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JUNE 04 |
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JULY 2004
IAN - -3D CT SCAN
Ok we are
all up in the trailer by 0700, Dad and Dylan are along on this trip. We head
out the door by
We arrive
in
Ian has
decided that Mom will accompany him into this CT scan, since she missed the
last one and Ian says these are “easy”.
We go in
and have the scans done and wait until the films are checked for clarity, etc.
A few minutes pass and we are given the ok to leave.
Keith and
I are discussing stopping at the
With that
done, we are JUST about to head out the door when over the PS we hear
“Ian Allen please report to Radiology, Ian Allen please report to
Radiology” Ok so what’s up with this, don’t tell me that with
their “new” software they have deleted the scans they just did.
Well at least we won’t have to drive back in.
We arrive
at the same desk, and ask about the page. Turns out that the radiologist has
SEEN the scans and wants a few more. Hmmmmmmmm this in my book doesn’t
sound so good. But like Ian said, it is an easy test and we complete round 2 in
record time.
Because
they made us come back, we are given a FREE pass to the parking garage. When
they are done I ask if they are “sure” because Ian has no intention
of stopping anywhere on the way out the door. The nurse puts us in another room
to double check and does take the new MRI’s for them
to look at. When he returns we are given the green flag to go home. Ian grabs
my hand and drags me to the waiting room and tells Dad and Dylan “lets go”
We get to
the elevator and have to wait, only to see the nurse come around the corner and
say “oh just wait up a sec will ya?” then smiles and says
“just kidding” Ian chases him back around the corner laughing.
Ian says
no blood donations today, he has a beach with his name
on it waiting for him in
Ian still
wants to have a campfire somehow, so we decide to borrow the fire pit on an
empty site, no one bothers us and we have smores, for real. Now it’s a camping trip. Well
since mom has to go to work in the AM, she heads to bed, and the boys (all 3)
stay up watching movies.
Well got
awoken by the stupid dog, going spastic, at
Then the storm showed up, well the dog
was so scared, he was awful. The storm was like Armageddon. The rain, the wind, the thunder and
lightening, man I feel bad for all the folks in tents around us. This thing
even took the power out at the camp ground. But the dog is now insane because
of the storm and won’t stop shaking and panting, etc. even the doggie
downers I give him in these situations isn’t working tonight.
Dylan
woke up and since Mom was in the living room keeping the dog quiet, he went up
to sleep with Dad. Ian slept thru it. So much for sleeping in this AM. Never
again will the dog go camping, he just can’t take it any more. (Neither
can I)
Here are a few photos of the trip. Amazingly I did
not take many. It was a very relaxing few days.
here is a view of the inside
ß View of the boys
room
from mom and
dad’s room (they
have 4 beds and their own TV/DVD
player)
Here’s Mom and Dad’s room à
Mom
headed off to work at 0730 and the boys took the trailer back to the house.
They had a blast, and already want to come back.
SUNDAY JULY 4TH,2004
No major
plans, Mom worked and then we headed to the Brockton Fair for the fireworks,
the kids rode a few rides and we wandered around a bit. We got home around
Still
trying to get the CT Scan results, actually talked to Dr Z’s secretary,
and she will call me back if she can get another copy of the results. She said
that they mailed me a copy on Friday and that I should have it today. We shall
see.
Still no
info in the mail. Keith brought the boys to work with him and I took them home.
We ran quite a few errands and then headed home.
Mom is
swamped under things to do, laundry, phone calls, Dr Appointments., to make and
reschedule. It just never ends. Trying to find a cheap ladder since all of ours
have finally given up the ghost. Spent an hour or so on that.
Keith was
busy around the house, taped over the vent that snapped off the trailer while
camping, I have to try and find a replacement for that. Had Keith take digital
pics of it, so I can show it to the guy at the RV shop.
Called
Dr. Z’s office AGAIN, and was told that she would find out and call me
back (gee I have heard this song before and it’s getting old)
The boys
rode their bikes in the AM and headed to Colin’s (neighbor) pool for the
afternoon.
Mom spent
the afternoon spinning her wheels, with so many things on the list of things to
do, I got nothing done.
I called
Dr Z’s office yet again at
She spoke
to Dr Z and he recommends that we see ANOTHER Dr. this one is a bone lesion
specialist, and he is thinking the thing needs to have a biopsy taken. Ok who moved the floor, when is this going
to be enough?? How much more can my tough guy take?? Dr Z’s secretary
gives me the number for the new Dr. and I call to make an appointment, she is
just leaving for the day and will call me back 1st thing in the
AM. I am left to wonder, worry and fret,
for the rest of the evening.
