Who's who on the Spina Bifida list
H

Huble, BC
Henry, AK
Harris, NB

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(member from old mailing list)

Myles and Lynda Huble, Prince George, British Columbia
Mom & Dad to Rheanna

Rheanna born October 31, 1995 has Spina Bifida level T10 -T12 and hydro.   She's had 1 shunt revision at 6 weeks and bilateral heel cord releases at 13 months.   Currently she's using a Rochester Parapodium and practicing with a borrowed Star Car.   She sees a physio and occupational therapist and is also involved in hydrotherapy and an earlydevelopment/intervention.   We'd like to try Therapeutic Electrical Stimulation (TES)

"We're very interested in hearing from other high-level lesion parents. Please sendEmail

Sharon Henry, Texarkana, Arkansas
Mom to Kimberly age 13...b-day is 3-30-87

Kimberly is around level L2....she has a vp shunt, and has had many revisions....she cath every 3 hours..she hasnt learned to do it on her own but we are trying......she had walking braces but out grows them to fast so she uses a wheelchair full time.

Kim is a happy child loves school. She has had a bowel and bladder augmentation done, and 1 tetherd cord. As of right now the only meds. she is on is ditropan.

I have a question for other parents of spina bifida kids ...will your child eat veggies or fruites?? Kim will not touch them at all she use to eat a few when she was a baby but not many..i have heard some say there child won't.

We go to the Spina bifida clinic at the Arkansas Childrens Hospital in Little Rock AR. And she went to shrinners for awhile. Our goal is for Kim to be independant...so she will be able to handle adult living....

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Anna & Carl Harris, Fredericton, New Brunswick Canada,
Parents to 4 kids Mitchel, Sydney, Spencer and S'Rena

S'Rena, born July 28, 1995, has Spina Bifida L3-L4, & Hydrocephalus.   S'Rena is currently in an ARGO as well as AFO's on both feet.   Our Hospital's are The Saint John Regional Hospital & the Stan Cassidy Reabilitation Center

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