROOM 2 OR 3 TIMES A WEEK FOR THEIR TREATMENT, THEY WOULD BE FRIGHTENED AT FIRST BECAUSE THEY COULD NOT BREATH, THEN THE SHOTS OF ADRENALINE WHICH WOULD MAKE THEM ILL AND THEIR LITTLE HEARTS WOULD POUND LIKE RAIN ON A TIN ROOF., THEN THEY HAD TO GET BLOOD GAS LEVELS WHICH ARE VERY PAINFUL.. THIS USUALLY HAPPENED AFTER JUST 2 OR 3 HOURS OF SLEEP AND THEY WOULD BE UP ALL NIGHT IN THE ER. FINALLY, IF ALL WENT WELL AND THEIR ASTHMA CLEARED, WE WOULD GO HOME, IT WOULD BE MORNING, THEY WERE EXHAUSTED BUT COULDN'T SLEEP BECAUSE THE DRUGS STILL HAD THEIR EFFECT ON THEM. I HAD TO LEAVE THEM WITH MY MOM AND RUSH OFF TO WORK SO I WOULD QUICKLY TALK TO THEM BRING THEM BOOKS AND GRAB SOME LITTLE MEN (WHATEVER WAS POPULAR) AND GIVE THEM IDEAS WHAT TO DO WITH THEM, "WHY DON'T YOU GUYS MAKE A SET UP ON THE BED AND PRETEND THESE GUYS ARE.HIDING AND".. ETC... SO THEIR IMAGINATION WOULD GET STIMULATED AND IT WOULD TAKE THEIR MINDS OFF OF THEIR PREVIOUS EXPERIENCE. IT IS HARD TO WATCH YOUR CHILDREN SUFFER WHEN THEY ARE SO SMALL AND INNOCENT. ESPECIALLY WHEN YOU ARE UNDER A GREAT DEAL OF STRESS YOURSELF.. I KNOW WHAT IT IS TO SUFFER WITH STRESS, AND STILL DO. THIS IS WHY I HAVE TO READ MY OWN WORDS AT TIMES. WHEN I THINK OF HOW I FEEL, I CAN ONLY IMAGINE THE EFFECT STRESS MUST HAVE ON PRECIOUS, LITTLE CHILDREN. PRIORITIES/Lee |
| QUOTES: ------- Knowing trees, I understand the meaning of patience. Knowing grass, I can appreciate persistence. -Hal Borland "The doors we open and close each day decide the lives we live." -Flora Whittemore |
| ... .There is the hustle and bustle, the race to get by; sometimes life's true meaning tends to slip by- Give yourself a moment to stop, look and see- your heart's true priorites objectively- Only then can your life take on meaning that's true; And real happiness will unbind from within and come unto you. POEM AT BOTTOM OF PAGE |
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| ~~~~~~THOUGHTS~~~~ ON~~~~~CHILDREN WITH~~~~ ILLNESS~~~~~QUOTES~~~~~TIPS~~~POEM~~~~~~~~~~ |
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| POEM-'Serenity': SOMETIMES WE PAY A PRICE FOR LIFE, HARDENED TIMES, THE STRESS AND STRIFE; WE WONDER WHY WE HAVE BEEN PICKED TO WATCH A LOVED ONE WHO IS SICK; PERHAPS WE HAVE THE TROUBLED TIME; WHERE WE CAN FIND NO REASON OR RHYME; THERE IS ONE WAY TO LOOK AT YOUR WOES; FIRST UNDERSTAND 'THIS IS HOW LIFE GOES' SEE YOUR WORRIES, SORT THEM OUT. ROLL THEM AROUND AND ALL ABOUT' LOOK OBJECTIVELY, EYE TO EYE YOU'LL 'SEE' THE 'REAL' YOU WILL SEE THE 'LIE'; THEN YOU HAVE THE UNDERSTANDING YOU ARE IN CONTROL, YOU'LL BE COMMANDING; YOU'LL HAVE THE POWER AND CONTROL YOU WILL PLAY THE MAJOR ROLE THINGS WON'T SEEM QUITE AS TOUGH WHEN YOU CAN SORT OUT 'PETTY STUFF' ACCEPT LIFE CAN'T BE PERFECT, THEN; YOU MAY FIND SERENITY IN THE END. |
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| PRECIOUS CHILDREN- *-one thing to remember- children are a precious gift, their happiness and memories and very lives are in your hands- remember that when things get tough and stressful, take a deep breath look at those wondrous, innocent children count to 10, and just hug them, be thankful for them. If you find things get really out of control (this goes for any situation, not just children) then there is always help just a phone call away, remember that- always remember that. One call for help may change your whole life for the better and save a potentially dangerous situation you may have to live with for the rest of your life. Lee |
http://nccanch.acf.hhs.gov/ National Clearing House for abused and neglected children |
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| CHILDREN PRECIOUS, A GIFT SUBLIME ENJOY THEM NOW, WHLE THEIR IS TIME AS TIME DOES SWIFTLY PASS YOU SEE; THEN MEMORIES ARE ALL THAT BE |
| PARENTS of ill children:: pleases see children's pages 1 and 2 for stoires to read your children and to help them use their imagination when they are lonely or bored |
| Call your local mental health facility, or better yet, the Dept. of Disabilities in your state to see if they have respite care. Perhaps friends or relatives can take turns. Someone who will give you time 'off' so you can keep your own mental and physical health strong by rejuvenation, via a walk, some shopping, attending a hobby or meeting with friends. You can return with a renewed strength. It isn't easy caring for an ill loved one, you need all hte help you can get and the right attitude. With some positive thought, and adding 'fun' into your and your loved ones's life, things may be a bit easier. |