Here
is a link for additional information -
COPIED
from the Children’s Hospital web site
Well
true to her word Dr G’s secretary calls me at 0812. and we schedule Ian for
his next available appointment. Unfortunately it is not until
Another update as of
Ok after an errand or 2 the boys and I arrive home,
Aha!! The “letter” is finally here. While it is not BAD news, it is not GOOD news
either.
“The cystic lesion is not larger in
site than the last exam, but does thin out the lining of the bone slightly.
This increases the risk of fracture with contact sports and probably should be
avoided” (gee I knew that
part already) he then recommends the new Dr. and then goes onto the good and
bad news all in 2 sentences. “This cyst continues to appear of a
BENIGN and safe type but can enlarge with growth, increasing the chances of fracture.
I would say that bone grafting of the cyst along with a biopsy and
possible support with metallic fixation would be a good consideration.”
Great,
that is what I thought would happen, now how do we explain this one??? His leg
doesn’t hurt, but we have to fix it anyway, by taking a piece of his hip
bone and putting it in place of the hole and possibly a metal rod to boot. At
least the summer will be mostly over by the time they may get to it. And I am
not telling him anything until JUST before the appointment.
Hopefully
we can still go to
IAN - -DOWN TO 7MG PREDNISONE (4 WEEKS)
Height growth should resume sooooooooon J
I emailed
the new Doc with some questions, while in his reply he didn’t give me
much information, he DID tell me that if he does a bone graft, he uses bone
form the bone bank and NOT from the patients own hip. That in itself makes me
feel better.
Ian had a
friend sleep over, and Dad will drop the 3 boys over at the friend’s
house around 0900 since he has to work tomorrow also.
Mom gets
all the errands done on the way home, since the boys are at a friend’s
house. They have spent most of the day
in the pool and playing video games. And neither one wants to come home when I
finally arrive at
We have
all the chores done by 0800, and then hop in the car for our trip to
I gave
Dylan his birthday gift early, since I knew it would help on the ride home. He
finally got the Game Boy SP he has been waiting for, and 2 new games.
We were on the road at 0813 and to
I had
been under the assumption that Keith had gotten a hold of the family that we
had headed to
Then when
I asked if he had spoken to Bruce and Ellie, (relatives from
Dad and Dylan Dad, Dylan & Ian
But the good site was seeing Ian PLAYING in the water
and in the sand. Not sitting like a bump on the beach like he did on the last
trip to
Well Ian
got cold (Ya the water in
We
stopped at the Flea Market and Mom picked up a sand pail and some suntan
lotion, since this had not been on the itinerary. Then off to the beach, well
we did a 1st, we actually DROVE through OOB center. Normally we are
walking since the campground is just off the center. The place we ALWAYS camp is WILD
ACRES FALMILY CAMPGROUND it is an awesome place, and for those of you
who want to be within walking distance of the beach, stay on their OCEAN WALK
section.
Of course
today, there is no where to park near the PIER. So we follow the road towards
the campground and familiar territory. We park at the RR tracks and walk to the
beach.
As you
can see this is a more foot friendly beach LOLOL
ß Hmmm think he’s
having fun??? No SPF 45 and it is
The boys
and I have an awesome time on the beach; it is great to see Ian out in the ocean
with his dad and his brother, building sandcastles. RUNNING AROUND and doing
the things he should have been doing last August.
Man do I
wish we had the trailer with us and could just stay. The boys drop Mom on the
Beach and head for the water. Mom gets to try out her NASCAR.com to go program
on her phone, since I am actually away from the TV on race day.
And
doesn’t it just figure mom’s favorite driver (TONY STEWART) WINS today and I don’t get to see it, Dad says I have to stop
watching races now and stop jinxing my driver, hmmmphh.
Congrates TONY
We head for
home later than usual, since we are all enjoying ourselves so much. It is
We arrive
home at a little after
Mom
played hooky today, she got up late AGAIN, and just said oh well, not gonna
play today.
Kids and
I had a good day, Ian wanted to learn how to use the sewing machine and he did
great, after prowling through mom’s craft supply closet, he made himself
a pillow with some left over fabric and then made his brother one too.
It’s always a good thing to know, how to run
a sewing machine and hand sew. Even for a guy.
