|
|
|
|
|
|
|
|
JUNE 04 |
|||||
|
JAN 05 |
MAR 05 |
||||
|
|
|
|
|
|
|
SEPTEMBER 2004
Julie arrives with Miss Em around
We start by hanging out at the pool, to the
trailer for lunch, then to the beach and then a walk downtown for pizza and the
kids to play in the arcade.
They head for home around
We meet Keith’s Aunt Connie around
Dylan
helps Aunt Aunt
Connie & Dudley & Ian
Connie to the Keith
Restaurant.
We also meet her friend Dudley the artist,
who is painting on the edge of the parking lot.
Last day of vacation and it is another
rough one, Beach, downtown and lounging by the trailer.
Not a bad lookin’ lil home
away
from home
Back to reality, we head for home around
10:00 and arrive around 2:30 and then it’s unpack and check the kids stuff
so that they are ready for school.
It’s a mad dash for school clothes,
seems BOTH of them have out grown everything over the summer. We get most of it
at Target, and then the balance at Sears. $350.00 later they are all set for
Tuesday.
Got
the results of the
|
|
P |
CPK or CK |
Aldolase |
Von Will |
LDH |
AST |
ALT |
|
10-15-03/Wed |
~~ |
516 |
~~ |
~~ |
~~ |
~~ |
~~ |
|
10-22-03/Wed |
~~ |
501 |
15.3 |
- |
527 |
58 |
25 |
|
10-25-03/Sat |
~~ |
130 |
15.3 |
170 |
489 |
37 |
25 |
|
11-05-03/Wed |
50 |
35 |
8.3 |
261 |
322 |
22 |
19 |
|
11-26-03/Wed |
50 |
23 |
6.5 |
301 |
319 |
22 |
24 |
|
12-24-03/Wed |
50 |
36 |
8.1 |
241 |
290 |
19 |
20 |
|
01-21-04/Wed |
45 |
39 |
9.3 |
205 |
265 |
21 |
16 |
|
02-26-04/Thu |
20 |
56 |
7.8 |
107 |
298 |
23 |
17 |
|
04-21-04/Wed |
10 |
92 |
6.7 |
158 |
310 |
26 |
19 |
|
05-10-04/Mon |
9 |
84 |
9.5 |
~~ |
298 |
~~ |
~~ |
|
6-9-04/Wed |
9 |
74 |
7.5 |
196 |
256 |
25 |
15 |
|
7-14-04/Wed |
8 |
79 |
7.7 |
125 |
203 |
24 |
31 |
|
8-26-04/Thu |
6 |
72 |
5.2 |
177 |
312 |
30 |
14 |
|
9-24-04/Fri |
3 |
|
|
|
|
|
|
|
10-14-04/Thu |
2 |
|
|
|
|
|
|
|
NORM |
|
4-175 |
3.0-12 |
5.0-150 |
110-295 |
2.0-40 |
3.0-30 |
This was
the boys ACTUAL 1st day of school, since we
were on vacation all last week. Ian seemed pleased when he got home, but this
is his 1st time switching classrooms for different subjects and it
was a bit confusing.
Dylan
doesn’t seem thrilled at all. Said he was “bored” We’ll
have to wait and see how it goes.
|
|
Here we are the 1st
day of school Ian in 5th
Grade Dylan in 3rd
Grade |
|
|
PREDNISONE |
ZANTEC |
FOLIC ACID |
METHOTREXATE |
|
|
5
mg/day/AM |
75 mg/day/AM |
1 mg M-F/AM |
12.5
mg Twice Daily Saturday
ONLY |
Twice/daily |
|
ADJUSTED |
MEDS |
EFFECTIVE |
|
NEORAL |
|
4
mg/day/AM |
75 mg/day/AM |
1 mg M-F/AM |
12.5
mg Twice Daily Saturday
ONLY |
Twice/daily |
Headed to NHIS finally at
0900. we are going to meet a friend of mine enroute, so that we can get our trailers together.
Arrive at the track at 1130 and head into
the parking lots. The L lot looks crowded already, we are in the U Lot this
time and it turns out to be a GREAT SPOT!! Tho as usual, the parking was a bit
of a horror show.
I inform the attendant that these 2
trailers need to park together and that we have 4 paid for spots and we want to
make sure that we get them all.
After
quite a bit of hemming and hawing, and major pain we get things marked off and
drop the trailers and head for home.
HEAD TO NHIS
W/BOYS???
Mom ended up working today, grabbed the
groceries on the way home, so that we can leave later tonight.
Yep, the
kids get home from school and do up their homework and then Mom loads the car
and we head out, around
We arrive around
The boys and I unload the car and head to
bed.
Not a bad view of the track from
the trailer
This is the closest we have even been
We can hear the cars on the track
whenever they
Go out. AWESOME!!!!!
Today was an awesome day, cloudy but not
cold, we spent the better part of the morning, setting up the trailer,
decorating with flags and getting the grill out etc. etc. Had the damn parking supervisor quizzing the
girl that parked us as to why we had so much room, and where did this (my) car
go to. I told him right here as I leaned out the window and then he wanted to
know where the truck was that hauled the trailer in here. “at home, coming up tonight, why?” and then he finally
went away. Geez you pay for extra space and they treat you like your stealing
it. I saw the supervisor talking to an irate couple a few spaces down from us, it seems to ma someone must have complained about the
amount of space that they got as opposed to the amount of space they got. Hmmmph!!!