PS : I finally have pictures from Keith’s
Graduation clic here and go back to May to see them.
Not much
to tell today, it was a rainy quiet day, but I have a few new photos of the
cats, so I guess I’ll share those
Hmm looks as if the boys are race fans too And who say cats
are afraid of water??? Check these 2 out.
DYLAN - -DR LAURA, ALLERGY FOLLOW UP
IAN - -5 WEEK BLOOD WORK @ DR LAURA’S
making it all one trip
Well today
was lousy weather wise. So the kids got to play Video Games undisturbed by Mom,
since there was nothing else for them to really do.
Decided
to get ready and head out around
Dylan
checks out fine, on his hearing, just the typical “selective”
hearing, or lack of paying attention when someone is talking to him. We talk to
Dr. Laura a bit. I show her the “letter” from Dr. Z and she makes a
copy for Ian’s file and writes up the blood work orders.
Then
it’s off to the lab, Ian is having a harder time than usual, but nothing
like at the beginning. And to his surprise, this tech doesn’t hurt him
like the last one did. All done and we’re outta here!!!
Then we
head to A.C. Moore a craft store, to spend a birthday gift certificate
that Ian has had for months. I got out
only spending $24.01. I got stickers and scrapbook paper that I hope to use on
this web site. (Getting more and more creative as this thing grows.)
Then home
and supper and to bed.
DROP TRAILER AT NHIS FOR USE NEXT
WEEKEND,
RV LOTS OPEN AT
Ok, we set
off for NHIS around 0930 and arrive promptly at
We are placed in our spot, only 1 in from
the road, which is nice, however the spot is only
16 ft
wide and our RV with the Awning is 25 ft wide.
Takes
them awhile to figure out what they are doing, and
the 900 heat doesn’t help any.
Once we are all set up this is the amount
of space that
we get. In this space we are to have the awning, the
slide
AND THE
TOW VEHICLE, I wish I knew what these folks
were smoking to think that with the newer rigs that all
this
will fit in that amount of space.
(Note:
in the photo there is NO vehicle – even my small
car would not fit in the allotted space)
We have lunch, and then head for home, we
hit traffic
in
the household chores.
MOM, IAN AND DYLAN: HEAD TO NHIS FOR
NEXTEL CUP RACING WEEKEND
The boys
and I head out around
The Rules are quite tight now, only 1 vehicle is
allowed with the trailer. I do not have
a tow vehicle sticker on my car; Keith has it on the truck at home. (I have
made a copy of the sticker to prove that I ACTUALLY have
a space in the L Lot and so they will know I belong there and will tell them to
come with me, to prove there is ONLY 1 vehicle with the trailer)
We drive
right in, no one looks twice at us and head to the trailer and get unloaded, it
is again about 900 in the shade, and there is no shade
J.
I know
the kids will be bored, so I take them over to the movies in
Shrek 2. They have a great time,
tho I forgot to brig hear plugs for Dylan. We then go to the local mall for
dinner and then head back to the trailer.
I have to
pick up gas for the generator and stop just outside the track to do this. We
pull out of the station and meet “Billy Bad Ass” security stooge.(give
them a yellow shirt and a lil authority and look out)
As I turn
into the track he stops me, as I try to explain where I am going, he reaches
INTO my car ( I have the sticker copy – in a baseball
card sleeve laying on the dashboard for easy access) and GRABS the sleeve and
demands that “THIS HAS TO BE AFFIXED TO THE WINDOW” then goes on to say “this is a counterfeit sticker and IT’S MINE” he then calls over another person, this one
has a white shirt and a spiffy security badge. I try to explain I have 2 small
kids, a can of gas in the trunk and I am the ONLY vehicle with the trailer, and
the tow vehicle is at home. Man, these 2 make a great pair. I am made to feel
like a criminal and told to wait “over there” until someone can escort me to my trailer
and MAKE SURE there is no other
vehicle with the trailer.
Well we
get back to the trailer and unload, I practically knock over the grill, since
the trucks across the way are now here and I have no swing room. I speak to the
people on the end of the row, and then move my “highly illegal”
vehicle down to the end of the row. NOW we have enough room to move.
We
spend the day wandering around the track, watching Haulers arrive and generally
checking the place out and relaxing.
I try to
find a friend who works at NHIS, but no luck, he is on infield duty and not the
tunnel. Oh well.