My friend Brent and I got my XM radio
hooked up so that I can use it in the trailer, and we also measured up the
flagpole so that I can get some extension pieces for it to make it taller.
Keith did not call until
1st Practice is at
Keith and Mom Ian
playing with new tech
Toy
for NASCAR KANGAROOTV
Then somewhere around
It rained and rained and
rained……. We the die hard fans that we are, we of course
didn’t let this dampen the weekend. We shopped! Only at the flea markets
since all the souvenir trailers inside the track were closed. The truck race actually went off around
Me
in ankle deep water
At
the Trackside Stage
Our site – under water
Race Day!!!! What a difference weather wise. It is clear and sunny with a
blustery breeze.
The race was great, even tho Robbie Gordon crashed my guy. Then back to
the trailer for supper and hanging out, a good night’s sleep and then
head home. Thank goodness we aren’t day parker’s. the traffic was aweful.
HEAD HOME FROM NHIS EARLY AM
Got news
today that my web site here has done what I set out for it to do. It has helped
a newly diagnosed family get some information in layman’s terms. I
received a thank you email from
I spent
the day reloading the trailer for its next trip out on Monday. Dad and his
brother are headed to the race at Talladega,
(his graduation gift from his brother and I) The boys headed back to school to get
a pile of make up work.
Mom is sick with a rotten cold, trying to
avoid the kids so I don’t give it to them.
Also having my 1st
run in with Ian’s new school. It seems that his teachers are less than
helpful about getting make up work together, or even getting it ready ahead of
time as I requested last week, prior to our leaving on the trip.
Ian has done all the extra work that has
been given to him in order to catch up with the class, and even that seems not
to be enough. Ian again came home stating that his teacher says he must arrive
early or stay late one day in order to complete something that he missed in
those 3 days. I have no clue what, or why?? Or even what day does she expect
this to be done???
But the early or late entails a lot of
finagling on our part since we have Dylan on another schedule completely. And
how does she expect him to get there? Or get home since at this grade level
there are no late buses. She didn’t even have the courtesy to send home a
note stating what this was for. Then it got better, Ian says that his homeroom
teacher told them that their midterms are Oct 8th and that he has to
have all his make up work done by then, BUT his math teacher has yet to give him
ANY of his make up work, she hasn’t had time to get it together for him.
How is this possible?? Couldn’t they have gotten it together as they did
it last week?? What is so difficult???
Keith offered to go to Ian’s school
to talk to his teacher, but of course she was in class and would not be
disturbed. She was left a message to call Keith a.s.a.p.
TO DR LAURA –BLOOD WORK ONLY.
|
PREDNISONE |
ZANTEC |
FOLIC ACID |
METHOTREXATE |
|
|
4
mg/day/AM |
75 mg/day/AM |
1 mg M-F/AM |
12.5
mg Twice Daily Saturday
ONLY |
Twice/daily |
|
ADJUSTED |
MEDS |
EFFECTIVE |
|
NEORAL |
|
3
mg/day/AM |
75 mg/day/AM |
1 mg M-F/AM |
12.5
mg Twice Daily Saturday
ONLY |
Twice/daily |
Dad gets
the boys off to school and then heads off to
I have a
very busy day planned. I get out of work at
I have
called the sitter and told her the plan and @
It is a
rainy yucky day here; OK we get to class and my cell phone rings not once but
twice, 1st it is Ian just to tell me that the cats have pulled sown
the curtains in my bedroom, ya
I say and I need to know this now why????.
Ok I head BACK into my class room and it beeps
AGAIN!! This time it is Keith, he and
Lance have arrived at the track, Great thank you but I have to go I am IN class!!! (he is on a different time zone and did not realize) I call
him back at my break.
Class is over at 6:10 and I can’t hang around
tonight, I fly out of class and head for home, I have told the kids to be ready
as soon as I pull in the driveway, because Ian wants to sign up for band and
the meeting is at Taunton High at 7:00 and I need to do some low flying. I
called them to let them know I was only 10 minutes away and to get ready but of
course….
They WEREN’T ready!!! We still made it on
time for the meeting and Ian got his flute, however they have the 1st
instructional meeting next TUESDAY! I have nothing to do any day of the week
BUT Tuesday and when do they have these things hmmmmphhhh
TUESDAY. I’ll get it worked out somehow.l
Well this
week I really am a single mom, I get the boys up, and off to school and head to
work, I have a shortened schedule while Keith is away so that I will be home
when they get home also.
Dylan headed for Colin’s house and Ian and I
headed to Target to do the Baby Shower shopping. That took us a while and I
broke down and got him Wendi’s for supper.
Got the
trash collected and out to the street and then head to the bus stop with Dylan.
Got great
news when I got there,
We are
currently very shorthanded at work and I am pushing my luck by getting Saturday
off, I know I couldn’t have managed Friday too.
Ian has been
slacking off on his reading and is currently buried under quite a bit of catch
up work, some of it of his own making. And since Mom can stay up later at night
with the amended hours, I am all over him. J
Received
no less than 12 calls from Keith today, they are having way too much fun.
|
|
|
|
|
|
|
|
JUNE 04 |
|||||
|
JAN 05 |
MAR 05 |
||||
|
|
|
|
|
|
|