PRACTISE, QUALIFYING AND FEATHERLITE
MODIFIED RACE
This is
the view from where we sat to watch qualifying, we went to 1st
practice at
Looks like they had fun, tho they would hate to admit it.
Then we headed back to our trailer for lunch and
then to the qualifying.- tho we missed most of it,
since the sponsor trailers took more time than I expected. I did get to see my
driver qualify, so I was happy.
The boys
did not want to see the Featherlite Modified race and we decided to get Ice
Cream and head back to the trailer and then the heavens opened up. We were
drenched, tho cool finally LOLOL.
Once back
to the trailer it was, try to get some of the water off the tarp and lower one
end of the awning to get rid of the water on top. I didn’t do too bad for being there solo with the kids. Then I got the grill
going and we had burgers and dogs for dinner.
Keith
and his mom were to arrive around
DAD AND GRAMMA B ARRIVE AT NHIS 1:00AM
PRACTISE, HAPPY HOUR AND BUSCH SERIES RACE
Since we
had so much to do, we never made the practice sessions L. We got the kids to the MRO tent and they painted
pinewood derby cars. Mom and Dad left them with Gramma and went to get gas for
the generator. We needed to go to truck
(parked at the front gate) and since we were there we went to the flea market
Then back
to the trailer for lunch. While putting around the trailer getting ready to go
to the Busch Race, I checked my email and got the most
AMAZING NEWS!!!!!
Ian’s blood work
came back and it is 99.9999999% normal
Only the ALT is off and then only by 1 digit
|
|
P |
CPK or CK |
Aldolase |
Von Will |
LDH |
AST |
ALT |
|
10-15-03/Wed |
~~ |
516 |
~~ |
~~ |
~~ |
~~ |
~~ |
|
10-22-03/Wed |
~~ |
501 |
15.3 |
- |
527 |
58 |
25 |
|
10-25-03/Sat |
~~ |
130 |
15.3 |
170 |
489 |
37 |
25 |
|
11-05-03/Wed |
50 |
35 |
8.3 |
261 |
322 |
22 |
19 |
|
11-26-03/Wed |
50 |
23 |
6.5 |
301 |
319 |
22 |
24 |
|
12-24-03/Wed |
50 |
36 |
8.1 |
241 |
290 |
19 |
20 |
|
01-21-04/Wed |
45 |
39 |
9.3 |
205 |
265 |
21 |
16 |
|
02-26-04/Thu |
20 |
56 |
7.8 |
107 |
298 |
23 |
17 |
|
04-21-04/Wed |
10 |
92 |
6.7 |
158 |
310 |
26 |
19 |
|
05-10-04/Mon |
9 |
84 |
9.5 |
~~ |
298 |
~~ |
~~ |
|
6-9-04/Wed |
9 |
74 |
7.5 |
196 |
256 |
25 |
15 |
|
7-14-04/Wed |
7 |
79
|
7.7 |
125
|
203 |
24 |
31 |
|
|
4-175 |
3.0-12 |
5.0-150 |
110-295 |
2.0-40 |
3.0-30 |
With
lunch complete and snacks packed, it was off to the track. The Busch race was
good, tho lotz of cautions.
Jamie McMurray
in new Busch ride à
The kids did not want to watch
the Busch North or the rain rescheduled Featherlite Modified’s. So the kids and I head
back to the trailer and Keith and his mom stay for the races.
ß Mom in Law in hat I made. At her driver’s trailer with Dylan.
They got
back to the trailer around
NEXTEL CUP RACE
JEFF BURTON/MARK MARIN
JEFF GORDON /DALE JARRETT
JEFF GORDON JEFF
TONY STEWART/MICHEAL WALTRIP
Looks like he had a busy day à
This was
a quiet day at home. I offered to take them to the movies and pizza but he
didn’t want to. Oh well, as a friend of mine
stated, don’t say I didn’t offer.
This is
probably one of the 1st birthdays Dylan has been AT HOME in a long time, seems we are
always on vacation for his birthday. Hope the kid doesn’t feel gypped
that he never has a party.
Dad’s
idea, we head to McDonald’s for an Unbirthday
lunch, then to Shaw’s to pick up a cake. We then have cake at home,
before Dad heads to work.
We have another quiet day at home, since Mom has to
head back to work tomorrow.
POOL PARTY AT
IAN’S FRIENDS HOUSE.
The boys had a great time and we will be
seeing the friend again, since he is going camping with us in a few days.
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JUNE 04 |
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